Immune/NK cells pred thread #33

[Jecca88]

Hey Guys, starting a new thread as we have run out of space - hope i have included everyone and sending lots of love x

@venusStarr
@Gizmo1983
@Carportforme
@Meg310532
@Newbeginnings22023
@recurrentmis
@hopefulH
@v60
@lozzmax
@fleur89
@motherofshihtzus
@sunflower360
@kea1990
@sprinkleofbabydust
@star2022
@rumandspinach
@ems123456789
@rainbowsunshine81
@mamaw05
@thornters
@elarcoiris

@Jecca88 how are you feeling hun?? … I caved and did a test 4 DPO … like why did I even do that?? It was never going to be positive 😂😂 I just HATE this horrible wait !!! 🙈🙈 xx

Ahhh @Meg310532 bless you! its such an axious time - have you been trying to keep yourself busy? My faint positive only showed up after 10 days and it was very faint - it wasn't until 15DPO that it was really strong, but i actually think i might have ovulated later as i never got my peak. When is your 10 DPO? will be keeping everything crossed. Its amazing in the TWW how your mind can shift from being so positive it worked to negative. This month i didn't believe it.

I am feeling rubbish tbh, so knackered and thought the steroids would help and my tummy just feels gassy from the progesterone which makes horrible twinges that you can't help but over analyse. I keep trying to think about the positive scan last friday and just atleast i have that experience. My next scan is Thursday next week and its the day of my husband work xmas party that he is hosting - obvs if its bad new he won't go bless him.

How are the steroids for you?

@Jecca88 ahh that’s reassuring :) I didn’t get my Peak until Thursday evening so really I prob didn’t even ovulate till sat morn!! Dr Shehata tells you to test 10 days DPO doesn’t he ? And then to stop steroids if it’s negative ? So do I count day 1 as the Sunday or the sat ? I actually feel totally fine on the steroids, it’s more the progesterone that gives me Side effects. It gives me like cramping feeling in my belly like I’m going to come on my period and also a sore hip. it happened last time I was on progesterone.
ohh next Thursday isn’t too long a week tomorrow, but I know every day feels like a week doesn’t it! It’s so annoying that there isn’t a home HCG test you can do at home To just reassure isn’t it!! You saw and heard a strong heart beat which is amazing and i have a good feeling for you guys. Dr Shehata is amazing and there has been sooooooooo many stories and reviews from people that went to him with over like 7 miscarriages and he got them there baby !!!!! So he can do it for us too! I think if this cycle doesn’t work, I will just take the letrozole unmonitored as it will save me £500, I don’t even think I will be able to get into the clinic for a pre ovulation infusion as I’m on holiday, I wonder how he will take that ?? Xx

@Meg310532 i would say day one is the saturday. Thats good about the steroids, do you feel shakey at all? yes i know what you mean about crampy - i always over think and you just really can't tell. As soon as i have that scan on friday i was so much more aware and felt more pains and twinges, which makes me think its all in my head and my mind playing tricks on me.
Yes trying to keep busy, i have my work xmas party this friday and just doing lots of bits around the house, but i am just so tired too.
I have a good feeling for you this month and hope you get some nice news for xmas. I agree - i think you will be ok to not have the pre-ovulation intralipids, you dont need to tell them and see how it goes. Its the 4 week one and so on that is essential once you get positive test. Are you going anywhere nice on holiday?

@Jecca88 ohhh that’s so nice that you have some things to keep you busy and enjoy yourself, will people suspect the no drinking ? Haha… I’m so open with all my work about my journey as had 2 weeks off work sick leave with my miscarriages and been on so many appointments in work time etc so I know I will prob just tell them straight away. . I am soooo hoping for a positive this month I really am !! Every time you go for a scan you are going to feel more and more reassured aren’t you. I’m going to centre parcs for NYE with the family, staying in one of the lodges with the hot tub and games room etc I can’t wait !!!! I haven’t actually felt shakey I have felt a bit dizzy sometimes but not shakey ! I’m just so happy that I haven’t got insomnia as that was the one I was worrying about the most. At what week do you think you will tell family ? X xx

@Jecca88 thanks so much for the add I’m thinking of you all have had a few weeks of hell to be honest I’m still bleeding and have regained products one minute im being admitted for surgery the next I have an appointment to check me in 8 weeks 🤦‍♀️.
also I had a letter to say my products of conception has not been tested no other explanation than that. After a week of trying to speak to some one they tell me the paperwork wasn’t done correctly so they don’t know if the lab have kept the samples or not. A week later apparently they have kept the samples so once the drs do the paperwork correctly I’ll get my results 28 days after that.
😬😬😬
much love to all ❤️❤️❤️

Hi all, sorry it's been a while. Little update, I'm 17 weeks now and we had a private scan at the weekend to find out the sex, my son wanted a balloon to pop, so we brought it home so my mum and my husbands mum and dad were there to see, it's a another little boy, feeling very thankful and still at times anxious. I'm going to ring my midwife to see if i can be seen more often, as it probably won't be until February that I see her again and it just feels too long away. Hope everyone is doing OK. Lots of love ❤️

@Jecca88 Thanks for adding me to the new thread.

