PCOS support thread

[satsoooma]

Welcome to our fourth PCOS support thread. We are a welcoming bunch, all trying to conceive with PCOS, or suspected PCOS.

Here are the links to our old threads:
When To Expect Period - Provera
PCOS, Periods (or lack of!) and a lovely bunch of ladies
PCOS, Periods, Provera, Pals. Plus All The Bits In Between.

Green that looks like my first one from the other day-positive!
Congratulations! Get another one and check again. I have done loads now as I keep thinking it was a mistake!!!

Ps. Just to note I got a BFN on an IC test even though all the others were positives! Shows how cheap and wrong they can be

I've just bought a clear blue digital one but we've got people over in a mo so I think I'll do it tomorrow morning. It's my husbands birthday!

Today would be cd28 so it is super early. Argggh! xx

HI I have PCOS I am used to being late but I have never been late for 17 days. My period was due on the 14th April. I have expirenced symptoms of sore boobs, cramps, tiredness and hunger. I have been having brown discharge when I wipe for 3-4 days. I don't know what's going on, i have done 4 pregnacy test one being this morning but it came up negative straight away.

Hi all,
So many many positives in the last month - it's amazing! Gives hope as it seems like I've been trying forever now. I've been lurking and occasionally posting since the second thread now without even a hint of a bfp now. Honestly I'm never sure if being on this thread makes me feel better or worse! Amy I feel like you need your BFP and then I can be next! I've got my scan tomorrow for 150mg of Clomid, none of the previous rounds have made me ovulate so not holding out much hope to be honest. Just wish I could be in with a chance...

I've got a scan tomorrow. Been stopped for speeding today and have to give a presentation in work. Great

Hi Fluffy, sorry to hear you've had a pants few days, good news about the scan though let us know how you're doing.

How far are you now?

I'm 10 weeks it was a light bleed after I had a poo so I'm hoping its nothing

Ah ok. Did you have an early scan? I was wondering how early they do them as I'm only 5 weeks so will need to wait a bit I think!!

Have you let the fertility clinic know Summer?

I paid for an early scan at 8 weeks and saw a heartbeat so Im hoping that's a good sign and hopefully just the pressure from having a poo has caused spotting. Everyone else ok?

Hello ladies - I'm back again! It's been a stressful couple of months with appointment with IVF consultant and being told that there was no hope for clomid to work and no other options apart from IVF with ICSI due to my PCOS and DH low results on SA.

Today was my second appointment with consultant and wow it was such a fab appointment I had to stop myself from doing a victory dance in the hospital! DHs SA results came back more than perfect and my blood results are much better than previous ones so Dr has now agreed to give clomid which I will start after 10 days of Norethisterone. I know this isn't a BFP but I've waiting 12 months for this prescription and the fact that they are allowing us to try something else before IVF is big news in my eyes.

Not looking forward to clomid side effects - any helpful advice?

Also - huge congrats to those who have got their BFP's! It certainly seems like someone has been sprinkling the baby dust whilst I've been away

That's great news elly bet it feels like a relief to have some other options first. Crazy how DHs SA results came back so different...its just as important for the DHs to be looking after themselves when TTC too it seems. Lots of things probably affect those swimmers

I'm sure everything will be okay fluffy

My nhs appt is through, 22nd May, woop. Trying to find out if I do actually need to see the consultant again though. Either way I'm going to get my Clomid then and also going to ask for provera if AF hasn't arrived so I can get started

Well his first SA result was 5million count, 0% motility and not sure about morphology, this time its 63 million count 48% motility and again not sure with morphology. It's crazy how different the results are....

Hope you manage to get your hands on Clomid too SLady - I wont be able to start taking mine until 14th ish....its just waiting after waiting isnt it!

Hi, i wondered if anyone could help me?

little bit of background I have pcos, bit overweight (working on losing it) and don't ovulate. I have been taking Angus cactus and maca root to see if this helps me ovulate along with having reflexology and some oils made up by a lady qualified in aromatherapy. I have previously used opks and NEVER had any kind of line on them at all but today (cycle day 12) iv had a faintish line come up (first one ever) I'm getting very excited does this mean I am on my way to ovulation??

Hi Ladies,

I haven't been around for a little while because basically I've been in an emotional breakdown situation.

I don't know if you remember but I thought I had a miscarriage after losing a very large blood clot on CD44 when my usual cycle is 31 days. I passed this clot after two hours of severe cramping, anyway a blood test shows it wasn't a pregnancy and the fertility nurse says it must have been just a heavy period. As sad as I would have been at having a MC I was holding out hope at actually being able to conceive naturally, but that hope has now gone and replaced with an emotional breakdown.

I am still waiting for my AMH results to see if I can be considered for egg sharing to fund my IVF journey as we have been told ICIS IVF is our only hope due to PCOS and DH low sperm count. Your news is promising Ellie , can I ask how long between test, the age of DH and did he make any lifestyle changes?

