Immune/NK cells pred thread #33

[Jecca88]

Hey Guys, starting a new thread as we have run out of space - hope i have included everyone and sending lots of love x

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@Hopeandfaith1990 Thats really good news. Good numbers and here’s to good news again next week. You’re so right about the positive thinking 🥰

@Objectiontime aw we are defo all in this together aren’t we ❤️. How are you feeling? I keep trying to keep busy but these bloody headaches are kicking me at the minute. Do you have a date for your scan xxx

Wow, this is unreal- your husband effectively had to do her job for her! I have serious scanxiety having only ever had bad news and so I can't imagine how that must have felt. I always wonder if it's possible for them to get it wrong. Anyway, FANTASTIC news, another really important milestone out of the way. Hope you can relax a bit this evening x

Omg @Gizmo1983 what agony that must have been, i feel like i was right there with you. Honestly jesus. So glad all is ok, are you going to do the NIPT testing at 10 weeks?

@Hopeandfaith1990 lucky number 7, this waiting bit is awful. Are you doing anything nice this weekend to take your mind off it? Treat yourself to some wine :)

My IVF appointment yesterday was a bit of a let down, consultant was 30 mins late and then said that I need to have a Genetic conselling appointment if we are going for PGTA testing before they advise on a treatment plan, so guessing it will be delayed for another cycle. I think i will have one more try naturally and have intralipids next week, period also started yesterday on our anniversary.

Thanks lovely, I will definitely be having some wine tomorrow night!! we had to have the PGT counselling appt as well. It was about 1.5 hours and basically just teaches you about the process and makes sure you understand it all. What clinic would you be doing it at if you know yet?

sorry about AF on the anniversary - what a dickhead move. No harm if trying one more natural cycle in the run up to IVF! I think it feels good to be really ‘ready’ for it rather than doing it too soon if makes sense. Xx

@Fletchasketch @Jecca88 i honestly by this point was just staring at the ceiling waiting for her to call it like with my other ones, im guessing their scan machine is nothing like the ones at the centres i think thats why I got another migraine in the way home.
crikey @Jecca88 yes I will have to book a nipt, my last nipt was where they found my cystic hygroma that did resolve and it was all clear. My gut tells me there was something wrong with the baby herself I always felt there was something wrong in my gut you know how a cat rejects a kitten there was something wrong.
@Jecca88 oh those bloody counselling appts my only saving grace was our counsellors voice was so soothing she could have sent me to sleep 😂, that month will fly by and then you can get started right away
omg ladies wine, just wine I could murder a glass of sangria.
@Jecca88 did you still manage to get your swim in, I’m going to try and get to the beach tomorrow the sea is the only place I really feel I can clear my head xxx
hubby said to the dr today so we can starts and get a bit excited dr said absolutely not we still have a very long way to go. I like the fact she’s realistic

@Gizmo1983 We absolutely are 😁. I'm not bad. My boobs hurt a lot, I am weeing like crazy but I am not too nausiated unless I'm Hungary. (thanks to the pred I suspect). I have had the bad headaches too from time to time so I'm with you on that one! I have had a bit if a dodgy stomach (putting it politely) but now I'm completely constipated, sorry, tmi! I actually feel just like I did with my MMC pregnancy but I know that doesnt mean anything. I'm just glad to be over the 5 week point, which is kind if my first milestone as my chemicals were lost at 5 weeks exactly so I guess I'm hoping that's a good sign and not just the cyclogest keeping any bleeding at bay.
Very early scan is on Monday, dreading it of course but then they only hope to see sac and yolk so it's not like they are looking for a heartbeat yet. Xxx

I am feeling very sick today! The Pred is not quite doing the masking job but it might be the heat!! Still, I am not moaning I guess!

@Objectiontime thats great you’ve passed one of your milestones, I’ve got everything crossed for you for Monday. This is a new pregnancy and so has a new chance. I keep telling myself this lol.

thus is my 4th day in bed with a headache I have been given the go ahead to take my triptans and I took one yesterday I feel so guilty but the pain in my head stresses my body out so much I honestly can not cope with this pain for days on end.
paracetamol and codeine used to help but it’s stopped and now just the triptans do the job. I have severe migraines so knew this would probably happen but I can only cope with the skull cracking pain so long.

