Immune/NK cells - pred thread 28

[myrainbowjourney]

Hi Ladies

New thread 🥰

If you comment to hold your place. I'll try and tag as many as I can xxx

Happy Monday everyone

@VenusStarr glad your scan went well love. Haha that breakfast sounds amazing. I'm sorry about the flashbacks. It's honestly such a traumatic thing to keep going through but we keep trying because we want this so much!
You're right, it's hard to know what to do and if we're doing enough. I'm leaning towards not pursuing it. Think I just had a wobble last week. Xx

@Wired76 congratulations! Wonderful news xx

@treesall please try not to worry about the lack of sickness, I have read so much that the drugs mask your symptoms. My friend who was on pred for her first (ivf) pregnancy said she had almost no symptoms and was constantly terrified. She's just found out her most recent transfer has taken and is going through the same thing. I know how terrifying it is and I'm really thinking of you but try and hold onto that growth and that little heartbeat you saw 🥰

@ginandoreos thank you so much xx

Thanks @Lozfish. Sadly I'm not on pred and I don't think hydroxy masks symptoms at all but I know what will be will be and I can't stress about it. It's just those last few days before a scan are so horrible, and I just feel like this has gone the same way as the others. Nevermind! How are you?

@treesall oh shoot sorry, that was not a helpful message then. I have so many things crossed for you. When is your scan?

I'm ok! We have started our first 'trying' cycle now that my last miscarriage is officially cleared up, I'm off for intralipids tomorrow. Feeling like I'm really not ready to be pregnant and go through it all again yet, but I don't think I'll ever be. Did you find that it took you longer to conceive on the hydroxy? Or about the same as before? Trying to manage my husband's expectations as we have conceived quickly in our other pregnancies!

@Lozfish that's good that you have your intralipids tomorrow. We are very fortunate in that we conceive most cycles we try and it was the same on hydroxy, I got pregnant first time again. Sadly, that's a bit useless if it won't bloody stick! I hope you fall quickly too 🤞 xx

Hi @Lozfish I'm at the clinic today! But I'm here already... Waiting for Dr Jan. Been up since 4am for the drive down 😴 hoping my biopsy next week is slightly later! 🤞 My scan is all good today and I can start progesterone tomorrow.

I'm sorry you're anxious @treesall I've got everything crossed that this is the one. I can imagine you're just holding your breath right now, big hugs ❤️

Hope you're holding up OK @Luckyducky2

Thank you @Danni8 it's definitely a roller-coaster of emotions and thoughts, you're constantly second guessing yourself.

Thank you @ginandoreos :)

All good with my lining, 8mm so the biopsy is planned for Monday. They're checking my progesterone levels today but my ovaries were still quiet so expecting it to be low. Just about to have my intralipids and then I'll start progesterone tomorrow. One more hurdle cleared. Definitely going to rest my eyes while having the intralipids 😂

Great news @VenusStarr! Sorry you had such an early start though! 4am is a bit offensive! Where do you travel from? Glad things are al looking positive for you xx

It really is @treesall! And I'm wide awake now, trying to rest while I'm on the intralipid but it's not happening... I travel from Birmingham and its typical today the M5 was closed so had to divert to the M40. Hoping the journey home is straight forward, last week it took nearly 4 hours 😭

@VenusStarr what's the biopsy for? Also wow travelling from bham is no small feat!

@treesall sending positive vibes your way lovely.

@Danni8 I'm doing the Endometrio tests, so looking at receptivity for an embryo transfer and it also looks for infection or inflammation in the uterus lining. My last loss after my ivf cycle I had lots of heavy bleeding 7 days after transfer and then tested positive for a week, so want to ruke any of this out before we do another transfer. We only have 2 frozen embryos so want to give them the best chance xx

@VenusStarr oh you will be shattered after your 4am start, hope all goes well with this mock cycle!

@Wired76 congratulations on your little one arriving safely, it really does give us all hope!