I have had my tracked cycle today and they could see a collapsed area on my left ovary that looked like I may have ovulated yesterday, today is day 15 so it would be early for me so they are re_testing my progesterone on Monday and then hopefully AF (or not if I get a miracle pregnancy) the following Monday. I am.booked in on 22nd May to discuss results and also to follow up on some very unsettling findings today. They were unable to find my right ovary today (the 2nd time this has happened) this can happen on occasion but very rare for it to be recurring so I asked questions as I had a cyst removed from my right ovary in 2014 but I was told the op was very successful and routine and I kept all of my ovary. They pulled up my surgery discharge letter which confirmed this however the clinic notes suggested a ruptured ovary was removed so a conflict in information and I am mortified that I may have lost an ovary and reduced my chances further without being informed by the surgeon. I may have to have a laparoscopy to confirm if I have a right ovary 😢. I'm on emotional overload today. They have booked me in for a counselling session on 17th May as I'm struggling. It's great to come here and vent to fellow understanding peeps, I'm fed up of people trying to put a positive spin on things when they have no clue of what we are going through. Sometimes I just want to let out my negativity with a big cry. I need people to say sorry and offer a cuddle, not unqualified advice!!!

I am turning into a bitter person I do not recognise or like. A lady from work on maternity leave brought her baby into work last week to meet us all and I couldn't bring myself to go over, a cuddle would have set me off again. I messaged her after to explain and thankfully she understood and didn't think I was being a bitch.

Congrats to everyone on the BFP, especially Boggle and summer who have offered advice on my previous posts. Wishing BFPs soon and big hugs to the rest of us struggling. It's shit and puts a strain on our entire world xxx

Ronnie I have an under active Thyroid as well as PCOS. It's shit, I gained 5 stone in 12 months and was constantly cold and exhausted before I was diagnosed. Once my levels were correct and I was on the correct meds I managed to lose 4 stone and return my AF with hard work with my diet but I have put 2 stone on over the past 6 months and my sugar cravings are immense at the moment. I really need to sort my diet out as I am so miserable at the moment

Infertility huge hugs. That is really shocking news about your ovary and not at all ok that they didn't tell you!
I understand how you feel, everything is black and it's just a bleak bleak feeling. However, you won't always feel this way, I promise. Counselling is a huge help and is an opportunity to get all that you feel out without holding back. Look after yourself and remember, this is only a moment in time, better things will come.

Thanks boggle I know things will feel better but I keep telling myself a cry and a vent is good therapy, part of a grieving process.

It isn't OK is it, I'm glad it's not me being over dramatic. My Husband has been commenting recently about early menopause (tongue in cheek) due to my moods, increased sweating and change in cycle length, that would be the last thing I need but apparently it is a side effect of removing an ovary 😢 if I had have known then we would have chosen to go straight for ICSI IVF rather than try a more natural approach after paying for a VR, that money could have been put towards the treatment we may now need if my AMH results are what we have our fingers crossed for. I am so upset, angry, numb etc.... I don't know how I should feel. I just hope that they didn't remove it without telling ne and it is just a a freaky coincidence that they can't find it on the two scans. I am 34, almost 35 and Hubby is 41 so time is against us. I wish I didn't crave a child so much and could be happy with what I have xx

Absolutely cry and grieve. Bottling it up is much much worse and not healthy. Lost count of the times I've cried, even now.
I know it isn't ideal but could you get a loan or put the icsi on an interest free credit card? Do you know the actual cost of what you'd need?

Unfortunately both our ex's left us in a financial mess we are working through slowly, £16k down, £9k to go so we can't get any credit and don't have wealthy parents to help. I believe the cost will be around £6.5 -10k per cycle or between £750-£2.5k if I have available eggs to share to help fund it.

Oh dear infertility sorry to hear you're having such a rubbish time lately. DH didn't make many lifestyle changes to be honest. The nurse gave us a free trial of condensyl which he tried for 3 months and then at the first appointment consultant told him to take vitamin c, e and zinc which he took for a month before the SA test. It was about 4 months between the tests. Hope that helps xx

So had apt with nhs consultant today, review after 5 cycles clomid. He is referring us for ivf and given me 4 months Letrozole for after my last round clomid. It does a similar job. Ivf should start in 4 months all being well with funding

infertility I am so sorry what you are going through. We are all here to listen when you want to vent. Having PCOS is hard enough to cope with without all the added stuff you are going through too. You are in no way over-reacting about your surgery, that is not acceptable at all and I really hope that isn't the case. It's fine to grieve and be upset around babies etc, you're not bitter and you're not a bad person. You're a normal person, with feelings, who is in a cruel situation dealing with it as best you can. Can you talk to your doctor about going abroad for treatment my consultant recommended that as an option people take as it's alot cheaper?
Cry as much as you like and then dust yourself off and keep fighting

Sounds like you've got a clear plan barsons how are you feeling about it? IVF waiting list time isn't too bad at least. Have you tried injectables before or were they not recommended? Did your doctor talk about the drilling at all? Interested to know as mine seemed to really rate the procedure. Id like to know if he'd be up for having holes drilled in his body parts and then get back to me

Sorry to hear what you're going through infertility. My thyroid levels have come back normal so not sure what's causing the symptoms. With you on trying to sort out diet, it's so hard staying on the wagon when whatever you do your body seems to be refusing to cooperate and everything feels pointless.

Had a phone call from my fertility clinic today - I don't need to see the consultant again as an nhs patient and theyve written me a prescription for 2 months worth of clomid and also a prescription for norethisterone to give me the option of inducing my period if I want to. So as soon as I go and pick it up I'm ready to roll. Excited/scared!!!