@Gizmo1983 Yes, one step at a time is hard but how it has to be I guess.
Goodness, so sorry you have such a bad head. There comes a point where pain is exhausting. We all have limits. You and baby will be fine. Better to be a calm and hapoy mum to be than one stressed by pain x

@Gizmo1983 Hope you are feeling better.

Had scan and all looking fine. My only slight worry is that they reckon I’m about 5 weeks and I am 100 sure I’m around 5.5. I wouldn’t have got a positive test at 5 dpo. I’m thinking it’s hard for them to judge age this early so I will remain optimistic x

@Objectiontime hey sweet everything is so subjective at this point. The scan I had 2 weeks ago I measured 3 days less then I thought and they didn’t even give me any measurements at the scan the other day 🤦‍♀️. Do you have a date for a next scan I know you don’t like them I hate them but I can’t live without them 🤦‍♀️🤦‍♀️🤦‍♀️

Hi there and yes, got another in two weeks and obviously hoping to see heartbeat. They were very happy though. Could see yolk, gestational sac and start of embryo so praying it all continues x

@Objectiontime that’s all amazing, just keep doing what you are doing. 😊.
i feel like time is my greatest enemy it just drags so slowly, my 2 later loss dates were 10 weeks and 15 weeks so if I’m honest I feel like I’m at the bottom of a pit staring up, if I’m lucky enough to make it that far I guess I will get scans just after those dates I think that’s all I can do really and just pray for the time to fly.
i had to take my migraine meds in the end, last pregnancy my migraines got so bad i actually lost part of my retina can u believe, it did regenerate but took a while and i just don’t think my body can take that kind of stress again. I had a headache that I couldn’t get out of bed for 4 days and within 2 hours of taking that tablet my hubby had me sat on the beach so if it happens again I will take them, I feel so guilty but don’t think I have much choice 😥.
are you managing to keep yourself occupied I need to find something to occupy my brain xxx

Oh @Objectiontime what great news! Gentle congrats on the good scan. They always read off at the early stage and then catch up. But it’s great they can see all that is meant to be there. I have forgotten where you’re based and if you go to CRP?
@Gizmo1983 bless you my love give yourself a break - get those pills down you and get yourself to the beach. If dr says it’s fine it will be. These hormones play havoc with our bodies.

@Hopeandfaith1990 any news on your embryo babies?? Been thinking of you all weekend and hope you got to do something nice.

Hey @Jecca88 sweet how are you doing? Bless you and thank you I just could not cope any longer it was horrific. What have you been up to? Do you have a plan with CRP and ivf, sorry I’ve just shot you with a million questions 🤦‍♀️🤦‍♀️🤦‍♀️. Xxx
@Hopeandfaith1990 thinking of you sweet ❤️

Sorry all didn’t mean to go silent!

we got the call to say that of our 7 fertilised eggs we have 3 confirmed blasts of a good size and quality and 2 hoping to be confirmed for tomorrow 🤞🏻🙏🏻🤞🏻 so we will wait and see tomorrow but three have already been biopsied for PGT-A already! Really grateful for these numbers and trying to tell myself it’s a good position, the little recurrent miscarriage voice in the back of my mind tells me it isn’t enough but it’s our first round and I’m happy. I think I will just never believe the whole ‘it only takes one’ thing because of all the losses. But I’m trying to stay optimistic!! Thank you for your thoughts @Jecca88and @Gizmo1983and everyone.

@Gizmo1983im sorry you’ve been suffering with migraines, and in this heat too. You poor thing. Deffo take whatever the doctor says and it will hopefully help.

how are you @Jecca88have you decided on your next steps? X

@Objectiontimei dont think they can ever been completely accurate at this stage (or ever!!) so try not to worry about those three days. Also, even if you’re confident with your ovulation date you could have taken slightly longer to implant? It’s never an ‘exact science’ is it, however much we want it to be!!

