Immune/NK cells - pred thread 28

[myrainbowjourney]

Hi Ladies

New thread 🥰

If you comment to hold your place. I'll try and tag as many as I can xxx

@VenusStarr thanks so much for all the info. I've never had karotyping done. Although I have felt for a long time that there is something going on from a chromosome perspective as I've never got beyond 6 weeks with my current partner & this will be the 6th loss in 2 years...I got beyond 12 weeks with my ex husband. I'd be really interested to have it done, but if it shows one of us are carriers, is it basically the end of the road? I'm under an NHS recurrent clinic but they are horrific & I'd be really reluctant to have it through them. Do you know if you can have it privately? I hope you're doing ok btw ❤️ you've really been through it these last few months too.

Thanks so much to everyone here for all the support. I would be a million times worse without you all that completely understand how I'm feeling right now.

@Daffodil21 I'm genuinely so pleased you have made it to term. Thanks for your kind words. However, I doubt it's the Cyclogest (even though I am using it, since ovulation) as I've been inserting the pessaries through the 'back door'. Sorry, way tmi. But I just didn't want to risk damaging anything.

@Luckyducky2 sending you lots of love and really hoping it'll be ok for you ❤️

@VenusStarr that's a good shout, I'll defo see how things are in the morning and if I'm still bleeding I'll give them a call. It's what we are paying them for after all! BTW about that karyotyping I'm wondering if we have something like that, weve had 6 miscarriages and my husband has had 2 with his previous partner.....does make me think my wee boy was just an absolute miracle that he got here safely?!

@Tumby I'm thinking of you too 😘 there's a strange comfort in knowing you're not alone in going through all this. I hope you manage to get some sleep tonight and let us know how you are tomorrow xxx

God I'm actually scared to fall asleep tonight incase it's all over. This is just the worst 😔 but need to get my big girl pants on and just deal with it, been here before many many times and we've just got to get on with it urgh life is crappy isn't it! Xxx

@Tumby no such thing as tmi on here. Unfortunately I think bleeding from cyclogest only happens if it's through the front door. I can't answer your question to Venus fully, but I was worried that was our issue so did a little research a while ago. I think you can get embryos genetically screened before transfer to check for abnormalities. I have no idea if this is available on the NHS, but I don't think it means it the end of the road.

(Someone please correct me if I'm wrong though)

@Tumby you can get karyotyping done privately, I think it's quite pricey though, about £700 each. If they do find an issue there is nhs funding for ivf with pgd testing that can test the embryos. Or you could do ivf privately and do pgt-a testing (I don't know if it's exactly the same as the nhs tests) but they take a few cells out of an embryo to see if there's any abnormalities. Not an easy path but not the end of the road ❤️

I hope you get some rest tonight and you @Luckyducky2 I'm sorry you're both going through such a tough time and I'm crossing everything that you both get positive news xx

I've not been great, hence not posting much. But I had an appointment at crp yesterday and been given the go ahead to do the Endometrio tests, so hoping af turns up tomorrow as expected and I start progynova on day 2 and a scan next week. Still a way from a transfer but feeling good that I can do these tests and hopefully get some answers.

Thanks @Daffodil21 - I'll take a look into it

@VenusStarr fingers crossed for your tests and for af arriving tomorrow. It can be exceptionally draining to continue on this journey, but I'm really hoping you'll get there. Feel free to rant and rave on here. I'm so scared re the chromosome stuff, but I appreciate you sharing the info. Just feels even more heartbreaking as after the last miscarriage in Jan, we thought we had a clear path forward, but nothing is any different.

I feel you @Luckyducky2 on the scared to go to sleep thing. I'm just laid in a blanket watching impractical jokers! I know what you mean too re a comfort in someone else going through this. Let us know how you're doing tomorrow. Keeping everything crossed xxx

@Tumby and @Luckyducky2 I'm so sorry to read this morning that you're both bleeding. We can all sympathise with the awful dread and panic that brings. I really hope it's not what you fear in both cases. How are you both today? x

Morning all,

My head is totally f*cked. Been awake all night. The bleeding stopped around 7pm and haven't had any through the night other than slight brown blood when I wipe. Did a FRER after the initial bleed and the test line is also a lot darker than the control line. Haven't had any cramps either (other than mild ones I've had throughout). We did all our grieving yesterday but now there's a part of me that thinks could this actually be ok?!!!! But now could it possibly be after a red bleed...I just want an off button, my anxiety is through the roof. Guess I'll only know through having a scan.

How're you doing @Luckyducky2. Been thinking of you.

