COVID long-termers 14 weeks+

[isitorisntit]

Welcome all. I'm sad that many of us are still here but at least we have each other. The other thread is full, hence this new one.

Welcome anyone else who is struggling with a long recovery from COVID. They're a supportive lot, here.

@Crayfishforyou that's a bit spooky as I was just thinking of past posters and wondered how you were getting on. Heels, hair and tan... go girl! I'm glad you're improving and feeling mentally stronger, even though it's slow.

@musicposy let us know how you get on with the herbs. I just have odd feelings about the acupuncture - it almost has too much of a powerful effect on my body, probably because everything's so out of kilter for me. I've barely been able to lift my head off the pillow this afternoon which I guess is to be expected... but let's see how the next few days go.

@TiddleTaddleTat that's so bitter sweet... feeling much better then relapsing. But hope it's the beginning of more better spells for you. X

just wanted everyone to know I feel what you are going through as well - been struggling since March14th - very difficult!!! The dermatological & neurological aspect is crazy - just frustrating that we have no answers for us! stay strong!

@Whatapickle78 that is so encouraging! And absolutely not before time.

Hi all! So the GP called. I think he's had enough of me now. Bloods OK. Xray OK. So now I'm to contact this new 'My Covid Recovery' thing.

www.england.nhs.uk/2020/07/nhs-to-launch-ground-breaking-online-covid-19-rehab-service/

@isitorisntit Did Dr give you referral for this? Wonder what they offer.

@Norugratsatall sorry to hear that your tinnitus is so bad. My vertigo is still awful and have mild tinnitus too.

For anyone with ear issues, this article is interesting:
medium.com/microbial-instincts/hearing-loss-an-odd-covid-19-symptom-we-overlooked-6cdf81a5e70

@hollieberrie Hi! Nice to hear from you again but sorry you're still suffering from ear issues! Yes the T does get me down but it's been fine today and was yesterday. It's very strange. Will check out that link. X

*@musicposy - I thought it unlikely I had it again, but I know I haven't now I have had a negative test. I feel the same I have for a while and think I am just taking time to get over it, like many of us.

I can smell pooh at the moment, no one has been in the house, cat or dog, and I have also smelt burning when dh hasn't. Earlier I had a metallic taste in my mouth and I haven't had that since the paramedics were here back in March/April.

@fedupofbed yep I am feeling like I've started to turn a corner... hard to explain but a sense of the fog lifting and much less of the fatigue and muscle aches today.
It's always one step forwards two steps back, though.
I don't know if it's just time that's helped ( nearly 18 weeks now ), reduced workload at work, or the supplements I've been taking for the past week - CQ10 , vit D and magnesium. Probably a combination of things.

@TiddleTaddleTat that's great, you're giving me hope. I long to feel the fog lifting. I've been taking magnesium for a while but I've just changed to a higher spec formula so will see if that has any effect. I've also started high dose EPA-omega 3. Ahem, maybe I should try CQ10 next!

I'm stopping 'radical rest' as absolutely no improvement and I got really sad. So now back to venturing to the garden once a day.

@hesedso a belated hello, and sorry you're struggling too.

Hi all,

Still got the weird feelings back (dizziness, slowness, short term memory) since period, although it’s not even proper bleeding just light and brown 🤷‍♀️(Sorry for tmi)
Felt really agitated and anxious this morning and not myself, also teary. This way of being always seems to come back and with it the fear it won’t end.
Whereas when the fogginess has lifted etc, I’d been feeling back to myself and with it again and positive and happy.
This feeling is almost robotic and like a dullness.
I can see my other half gets impatient with it as I’m obviously not the most fun to be around. It’s hard not to feel lonely in this, isn’t it?

I'm sorry @Whatnext2018 I completely hear you. Yes it's lonely and frightening. I'm just trying to almost surrender to it and accept that it will pass - though that's hard after all this time, and when the symptoms are so alarming. You're not alone though - we're in this together. I hope this passes for you soon. 💐

Does anyone else have different kinds of chest pain on different days? Sometimes I have burning and some days like today it feels almost like my lungs are bruised.. I used to hope the bruised feeling was healing but its been going on too long for that kind of excitement 😂

@Kitcat122 yes, my chest pain varies a great deal . Sometimes sharp and stabbing in a specific area, other times dull and generalised. Really varied.

Me too. I've got pain right now. In my left breast but also my stomach. It is frustrating as I don't know for sure what is going on. I have a sore bit on my nose and I was blaming my glasses as I am well over due a check but then I suddenly thought what if it is a skin cancer issue. Completely over reacting I am sure but all this is so unknown.