Well I had another blood test yesterday and hcg is now up to 4500 so this little one is definitely trying in there. The nurse said she thought it could have been a bit higher but apparently the doctor told her it was in range? I still have this spotting though which is concerning but no more blood tests this week (which I'm quite glad about as waiting all day for the phonecall is making me stressed out!), just the scan on Friday which I feel absolutely sick to my stomach about! I have the worst scanxiety from my previous miscarriages/ectopic and I literally have been biting my husbands head off every day I'm just so on edge with the whole thing! 🙈 But a bit like you @treesall I'm just trying to tell myself, what will be will be, I can't change the outcome and taking everything I can medicine-wise so will just have to try and stay busy and keep my mind off it as much as I can (I find this is easier during the day but at night I'm lying in bed and can't switch my brain off). Anyway enough of my ramblings, I hope you're all doing okay! 😘 xxx

@VenusStarr hope your intralipids went well, I'm just about to come in for mine, just having a delicious coffee and brunch in the café next door. I may see you in there if you're still there, I'm wearing a stripey top and white shorts.

@Luckyducky2 that's fantastic news, I'm so pleased for you that your levels are continuing to rise, it's sounding positive.

Hoping everyone else is well! x

Hello. I've come across this thread as @VenusStarr very kindly pointed me in its direction (thank you!). I hope you guys don't mind me joining in.

I'm going to visit Dr S for the first time this week and feeling pretty nervous.

My story: I had a miscarriage at 6 weeks at the end of last year, a chemical pregnancy following that, then I had a problem pregnancy where the sac didn't grow but the baby was, when the baby reached the same size as the sac sadly it died and and then I had a missed miscarriage. I had 3 weeks of going back and forth to EPU as they kept scanning to see how it was progressing. The baby was measuring just over 7 weeks when it died. I found out at a scan at 8weeks and it eventually passed at 10weeks. I allowed it to happen naturally as I was scared of scaring from the medical procedure...

My first period since then has just started and didn't TTC because the clinic said they can't do tests if you're already pregnant.

I'm feeling a bit anxious about what to expect at my first appointment... will they do tests on me today?

I hope you don't mind me joining in this thread but I feel so lonely and isolated in this journey. I've barely spoken to anyone about it, as I don't know what to say or how they will react. I find myself wishing for my life back as it was before I started TTC. I've also put on two stone since my first miscarriage as I've just poured all my emotions into food. Not a healthy way to deal with it... so definitely need to work on that too 😂

It's so nice to read that some people have had Dr S's treatments and gone on to have healthy pregnancies ☺️

Congratulations to all the people who are currently pregnant. I have all my fingers and toes crossed for you! I know the agonising wait well. It's awful, but the outcome at the end will be so worth it!

Hey @SunDance21

Sorry to hear about what you've been through. It's such a tough journey, you will get lots of support here.

I thought I would reply as I had my first appointment on Monday. Dr S was really lovely and reassuring. My anxiety over cost etc was much less afterwards as I just felt like we were going to be looked after and that's what I needed to feel.

I had my tests done on the same day, but the ladies came and explained what tests he wanted along with the cost, and gave me the option to go and think about it if I wanted to. I knew I'd have them anyway so I just paid and had the blood tests straight away.

Dr S wants me to have a hyfosy because I've had a tube removed from an ectopic, and that's going to be the same day as my follow up so not everything is same day, but all blood tests can be for sure. Plus, you won't need that I'm sure.

Try not to worry about the appointment. I was unsure whether we were doing the right thing but I am feeling a little more optimistic now.
He has time for questions, which I hadn't prepared for, and most of mine were irrelevant until I know my diagnosis, but maybe just have a think beforehand so you don't leave wishing you'd asked stuff.

Good luck 🥰🥰 xx

Thanks @Lozfish, not gonna lie I'm going a little stir crazy with this waiting, I just wish Friday's scan would hurry up and I can get an answer either way!

@SunDance21 welcome to the group, I'm so sorry for your losses and just know you're not alone anymore. I know how isolating this all can be, I've gone through 6 miscarriages/mmcs/ectopic over the past 4 years and I have really closed myself off to a lot of people who I considered friends....after trying to talk about it and getting unhelpful/hurtful responses I just stopped talking about it to anyone other than my mum (and even she drives me mad sometimes as she has no idea why I'm so nervous about scans etc!).

