Recurrent miscarriage and genetic findings- any success stories?

[vix_85]

We have just found out at 9+5 that our 5th consecutive pregnancy (no children) has been another missed miscarriage. D&C is booked for next week and after private fertility testing (because GP didn't seem to care), genetic issues is becoming the mostly likely cause. This will be tested next week with the removed materials.

Has anyone had this finding and had a successful pregnancy? How did you do it? How long was the process?

I am nearly 38, my heart is breaking and we are preparing for the worst next week, with being parents maybe off the schedule for us.

Hi

feel like I could have written this myself same amount of miscarriages and a MMC recently which I had to have surgery to remove on Wednesday as the tablets didn’t work and I’m waiting on the results to find out what is going wrong also 38 I will be 39 this month 😢 it’s a tough journey just wish someone would tell me either way stop trying or it’s an easy fix because it’s brutal!

hope your D&C went ok ♥️ sending you lots of love and strength ♥️🤗

@Unicorn2023 it sounds like we are in the same boat completely and what a shit one it is. I'm so sorry you're also having this same experience as I wouldn't wish it on my worst enemy. My D&C is tomorrow so just going through the motions today.

Did they say to you how long the genetic results would take?x

@vix_85 I know it’s easier said than done but try and just relax today watch ur favourite movie and eat loads of crap🤗 I got home Wednesday night at 10pm I had been in since the Monday so couldn’t wait to get home. I was sore but it was bearable ♥️ they said two weeks for the results which I thought was quite quick. It really is shit this is happening to us pregnancy is meant to be a happy time but every time it happens for me I just know something is going to go
wrong 💔 x

@Unicorn2023 I am working today; not sure it's a good thing but have loads to get sorted before I'm off for a few days.

That's good that it's 2 weeks as it's a manageable timeline. I'll be asking all these questions tomorrow but in your experience, have you been referred to the recurrent miscarriage clinic already? I am so upset with my GP as it seems we've paid privately when they should have helped already.

I hope you're resting and looking after yourself x

@vix_85 You are so strong to still be going to work ♥️ the doctor told me they would refer me to the recurrent miscarriage clinic but I haven’t had anything or heard anything yet I’m not sure if that happens after you get the results I was to caught up on getting home I didn’t ask about that but now I wish I did. At my last scan when they gave you options how to miscarry I was quite firm which I’ve never been before because like you I felt just brushed off one said it’s not even viable at 5 weeks and the other said sometimes that just happens to people what numerous times?! and said I want this one tested because I can’t keep going through this i was so angry and sad that I new I couldn’t let this one go! I was lucky I had a doctor that must have felt sorry for me and said yeah we can do that for you and it actually worked out not bad as the tablets didn’t work so they had to remove it which meant they got the lot and not just what I had caught ( it wasn’t not bad I would rather it didn’t happen but you know what I mean) they really should have helped you that’s shocking that we pay national insurance and can’t even get help when we need it!
I am resting been sore for a few days so just been watching Tv which is good but my house is a mess 🤦🏼‍♀️ feel a good bit better today thankfully it takes a lot out of your body so please don’t rush back to work 😅 xx

@Unicorn2023 I'm not sure it's strong, maybe stupid but I needed the distraction. Had some sobs and tears though between meetings.

I think the topic of any loss 'counting' is disgusting. Anything after a positive pregnancy test should count in my opinion. I am preparing myself for some pain as I remember last time it wasn't pleasant afterwards and this one is a bit further on. I could do another home management as its so so hard at home. Particularly when all we want, as you did this time, is the material saved and tested.

Have you had any offer of support groups? I literally got nothing and I felt like i was having a breakdown /anxiety attack on the bed when they told me the scan outcome.

Wish there was something that could make this better for us both x

I would strongly recommend going and seeing a private miscarriage specialist. As we have infertility issues in addition to the RMC side of things we ended up finding an ivf clinic in Prague who specialised in RMC issues. I did get seen by the RMC clinic but all their suggestions were limited.

