Immune/NK cells - pred thread 28

[myrainbowjourney]

Hi Ladies

New thread 🥰

If you comment to hold your place. I'll try and tag as many as I can xxx

@Luckyducky2 I am so so sorry to hear this. If I could give you a huge hug I absolutely would. It definitely doesn't have to be the end. There are still options, like you've mentioned.

Talk to Dr S and see what he says is the best way forward for you. ❤️ and definitely take that break. What you're going through takes a huge emotional toll, and you need to make sure you make time for you.

Again I'm so sorry for what you're going through x

Hello ladies. I'm new to this thread and at the start of my journey with Dr S. (delighted to find the thread, one big positive of not being able to sleep at 3am).

I am so sorry to read about the recent losses, it's so devastating and nothing anyone can say makes it feel better. Sending lots of love and hugs.

I've had 2 mc needing erpcs in the last year and been told I need Hysteroscopy next as looks like there is scarring from erpcs (can't catch a break). Plus been given meds for high antibodies.

@VenusStarr it looks like we were both in with Dr Jan on the morning of the 30th! My apt was 9.45.

Anyways, really hope to feel some positivity following this thread as I've been feeling so isolated recently, with friends having babies left, right and centre. Thank you for sharing your experiences and knowledge and wishing you all the very best of luck x

Morning @89Hope welcome to the thread. I've had a few hysteroscopy's recently due to retained product and then scarring - Dr. Jan is brilliant. I totally know what you mean by not being able to catch a break, I couldn't believe it when he told me I'd need a fourth procedure. How bad is your scarring? I finally got the all clear last Thursday after he got in and cleared me out, finally on the road to trying again after what feels like the longest miscarriage ever. My main advice - go under general! I had two under general and one with nothing. X

Welcome @89Hope. Im sorry that you find yourself here, but you're in good company and this thread is amazing support.

I am feeling terrified this morning. I really don't want to go to my scan tomorrow, I don't want the awkward "I can't see a hb, I'm really sorry" comments, i don't want to see my husband's disappointed face, I just can't face it all over again!! I kinda want to just carry on in ignorant bliss where I am fairly sure the baby has gone but I do at least have a glimmer of hope that it hasnt! I'm petrified it's going to mean a 3rd MVA in 12 months, and I'm petrified of the damage a 3rd one will do. I know I'm being pathetic and I need to just man up but I literally just want to go to bed and stay there and ignore everything! If I didn't have to work thats exactly what I would be doing I think. How do you all seem to stay so calm? I feel like I'm losing the plot! Arghhhhhhhhhhhhhhhh!!

@treesall I really hope you're wrong and that everything is absolutely fine. I've got everything crossed for you.

Regarding an MVA, I was presented with it as the most common option people take, but was free to make the decision to wait. Is this something you'd consider?

There is absolutely no right or wrong, but just thought I'd ask the question.

Thank you so much to everyone for welcoming me so kindly into this group. I read your messages before I went to the clinic and they made me cry to finally feel less alone...

It took an hour to get the bloods from me, and the cost definitely hurt! Hopefully it will be worth it 😂

I've read in interviews he says he's 80% successful. Does anyone know what this statistic means?

I cried in his office... I realised just how unhappy all of this has made me. My first pregnancy was "unplanned" and I found out on my honeymoon last September. It feels like my innocence around pregnancy has been stolen, but also my honeymoon period in my marriage with my husband. We've just got this massive dark shadow over us and no where to turn.

I also don't want to get my hopes up that this will work... I feel like I can't be optimistic about anything anymore. I just want to shut down and not feel anything for a while.... like a bear going into hibernation.

Morning ladies.

@treesall I have been thinking of you lots and how you are probably feeling with getting to tomorrow. I have everything crossed for you that this is your time ❤️❤️❤️.

I am having those awful feelings today too. I just feel totally normal, no sickness, no hint of a bump (just flab!), a bit tired. How can anything actually be going on inside me?? It all feels like it's gone wrong again and I hate how this is just a time of absolute worry, fear and sadness, when for others it is a happy time. One week til the next scan.

Apologies for being so negative especially when everybody has all sorts of struggles going on right now.