Hope everyone else is doing ok. @treesall @VenusStarr @ginandoreos @CherryO88 @Badlydrawngirly @myrainbowjourney @Daffodil and anyone else I've missed xxx

@Tumby honestly I know it's hard to believe but it can be ok after a red bleed! I had the same thoughts but in the back of mind was that the red bleed was different to my other mcs so maybe it could be ok - and it was. It's such a nerve wracking time! When is your next scan? X

Hey @Tumby. Thanks for checking in 🥰

Firstly, so sorry to read what you are going through. I know it's impossible not to think the worst but a friend of mine had a really heavy bleed and her little girl is running about now. There's every chance everything is still absolutely fine.
Make sure you get yourself booked in for some reassurance as soon as you can.

@Luckyducky2 also so sorry to hear you are going through a worrying time. Brown blood isn't usually a big warning sign. Whenever I've called EPU with any bleeding, especially brown, they are so unphased. Keep positive. How are you doing today?

A quick update from me. I've had a funny few weeks. Impatiently waiting for my appointment with Dr S which is a week tomorrow. Was starting to wonder if we should delay it and keep trying to see if it'll happen without spending loads of money. As I said the ectopic threw me and made me wonder if we have had enough miscarriages for it to be considered an issue (what a thing to even be saying!!). First cycle after ectopic and we weren't trying, because of course you can't be pregnant, and I got a bfp! My nhs consultants started me on progesterone and clexane injections straight away......then I had a chemical.
I felt like it was a sign either way - either a sign we don't have to spend loads of money, or a sign that we do. And I think it's clear that we do.

So, just a week to go until I see Dr S. Still so worried what we are getting ourselves in for. But can't risk losing another without having tried everything xxx

@Tumby I think that's a good sign the bleeding has stopped. I have everything crossed for you that it turns out to be nothing.

Hi @Tumby @myrainbowjourney @treesall @Daffodil21 @VenusStarr @ginandoreos (sorry hope I haven't missed anyone!), wee update for me....so had a terrible evening of really bad low down cramps, but no more bleeding. I've woke up today and it's just very light brown spotting and Ive felt absolutely exhausted in the heat up here but just trying to take it easy and drink loads of water. My boobs don't feel very sore either now though they're still quite heavy. It's a strange one....nothing like any of my last pregnancies..... I'm gonna hope as you've all said that brown spotting is okay? 🤞🤞🤞 We are down to Epsom Tuesday morning for intralipids and my scan is booked in for 2 weeks time so I guess it's just a waiting game now to see what's going on.

@tumby I'm so pleased you're bleeding has stopped, praying everything is okay for you 🙏 I hope you managed to get a little sleep? Thinking of you too.

Hope everyone else is doing okay today 😘 xxx

I'm glad the bleeding has stopped @Tumby I can imagine your emotions are all over the place. It's possible you have a hematoma? When is your scan booked for? Hopefully the clinic can reassure you tomorrow too ❤️

@Luckyducky2 I'm glad you're bleeding has eased too. The cramps sound scary but I hope it's your baby getting comfy ❤️

My period arrived this morning, quite a painful one but I'm pleased it's here and I can move onto my testing, start progynova tomorrow and scan first thing on Friday.

I hope every one is OK x

Thanks all 💕💕 my first scan isn't booked until 5th August with CRP but I'm going to see if I can get one in the EPU as I'd just rather know!! We're supposed to be going camping to Cornwall on Thursday and I have a huge fear things will just get worse but don't want to cancel it!

@Luckyducky2 I'm so glad the bleeding has stopped and I'm hoping and praying for you that it is just some stretching! I got a couple of hours sleep but not much. Gosh, I can't even remember what life was like before all this panic and anxiety!! I hope you slept ok and are feeling a little better today.

I have brown spotting still whenever I wipe and just quire strange pressure sensations whenever I stand. Ugh, I'd just like to hibernate until all this is over!!

Xxxx

Hopefully your little holiday will be a nice distraction @Tumby and help the time pass before your scan? I am definitely finding things easier when I'm really busy and have less time to think about everything.

@Luckyducky2 I have everything crossed for you. That sounds all quite positive.

I told my husband I was thinking of booking a private scan or asking the EPU for a scan this week (they said they will always offer me an early scan if I'd like following the mcs) so that i don't have to wait so long for the next crp one. he went a bit mad at me and said I need to just stick with Dr S' instructions and not do anything else. He's worried about what will happen if I get bad news anywhere else I think.

I keep flipping between feeling positive that we saw a baby the right size and a hb, and then feeling totally dejected that it's still likely to fail after the slow hb thing. However; I've googled it (a lot) with mixed results and have just decided I'm going to TRY and be positive. He did say the size is more of an indicator than the hb at this early stage so I'm just going to try abs trust that this little one is doing it's best to hold on. I would pay an awful lot of money to be able to sleep through the next two weeks though. Sometimes it feels like my chest will burst with the anxiety!