I haven’t been active on here for a while, but I have been continuing to lurk and celebrate and commiserate over various people’s happy and sad news - sending lots of love to all of you! Now I’m settled in my new job am starting to plan a comeback… Think I’m going to go back to CRP soon with a view to restarting TTC in the new year (figure I might as well enjoy Christmas first!)

For those of you that have had a miscarriage on the protocol, did Shehata change anything when you tried again? Testing came back inconclusive for any chromosome issues so we’re none the wiser as to why it didn’t work out, and I’m wondering whether I actually need an appointment with him before we start again, or whether I just start with the same process as last time. If I can save myself the cost of the appointment I will do, but not sure if they’ll let me do that!

@Gizmo1983 so sorry you are having such a shitty time :(( are CRP not handling this the best way for you? Sounds like you have been pulled from pillar to post. As if it’s not hard enough going through this but then to have to chase people and follow up with things must be exhausting :(( sending you love xxx

@Meg310532 I have told my sister and mum as just easier to share than hide and to others i just say i am having treatment - and intralipids cost alot basically to get rid of toxins in the body so why would i drink etc - people don't really pry anymore. I haven't told anyone at work - im quite guarded at work and just feel they wouldn't understand - prob offend me. Your holiday sounds lovely and something to look forward to.

@Gizmo1983 this sounds like absolute hell, how can they mess this up so much. you poor thing. I am glad they have found the products to test but what a rollercoaster.

Great news @Rainbowsunshine81 congrats on another Boy :)

hey @elarcoiris welcome back and hope you're doing ok. i had two miscarriages on DR Shahata's protocol. I think you have to have a consultation to get more prescriptions, so not sure you can skip this - might be worth asking. My plan has changed since the 2nd one - i added more meds and something to help with polycystic and this one is on plan for now - still early days but first time i have seen in heartbeat in three years.

@Jecca88 Thank you ❤️ hope you're OK. Xx

@Jecca88 Good to know, thank you. I kind of assumed I’d have to have an appointment but will just be annoying if it’s the exact same protocol, especially as I still have about five boxes of the steroids at home! Glad it’s working for you this time - keeping everything crossed for continued good news xx

Hello ladies, I wanted to share a happy update that I had my son in August after being on Dr S’s protocol following 5 miscarriages. I had one miscarriage on his protocol (on pred and intralipids plus metformin, vitamins etc) and then added hydroxy and to my surprise and amazement it worked out! I had been told by the NHS there was nothing wrong with me, and also that there is no evidence for NK cells as a cause of miscarriage. But I’m so glad I ignored their advice and saw Dr S, as I’m sure I wouldn’t have my baby boy otherwise. It is such a rough journey but I do believe you’re in the best hands with Dr S and CRP, so have hope! And I hope you all have your rainbow babies ❤️

Thank you for sharing, and congratulations @Lily1990!!

Thank you Jecca88. Xx

lovely news @Lily1990 this gives me a lot of hope! thank you for sharing :)

How you getting on @Meg310532 thinking of you?

Hi hun @Jecca88 I was literally going to write to you today. So I did a test yesterday which would have been 9 or 10 dpo as I’m not hundred percent sure if I ovulated on Friday or Saturday and I could have sworn I saw a shadow under a torch light or it’s my eyes playing tricks on me, again the same this morn I think my mind playing tricks on me. But looking through all my other pregnancy’s I have never got a positive until I’m 12dpo which makes me wonder why I have been told to come off all steroids from day 10 or negative. As what happens if I end up getting a positive tomorrow or the next day and then that’s two days no steroids ? ! How are you ? Is it your scan this Thursday? X xx

@Meg310532 I think this is the same as me, i was like am i seeing things or is it a really faint line and didn't get my proper positive until day 13. I carried on with steroids for a couple of days, but also dont think it matters if you miss a day or two. Keep testing i would suggest. Keeping everything crossed for you.

Yes - scan this thursday - anxiety is creeping up again :( again think i need to keep positive but prepare for the worst - just so close to christmas which feels more pressure.