@TakeMe2Insanity Thank you for the advice 🫶🏻 I’ve had IVF twice which also ended in miscarriage had all the test and they came back normal so it’s unexplained infertility for me but if something comes back with the genetics for me then at least I’ll know been going through this now for 5 years 😢 I’m so glad you got yours sorted that’s a massive relief ♥️

@vix_85 keeping busy does help and tears are completely understandable ♥️ I agree no matter how long or short it should count because in our hearts it certainly does 😢 felt better but went to the shops now I’m sore again I’m an idiot but needed to get out the house 🤦🏼‍♀️ the doctor asked me if I wanted a counsellor but at that point I didn’t want to talk to anyone I didn’t get offered anything with my last 4 just more or less got on with it so I think maybe it’s built in me now but I do feel like I maybe should take them up on it because not talking about it is worse. I know it’s there job and they are used to it but it was just as a matter a fact then they kept asking me questions and I couldn’t answer because I was trying to hold in my cry it was horrible they were really nice but it still doesn’t make up for the fact they have told you the worst news ever and you have just to get up and walk past loads of heavily pregnant woman to get out 🤬😢

I know me too I honestly hope for both of us it’s something simple that can be sorted easily 🤞🏻 I’m not holding out much hope for myself because I feel like I have the worst luck in the world just now ♥️ xx

H by.

Hi

I'm really sorry for your losses I understand how difficult it is. I had 4 miscarriages and ended up going to the CRP clinic in Epsom as I wasn't getting anywhere with the NHS. I had a 5th miscarriage on the plan I was put on but this turned out to be trisomy 16 so nothing that could be done. I stayed on the plan and am currently 27 weeks and keeping everything crossed! I just turned 41 as well so was really losing hope! Wishing you lots of luck

@vix_85 Hope today goes ok 🤗♥️ xx

@Unicorn2023 thank you, its so lovely for you to message. I'm here now and the softeners have again, started everything off so desperately trying to hold it so they can collect it in surgery. Can't wait for this to be over.

Hope you're resting x

@vix_85 are you in a ward? Ask them for bedpans and when you go to the toilet catch everything that comes out that’s what they did for me 😘♥️ I know it’s so hard my hearts broken for you couldn’t stop thinking about you yesterday 😢 I am resting 🤗 please make sure you do to don’t rush back to work take time for yourself xx

@Unicorn2023 yeah I've just been given the bed pans so I feel happier now that I know everything will be caught if not in the theatre. The softeners I think are the worst part. Absolute agony x

@vix_85 Yeah that made me feel better to knowing lose anything 🫶🏻 Yeah its sore 😢 have they given you an ibuprofen pessary? If not ask for one I felt that took the edge off the pain xx

Knowing I wouldn’t lose anything sorry @vix_85

@Unicorn2023 All done. Pessary in place and some oramorph so I'm in a space zone at the moment. Feeling relieved its done though. The consultant was so lovely, he is sorting my referral so no GP needed. There are some amazing people out there ❤️ x

@vix_85 Aww so glad that’s it done and you are ok ♥️ The staff were amazing with me too it really put me at ease. Try and get a wee sleep while your still out of it because it’s the best sleep you will have your whole life 🤗 take it easy and let me know when you get home and make sure you rest ♥️ xxx

@vix_85 great news about the referral they helped me so much at the hospital I just wish we could for there in future with anything because they actually listen xx

Sorry I added this to the wrong thread. Sincere apologies

@Unicorn2023 all back home and settled. Thanks so much for being so kind and supportive today ❤️ let's definitely keep in touch on the next steps of our journey xx

@vix_85 good I’m glad you are home make a wee bed on the couch and just watch a wee box set and make sure u relax 🙏🏻 hope you have someone to run after you ♥️ You are more than welcome 🤗 I would love to keep in touch it’s nice to talk to someone who understands obviously wish we weren’t in this situation but at least we have each other 🫶🏻♥️ xx

I'm so sorry @vix_85 ♥️

I just wanted to offer some hope, I had 13 miscarriages from 21 to 29 and I'm now 36 weeks pregnant.

Multiple D&C's and 4 of the babies tested but nothing out of the ordinary on genetics.

They could not find a reason for it but I took 150mg aspirin and progesterone suppositories for 16 weeks with this pregnancy and (touch wood) she's growing perfectly and looks healthy on the scans.

I know it's so hard to not give up hope when you're in the depths of grief and wondering why this is happening to you and your partner.

Just wanted to say you're not alone and offer some hope. Sending big hugs xx