love to all xx

Totally fair enough @Gizmo1983 i have only ever had one bought of migraines and it was insane so I would be totally with you.
I am having another go with CRP and have intralipids this Friday. I haven’t actually told them about the IVF - but I will do this week. I have the genetic consultation booked for end of June with kings fertility, so again if this month we don’t get pregnant we will proceed with the IVF and PGTA testing alongside the immune protocol.
I went to a bbq this weekend and I honestly can’t believe I braved it. 5 of my closest friends are pregnant. 3 of them were IVF and it really is nice success stories - I just can’t help be feel I am going be the only one that doesn’t have the success - as surely the odds are still against me. Everyone I know personally who has struggled has either got a baby or is far along in there pregnancy, so there has got to be one that it doesn’t work out for.
Also my husband has been really struggling with his mental health since we lost our dog and I think our 6 miscarriages has finally hit him and is a huge accumulation of grief. He is getting help and is on meds, but it is just A LOT!
xx

@Hopeandfaith1990 thats absolutely great news I’m bloody over the moon for you. I think that nasty recurrent MC gremlin lurks in all of our brains and once he’s in there he never leaves and spoils everything. Let’s show him who’s boss xxx

Awww @Jecca88 i just want to say how bloody amazing I think you are ( and your hubby). I don’t know if I would have been brave enough to go, but equally those ladies were all us once and we may be them. I have a friend who has 6 kids and her last one she had at 46 she doesn’t know my story and says always you’re just a baby you’ve got tons of time yet ( 42 in July 😬) . Your poor hubby it’s just shit on top of shit isn’t it. We are all here for you the good and the bad ❤️

@Gizmo1983 Thank you lovely, it does doesn't it. IVF has helped to keep it at bay at bit but its most def still there.

@Jecca88 You are SO brave. I've got my best friends baby shower next weekend (99% sure I won't be able to face it) and my other best friend's daughter's 1st birthday (which I will try but don't know if I'll make it). Both SO baby oriented and will be full of babies and preggos. I still find it so hard :( you're amazing @Jecca88 !

I've had that feeling about the odds before, but I feel like the fact that we keep going means we DO have some hope that it will be our time eventually and I think that keeps the bad odds away from us. Every time I think 'its just never going to happen for me' I try to imagine myself giving up, and I can't (right now anyway) so I cling on to that. Also, those IVF mums probably felt exactly the same way at the beginning of their journey too. You got this xxx

@Gizmo1983 I will. I do remember you mentioning about your losses being a bit further on. That is really hard on the time front I agree. It is odd to me that your losses were a bit later. I may have missed something but did you ever find out why? I suppose immune issues can occur at any time but I always thought embryo/fetal rejection would occur earlier.
Like you said, every pregnancy is a new chance and we have to try to be positive. Time is such a drag though. So sorry about your head. Nothing worse than migraine. I have only had a couple in my lifetime and there is very little I can think of that is worse! I have a busy job so plenty to occupy me but it wont help much I dont suppose. Cant even have a glass of wine to calm the nerves :)

@Jecca88 Thank you so much. I am actually with the Lister clinic but I have an NHS consultant now too which makes life easier.

@Objectiontime your thoughts are the same as mine I was sure I’d seen dr shehata quoted a few times that immune issues are before 10 weeks. I asked him this out right after my loss and he never answered. I did test positive for nk cells and nothing else. My full loss history is nothing before I was 39 then had a blighted ovum, the 15 week loss - at 10 weeks had a cystic hygroma but it disappeared by 12 weeks autopsy and genetic tests were all normal, then couldn’t get pregnant so did ivf put in a pgta tested which implanted and all was looking perfect until 10 weeks to the day when the heart had stopped again all genetic testing was done even though we pgta tested and came back fine. Me and hubby have since been genetically tested and we are both fine. I never went back to shehata after the last loss so don’t know his opinion. Most drs I’ve spoke to suggest it could be the age of my eggs which was why I was going donor until this suprise happened. And that’s pretty much it if u have any ideas or suggestions please chuck them in oh I had a chemical as well in there somewhere. Xxx

@Hopeandfaith1990 Absolutely fab news for you. Really pleased for you. That's a good number. Thank you for your kind words. I got my positive at what I am pretty certain was 9 dpo so I think I implanted pretty early but I appreciate that they cant be too accurate at this stage so I'm feeling as positive as I can be and will just try to stay that way.