Immune/NK cells pred thread #34

[Hopeandfaith1990]

Hi all, started a new thread as the old one was full. Not sure if this is the way to do it but I've c&p'd the list of people on the previous one as much as poss:

Old thread here: https://www.mumsnet.com/talk/conception/5228367-immunenk-cells-pred-thread-33?page=40

@Jecca88
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@Deerdancer34
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@Morgan236
@CarpeDiem75
@ALittleLight
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@venusStarr
@Gizmo1983
@Carportforme
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@Newbeginnings22023
@recurrentmis
@hopefulH
@v60
@lozzmax
@fleur89
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@kea1990
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@ems123456789
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@mamaw05
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@elarcoiris

Thank you @Hopeandfaith1990 and @Deerdancer34 for your kind words

@Hopeandfaith1990 congrats on being in your 28th week and that your exam classes have left for study leave! That's a good idea about the Clexane, I'll ask them for a final prescription and I hadn't thought of recurrent miscarriage, so thank you. Intense is the word for Dr S haha. I got told off by him too for quite a few things. Out of interest would he have wanted you on Hydroxy until you're full term? I'm on it too and haven't got that far in my plan yet

@Deerdancer34 I went through Ark in Athens, I was so tired and broke after commuting to and from CRP for a year, we felt that it would suit us best to take a holiday and do IVF around time in the sun. I felt quite battered and bruised by the consultations I'd had in the UK giving me like 5% chance and the Ark Dr was just the kind of hold your hand manner and optimism that I needed at the time. @Hopeandfaith1990 has given a really good run down of all the IVF stuff, I did a short protocol, and we did a frozen natural transfer because I have endo and was embryo banking prior to my endo surgery before we put anything back in. I ovulate on my own and so my Dr didn't want me on an extra meds which we didn't need to use. He does all the immune stuff that CRP do and so I was on all the immune meds alongside. Your fear is completely understandable, I had a lot of fear, like you're saying you're feeling, but I actually in the end found the SO stuff more full on in some ways in hindsight. I think maybe because I felt empty handed when a SO round didn't work after all the money and effort, whereas with IVF, when I was putting embryos in the freezer I never felt like I was completely back to square one if that makes sense. Everyone is different though and IVF is a big step and feels very overwhelming initially doesn't it. Feel free to literally ask anything, I knew not a single thing about it when I decided to do it and I had put it off for a very long time xx

guys I forgot to say the funniest thing about the Dr S appointment was that he said ‘actually I can tell you took the steroids for too long because you still have ‘moon facieas’ - puffy face’ 🤣 and I said ‘actually it’s gone down a lot since I stopped, this is just my normal face that I’ve had for 35 years’ 😂 of course he disagreed though. My face is very spherical and has always been very round haha.

@Deerdancer34yes I will have the mental health support weekly if I want it until end of September which is amazing. Very grateful. I know IVF can see very overwhelming but actually when I actually got started with it, it was nowhere near as scary as I’d thought it would be. Totally feel your apprehension though as I was exactly the same.

@Gems2811 yes, he wants his patients on hydroxy the whole way through, he says you don’t need to have a break from it. I’m sure it works but I literally just followed the IVF doctors suggestion to try something different after the failed FET. How are you feeling? Xxx

love to all xx

@Hopeandfaith1990 that actually made me laugh out loud, between us we could probably write a book of the crazy comments we've come across during these times, imagine saying that to someone! Goodness. Finding the humour in these things has become a superpower!

That's good to know about the Hydroxy, thank you! Apart from awful migraines, I'm feeling a bit better thanks and I thinkkkk it might all start to be sinking in xx

Completely agree @Gems2811 - my humour has definitely
gotten darker too 🤣😅 that’s great (aside from the migraines). Around 20 weeks is when I started to feel some hope too 🙏🏻 this is such a tough old journey and we spend so much of living in the land of protecting our hearts xxx

@Gems2811 Thank you so much, that's really helpful knowing what you did and also how it makes you feel because SO can feel really relentless, especially when its not working 😅 I'm definitely feeling a bit better about it hearing your stories, its just a big step and the worry of it not working. I'm glad you found the Ark Dr - you need that person that actually cares and gives you the hope don't you?
Will you find out gender!?

@Hopeandfaith1990 That made me giggle! Thanks Dr S!

I had my Hyfosy yesterday, it took a while for her to find my tubes so hopefully flushing them has helped and she found no polyps in my womb. So I think we'll give SO a few more cycles so I can get my head around IVF 🫣
Lots of love to all 💓

@Deerdancer34 I hope the Hyfosy was okay, and hope flushing them has helped 🙏. They're pretty uncomfortable aren't they. You so need a bit of hope and compassion, I actually looked forward to every scan during stims because he'd give me a little pep talk each time, saying that my body has done a wonderful job and that I'd really put my all into the cycle and acknowledge the effort and how vulnerable you feel. It sounds really silly but I needed that after so many years of being told that my body wasn't up to scratch for one reason or another. Dr Edge is good at this too. We'll all be rooting for your next SO cycle xxx