I hope everyone else is doing ok xx

Good morning lovely ladies. I just wanted to post to say I hope you are all doing okay, there are so many of us just 'hanging in there' and waiting on scans, results, appointments or 'whatever happens next'. Sending love to you all. 💪🏼

I have been barely able to manage the anxiety of waiting but at least I'll know either way by tomorrow evening. I've done too much googling of the stupid haematoma and I just feel petrified now!

We had a difficult weekend as a family member is currently v unwell in hospital. I'm trying to make sure I'm not being selfish by focusing too much on my own situation. Anyway - just a quick message to say to all - including myself! - hang in there xxxxxxxx

Good morning all, I’m thinking about you and crossing my fingers for each and every one of you.
@tumby @Luckyducky2 How are you feeling today? Xxx

Morning ❤️

The bleeding has stopped but still have weird pressure like sensation in the lower abdomen and zero symptoms other than being exhausted and moody. But think that's just me in general, pregnant or not! The clinic said there's no point scanning me as they probably wouldn't see anything this early on anyway, which is fair enough. But just said to rest, stop the aspirin and go to the EPU if it gets worse. I can't remember what I felt like before I felt this anxious!! Just seems to have overtaken my life. Feel so disconnected from my other half too and not being intimate for fear of damaging something doesn't help either! I think I may get some therapy as just become a neurotic mess!!

Thanks for the thoughts, @HollyLucky, how're you doing?

@ginandoreos please don't feel like you're being selfish. It is all consuming and it's totally understandable to need to focus on you. I do hope your family member recovers quickly though. All I would say re the internet is that there is a lot of misinformation out there and if you can, do try to limit it day by day. It's super hard, I know but I've found that not looking really does help with reducing the anxiety as it can just fuel it. More often than not, people only post the horror stories on there rather than the good news one. I have so much hope that everything will work out for you. What have the professionals said about it?

@Luckyducky2 good luck with your intralipids tomorrow. Hopefully that will calm things down a bit both physically and mentally (if that makes sense - I know whenever I feel like I'm 'doing something', I feel I have more control). How's it all going today?

Hope you're ok @VenusStarr

Roll on your appointment with Dr S, @myrainbowjourney, I hope he can provide you with a pathway

Xxx

@Tumby don't feel bad about not being intimate with your partner. I haven't at all through this whole pregnancy because I'm too terrified too.

Having a bit of a wobble today knowing that things can still go wrong. Section 2 weeks ago today and I just can't fathom actually bringing a baby home, even though the house is full of baby stuff it feels like we're just going through the motions.

Thinking of you all in the early stages, it really is so so tough and as you say, all consuming ❤️

Xxx

And of course thinking of those still trying ❤️

Sorry, probably insensitive for me to post about late afternoon worries!!!!

Hey girls, I managed to get in for an hcg blood test at lunchtime at my ivf clinic and it's not good news....it was 254 on Thursday and its only risen to 480 (it should be around 1000 by now). With my symptoms it's possible it is ectopic but almost certainly this is going nowhere good. I've just cancelled my intralipids, I don't see any point in going down for them and paying best part of £1k for that and flights, taxis, medication....really whats the point? I've to go back for another blood test on Wednesday and we'll know more by then.

So this will be 7 miscarriages....7! Wtaf?! I think I'm maybe gonna need to come to terms with the fact this just isn't meant to be. We have only 1 embryo left out of 5. I just can't believe this. Well actually I can, 4 years of this, 4 years of miserably desperately trying to have what comes so easily to everyone else and it always goes wrong. What the hell is wrong with me? 😭😭😭

I'll probably have a nice big bill from Dr Shehata for cancelling within 24 hrs to put a wee cherry on my rotten day 😔 we cannot keep forking out for this treatment, its crippling us, I think this will be it for us xxx

@Luckyducky2 I'm so sorry to hear that, I really really am. My thoughts are with you and your partner during this incredibly tough time. This group will always be here for you.

I really hope Dr. S doesn't charge you for the intralipids. I wonder if one of the ladies here could use the appointment instead of you?

Xxx

Oh @Luckyducky2 I'm so so sorry. That's devastating news. I would like to think that he won't charge you for your intralipids. That would be outrageous. It's a very different situation than just changing your mind at the last minute. They said I need intralipids and a scan on the same day next time but said they'd scan first so that I don't have the infusion of the pregnancy has failed so I'm sure they won't charge you.

Was this your first pregnancy under dr S? Sending you lots of love.

@Luckyducky2 I'm so so sorry to read this. That's absolutely heartbreaking. Thinking of you xx

@luckyducky I'm so so sorry, my heart breaks for you. It's just so unfair, and so hard to keep having to pick yourself up each time. Sending all my love to you and your partner. 😞 xxx

@Luckyducky2 My heart breaks to read this, it’s just not fair. Sending you lots of love, you are not alone, we are all here xxx