Sending love to all xxx

@VenusStarr it was a scan to check the lining as it had been thin previously and during it he said there looked to be some scarring but it wasn't definite but they are recommending this procedure as next step as I've also been having v light periods since last procedure in Apr.

Thanks for your message @treesall, really helps to hear from people going through the same eemotions. Is there a difference between mva and erpc?

I know what you mean about 'manning up', I've been wallowing in depression/self pity for a while and really don't want more surgery after the last 8 months but trying to tell myself to pull on my big girl pants, grit my teeth and give myself the best chance possible for the next time trying. (oh, and at the same time pretend I have amnesia when I see the 3k cost for the procedure! 😂).

Got my fingers and toes crossed for you xx

@SunDance21 yes I probably would try waiting for a while. With my first mc I waited for a few weeks and nothing happened, then had the medical management which caused the sac to pass but none of the other tissue. When I was scanned they said there was huge blood flow all around my uterus and no sign my body was going to start passing things naturally. I eventually caved and had an MVA when they started to encourage me to consider it, but the whole process just dragged on for weeks. Last time I had the MVA a couple of weeks after the mc was discovered. I'm not in a rush to have another one but equally I don't want to feel unwell when not even pregnant or let it drag on for weeks either. I was a bit frustrated that my scan is with Dr Jan again tomorrow and not Shehata but I guess Jan is probably the best person to talk to about potential damage etc from a 3rd MVA.

@SunDance21 he quoted the 80% to me in my appointment. I took it to mean 80% of couples will eventually get a baby? I didn't actually ask though.

@ginandoreos I'm sorry you're feeling worried too. It's so unfair that this early pregnancy period is just total trauma for anyone who has had losses. It genuinely feels like torture.

@89Hope I believe an MVA is the same as an ERPC except with local rather than general anaesthetic.

@treesall that's awful, I'm so sorry you've been through that. No one ever mentions how traumatic this can all be. I've obviously never met the surgeon, but I would imagine he is more knowledgeable on all this then Dr S as it's his bread and butter as it were.

Yeah, that's what I've taken it to mean too, but does that mean after 10 tries...? It seems a bit of an unsubstantiated statistic. Then again the chances of having 3 miscarriages in a row are less than 1% yet here we all are so I should probably just let go of the statistics now...

@ginandoreos never feel bad for complaining. We're all the lead roles in our own stories. I really hope you carry on getting positive news and are able to relax and enjoy your pregnancy soon x

Girls you wont believe this.....so my scan this morning has confirmed I'm clearly miscarrying one embryo. However it also looked like there is another gestational sac with a fetal pole still in there which is measuring right for my dates. They couldn't see a heartbeat but said it might be too early to see that and this one may still go aswell. But I've to continue with all my medication in the meantime and go back for another scan next week. What The Hell?! 🤯🤯🤯 my head is scrambled.....we were just about to book a holiday abroad and now here we go again with this little bit of hope....aaaaah! Xxx

@Luckyducky2 ahh what an absolute head fuck!!!!! Wow!!!! Wishing you all the best!!!

@Lozfish thanks for the advice! Wasn't sure what to go for but from your recommendation and what's I've read online, will definitely go for ga.
How long did it take you to get the appointment? I've just started my period so chased but not heard back so assume I might now need to wait till next month :-(

Re scarring question, it was a scan to check the lining as it had been thin previously and during it he said there looked to be some scarring but it wasn't definite but they are recommending this procedure as next step as I've also been having v light periods since last erpc in Apr.

So stressful and scary reading the risks include MORE damage possibly be done.

Wishing you so much luck @Luckyducky2 x

@89Hope I had my first appointment about 10 days after I booked, then I had to wait 5-6 weeks to check for scarring. Then when he found scarring I managed to persuade them to let me have an appointment only a week later as I didn't want to miss another cycle. His secretary is lovely and usually quite prompt - she's probably just waiting for availability from the hospitals.

@Luckyducky2 do you know what, last night I was wondering to myself whether you could be carrying twins but I didn't want to say it as I know false hope from other people can be really annoying. It does appear to be quite common that you'd miscarry one embryo, there was a lady on this thread a while back who had gone through the same thing. Im delighted for you that you still have some hope!