Yes my chest pain varies. It is not an intense now as it was a couple of weeks ago definitely. Mostly a dull ache, sometimes radiating through to my upper back and shoulders and underarms. Then I also have a stabby pain and I still do get the much rawer pain on my left hand side. I have that just now but I have also done a lot today comparatively speaking as I am trying to clear stuff out to have a proper work space at home.

It is of course better than it was (I certainly don’t feel like I have swallowed glass anymore) but the pulling type of pain is still there occasionally. That was like having my chest in a vice. Ugh.

whatnext I hope you are feeling a bit better now. This will go away, i think, it is just very, very slow.

fedupofbed I think going out to your garden will lift your spirits and I would not deny yourself that. Mine needs a lot of work which I cannot get to just now, but I do like to see how my plants are doing.

@fedupofbed Thank you 💐 that’s really kind. Sick of feeling so miserable and worried now. So ready to enjoy life again. I think when the head fog and down feelings come, it’s the hardest, I feel completely disconnected at times.

@Kitcat122 Mine can vary a little, it’s geberally a sort of soreness but can be achy and occasionally a stabbing on the left side, which freaks me out.
Today I couldn’t get a full yawn in again, which is weird.

Has anyone drank alcohol? Not that I feel like it at all, but the last time I did was on Easter Friday, just one glass of wine and that night was up all night with all kinds of weirdness in my chest-fizzing, burning up, fast heart rate etc. It didn’t even cross my mind what it was back then, I assumed was a sort of panic attack.
I can’t wait to be fully well, relaxed and drinking a glass relaxing again 💜

@Whatnext2018 yes I've had the odd glass of red wine recently. I did drink a fair bit between weeks 2 and 9 when I thought I was recovered until I had a massive relapse - I don't think alcohol was the cause, fwiw.
If you feel like drinking it can be good to have a bit of normality with a small glass of wine or similar? I'm telling myself red wine is full of antioxidants ...

I’ve had the familiar headache, earache, glands ache and exhaustion for four days I think now. Oh and intermittent nausea, clear runny nose. It’s not as debilitating as March, April and May’s version of this (I’m not bedridden, I have been working normally this time) but it’s worrying how it just keeps coming back. Also the headache used to be front and side of head with matching earache on that side, this time around it’s across the back of my head. So wierd. Still got the pricking nerves, tinnitus.

Hi, to whom asked, no, no referral. I think it's a self referral but the system isn't even up and running, yet.

Yes to the different chest pains. Mostly burning lungs/windpipe now or the costochonjumacallit bruised one. My neck and shoulders/upper back have been so sore since this started.

I've realised it's affected ALL my senses, too- I still can't smell or taste much. I can't smell bad smells, only clean smells and that's if I stick my nose in something. Even rotting rodent passed me by. I have new eye floaters, whooshing ears and tinitus and loss of hearing and weird moments when cold water feels hot etc.

I have tingling/numb/achy limbs.

I smell smoke or damp, rotting wood even when there is none.

I have horrendous headaches.

I have this awful pressure in my throat/windpipe where is feels there's a lump or constriction, this someone has their fist round it squeezing.

Thank you @KatySun The head stuff is the hardest for me. All today people in their gardens laughing and having friends over (which is great obviously) but I’m there spending almost 40 minutes putting food shopping away, I couldn’t think what went where properly and was slow physically in case I dropped anything, so clumsy when it gets like this.

@TiddleTaddleTat I terrified to do anything that makes this worse. So missing coffee too but determined to make this go and hopefully get back to normal life. I had crisps and dips last night as a ‘Treat’ and felt not great after..pretty sick of being so good and boring all the time! 😂

I think I did turn a corner two or three weeks ago, as I was able to do more and to be honest now others mention symptoms, I’ve not had them recently. I’ve been free of headaches, sore throat and swollen glands, tinnitus, fizzing and Very Beaty Heart for a few weeks I think.
Mouth thrush came back -preceded by poo smell actually. Have not smelled burning for ages but sense of taste is up and down.
Last period was bearable, next one is due so let’s see what happens...

Morning,

I think the self referral programme opens later this month but if the service is already running in your area then your GP might be able to refer you now.

I was referred and started physiotherapy last week. Hopefully starting talking therapy soon but waiting to hear back from the OT.

Wk 15 today... breathlessness, pounding heart, sore lungs, chest, back, calves, left ear ache / swollen gland, random tinnitus, sore throat, painful oesophagus / reflux.

Not all at once, but at various times and combinations. Waking up is still the worst part of the day.

Hope everyone can enjoy a bit of today’s sunshine.

My Beta glucan supplements arrived, read some positive things about them, so let’s see 🤞 is anyone else taking them?