On my first appointment with Dr S they discuss your medical history, any family medical problems, loads of blood tests and an internal scan (only because I mentioned both my sisters have polycystic ovaries) and I then got an eye-watering bill and an appointment to come back for the blood test results. I found Dr S super positive and confident but he can be a little curt at times. Personally I don't care what mood he's in as long as he can help me keep a pregnancy!! 🤣

I hope that helps a little! Best of luck today xxx

@SunDance21 welcome to the group. So sorry to hear of everything you've been through. I know how it feels to have to keep going back and forth to the EPU and how rushed it sometimes feels. I think I have PTSD from that place honestly! One thing that I think is good about Dr. S is that you won't have to revisit the EPU, all your scans in future pregnancies will be with him and even though I am only on my first cycle with him, I already feel so much better for knowing how managed it all is. Wishing you all the luck in your journey, keep us updated.

Does anyone else suffer from back ache after intralipids? It woke me up in the night!

Also has anyone found they are breakthrough bleeding after having the Covid jab? The nurse yesterday mentioned that's why I might be having mid cycle bleeding and i remembered it from my first jab. I'm hoping it won't affect my chances this cycle but I'm guessing it might.

Hey girls, sad news for me today, I unexpectedly miscarried this afternoon when I went to my mums for a cup of tea. I am absolutely gutted but honestly I've had brown spotting for 2 weeks so knew something wasn't right. If anyone tells me again that brown is old blood and okay I will never believe them!! I'm booked in for a scan at 10am tomorrow, I guess just to confirm it's all gone, but yeah I'm devastated as we were 6 weeks today and the furthest I've got for a while. I can only think this is my age that's affecting the embryos now as I'm on every drug possible to save them? I've actually managed to catch it I think so i hope they will be able to do some tests on it. Its all so sad. But I just wanted to update you guys and say thanks for all your support. Best of luck everyone xxx

Oh @Luckyducky2 I'm so sorry. I also had a lot of brown spotting with my last miscarriage and got told so many times not to worry about brown blood but every time I saw it I wanted to cry. Thinking of you - let us know how the scan goes xxx

Oh @Luckyducky2 I'm so, so very sorry. My heart breaks for you. It's just so horrible and so so sad. Please look after yourself. Sending so much love and thinking of you xxx

@Luckyducky2 I am so very sorry to read this. Thinking of you. This is totally and utterly shit and I can't find the words to say zzz

So so sorry @Luckyducky2, this news really sucks. Sending you so much love. Look after yourself ❤️❤️ xxx

Thanks everyone, God you've got me in tears again, I just know you all understand what it's like, that little bit of hope and then it's gone! 😭 I tried not to let myself have those little dreams and what ifs, dreaming about decorating the nursery and names....stupid really, I should know by now!! 😭 I think we're going to just book a holiday to Ibiza or something crazy and get away for a break....I've been so so careful for 18 months with covid and doing ivf over and over but I just feel like I want to live my life now! We have 1 embryo left in the freezer, I would need to have a break for a while.....I'm even thinking about using donor eggs or adoption, it's a lot to consider but I don't want this to be the end? I can't let this be the end, it's been 4 years and 7 miscarriages and I just can't have this be the way it all finishes? I'll be interested to hear what Dr S has to say....I think it may be my age and egg quality now? My head is spinning guys, sorry if I'm rambling and I hope you're all doing okay 😘 xxx

@Luckyducky2 I’m so so sorry my lovely, this is incredibly hard and we all know exactly what you are going through a little too well. A holiday to Ibiza is definitely a good idea, you’ve earned it. I agree with you regarding what they tell you about brown blood, every time I’ve had it it was bad news too.
Apologies if I may be asking a silly question, but I’m not too familiar with that part of the process: when you froze the embryos, did they test the embryos first for chromosome abnormalities before choosing which ones to freeze? I imagine DNA testing on the embryos prior to freezing would have been yet another massive cost perhaps.. Sending you lots of hugs and thinking about you xx

Oh @Luckyducky2 this is terrible news. I'm so so so sorry, I'm really devastated for you. I think it's worse having it happen on treatment because it feels like you have hope and then it's stolen away. I hope Dr S has some ideas and a way forward for you when you're ready, and you are absolutely right that it doesn't have to be the end of the road by any stretch. I think you definitely deserve a break away, and a chance to let loose a bit if that's what you fancy. Im so sorry. Sending hugs your way xx