Ladies I need help with my ovulation - I'm on CD11 and still no flashing smiley, in fact the lines seem to be getting lighter - normally I get 6 days of flashing and then I ov on Day 12/13. I'm having a lot of spotting and my boobs are very tender end my teeth are sensitive which are all signs I'm in my luteal phase... could I have already ovulated? I'm so confused about what to do with the progesterone! I'm so worried we might have conceived from an early ovulation but now I'm not taking cyclogest. Feel like my Covid jab has messed things up? I had it last Monday and my period started on Tuesday. Help!

@Luckyducky2 What?? Twins ?? Your post just made my day, what a turn of events !

@Luckyducky2 my goodness, bless you, what an absolute rollercoaster you are on. I have EVERYTHING crossed that the little embryo will keep going and this will all work out 🤞🏼🤞🏼🤞🏼❤️❤️❤️. You must be so shattered with all of these ups and downs xxxxxxx

@Luckyducky2 no way!!! This is fantastic. I have absolutely everything crossed for you! How many weeks are you? Eeeeeee cling on in there little bean!!

Hi all,

Sorry actually just managed to catch up on all your messages from earlier...funny how it was quiet on here for so long and now it seems to be going every which way for us all?! I'm still reeling from earlier, I cant let myself get excited but have to say I feel a bit guilty as we ordered a takeaway last night and I had a couple of large glasses of wine to cheer me up, I had no idea this was possible!!? We did put 2 embryos in but I didn't know you could miscarry one by bleeding, I thought they were just absorbed into the body (vanishing twins?). Who knew 🤷‍♀️ Anyway I've contacted my local EPU and I've to go in tomorrow with what I've managed to catch (sorry gross but if they can test it I just have to get past the gross-ness of it all and try to look at the science-side). I'm going to ask if they could maybe fit me in for a cheeky scan (probably not but no harm in asking) as I didn't feel like the girl was particularly skilled today and the EPU are shit-hot with the scanner. Maybe they can give me a clearer answer if it's looking bad? My boobs aren't as sore anymore so I'm just not feeling very confident but we'll see what the next few days bring.

@treesall I just wanted to wish you the best of luck for tomorrow, I am crossing everything that its good news! 🤞🤞

@SunDance21 i know how you feel about losing the innocence around pregnancy, I sometimes feel so angry and upset that such a magical time is stolen away from us and everyone else seems to have it so easy, I just want to steal it right back! I hope we all get our happy ending, I really do xxx

Hope everyone else is okay and thanks so much for all your lovely messages, it's been a strange old day xxx

Hi ladies. I can't believe it but I still have a baby in there!!! I'm soooo happy. It's still very early so I know it could still go wrong but this is the furthest I've made it so I'm trying to be positive! X

@treesall that's excellent news! Im so happy for you! Were they more happy with the heartbeat this time? 8 weeks and a good scan is a VERY positive sign things are going to be ok

@treesall 🥲🥲🥲🥲🥲🥲❤️❤️❤️❤️❤️ oh goodness I'm sitting her sobbing now! Oh, how wonderful! 😍 I really hope you do something lovely with the rest of your day ❤️. Sorry, over emoji! Just so thrilled for you xxxxxxxxx

@treesall that is amazing news, congrats and now time for you to relax!!

I went to the EPU this morning and they gave me another scan and apparently my miscarriage is complete. No sign of another embryo so I've no idea if I've miscarried that or that girl who did the scan has been mistaken (though I saw it too? 🤷‍♀️). Who knows but it's done anyway and I am actually okay, I don't think I have any tears left in me, I haven't even cried! I'm going to get our holiday booked and just get away for a while. What a couple of weeks it's been xxx

@Luckyducky2 we all know that feeling of not having cried... sometimes you're just so numb and you get so used to the bad news that you don't know what to do with it. Sending lots of love - get on that holiday, enjoy your time with your family and drink lots of wine. My thoughts are with you x

Thank you all.

@Luckyducky2 oh I'm so sorry. This has been such a roller coaster for you. Sending you lots of love, be gentle with yourself this weekend xx