To top it all off We just had my friend stay who has never had any fertility issues and she just told me we are having a baby - this will be her third. She is still so early but it was just the confidence of 'we are having a baby' which i will just never know how it will feel to have that certainty. She also said she wanted to tell me in person - why do people feel its better for them to say in person - i would have much preferred a text so i can manage my reaction. I didn't tell her i was pregnant.

@Jecca88 it honestly baffles me how people are so insensitive over our situations, people honestly never fail to amaze me by their lack of empathy and also brain cells !!! Exactly, why do you want to be told something so heart breaking to your face, a text is much easier for you to manage your reactions. That’s so true no one will ever understand the feeling of being pregnant after so many loses. There is no excitement it’s just pure worry and anxiety. The main one I keep getting is “at least you can get pregnant” funny enough my goal isn’t to get pregnant , it’s to have a baby! lol. I can imagine the worry and anxiety is really setting in for you with Thursday so close but yet so far. Do you feel okay?
ahh did you not get a proper positive till 13 dpo either? Did you test earlier? On what tests did you do? There is deff a lot of pressure for me too being Xmas and also my 35th birthday on 6th jan I wanted to be pregnant so bad going into the new year. BUT I’m not totally out the picture just yet. I’m going to keep going with the testing.x x

@Meg310532 i know - i kinda wanted to say btw it is actually easier if you text or message but i just left it and let her have it. Yeh the atleast you can get pregnant is just such a typical saying, it really is an empty comment and rather hurtful. My other friend who has fertility issues but the opposite and has never been pregnant says this to me, as if she is jealous, but what she doesn't think is we have had to lose 5 pregnancies - so the hope dwindles each time.

I am feeling ok, i am waking up super early and then feel shattered in the day. should be 8 weeks now - still no blood which i suppose is a good thing. Just need to keep hitting milestones and get through each day tbh.

Yeh so i tested 10dpo and 11dpo and both very very faint lines and then tested 13 dpo and it was positive and then day 15 which was strong. But I never got a peak on my ovulation so it could have been later... I just use the cheap pregnancy strip tests - the little thin ones where you get 10 for a fiver on Amazon.

I would say there is defo still hope for you.

@Jecca88 I’m surprised she thought it would be news you would be overjoyed to hear just before Xmas and to your face in all honesty 🙈😂 I also have the same with another one of my friends who’s been trying for a year and half and not fell pregs just yet but seems to be jealous of the fact I have three times. It’s such a hard challenging situation with friends I feel sometimes the loneliness & the dissapointment from friends can leave you wanting to just shut people out.

so I took a first response one 5 mins ago and I couldn’t even see a faint line … I just feel like I can’t accept it though, like I feel like I’m pregnant it’s so weird. But I think it’s because I thought so much it would happen that I’m convincing myself :( xx

Thanks for new thread @Jecca88. How is everyone doing? @Jecca88 absolutely agree, a short simple to the point text is best, I hate having to manage my response. It makes everything all the more distressing and lonely. Whose interests is it in to share news in person anyway?! @Gizmo1983 how are you holding up? @elarcoiris absolutely enjoy Christmas - thanks for that thought, I needed some silver lining this afternoon. @Rainbowsunshine81 congrats on the boy!

Not good news from me unfortunately. Had an appointment with my consultant today - she thinks I’ve probably got Ashermans. So looking at a hysteroscopy to confirm and then surgery. Anyone any experience? Pretty devastated it’s further intervention and waiting while everyone around me is announcing pregnancies or giving birth.

@v60 Thank you ❤️ I hope you are OK ❤️

@Meg310532 she has now messaged a really long message how guilty she feels for being pregnant and now i feel like im comforting her - ffs what is this. I agree - i have really evaluated a lot of my friendships through this.

I am sorry about the negative test - i would just leave it a day and use the first wee of the day. when would your period be due?

@v60 good to hear from you, you're so right - whos interest is it to tell in person? very self indulgent if you ask me. I am so sorry about the Ashermans - do they think it was from the recent MVA and scarring? or could it have been there a while and contributed to the last miscarriage? where will you have the Hysteroscopy?

@Jecca88 I think a big part of it is the naivety of a straightforward pregnancy. I’m totally jealous of that in a very melancholic way. Absolutely give yourself space and time from whoever you need to, I’m doing exactly the same so you’re not alone. The scans this consultant looked at were actually from before the most recent miscarriage, so who knows what it looks like in there now after the MVA. I guess it was caused from my first miscarriage which was a D and C. The consultant wouldn’t be drawn on scarring or any other sole reason for the miscarriages - I have blood clotting issues and thyroid issues as well as high NK cells - but she was quite clear that my uterus isn’t a healthy place and that needs resolved. I’ve been googling success rates which is never a good hole to fall down!