Immune/Natural Killer Cell treatment for those ttc or pregnant. (AKA the 19th pred thread!)

[Seekingmiracles]

The new thread for anyone ttc or pregnant with immune issues or natural killer issues. Welcome ladies!

Well, to say I had the worst experience in Epsom is an understatement. I went to have my intralipids on Thursday and all was going well. About halfway through the treatment I started to feel a bit weird but I thought I was imagining it. Then it got worse and I started to feel really unwell and dizzy and my heart was pounding like it was going to jump out of my chest. I called Mairead and told her I wasn't feeling well. She stopped the iv straight away. My blood pressure and hear rate went through the roof (prior and during the first half of the treatment it was at 78/80 and at my worst point it jumped to 160). My heart palpitations were coming and going and I felt like I was in a daze and about to pass out. Mairead called Mr S, they hooked me up to a drip to get fluids in me and also did emergency blood test to check if I was having a reaction. They kept me there for about 3h but my heart rate never went back to my normal levels (it kept hovering at 110/120) so Mr S sent me to A&E at Epsom hospital. They ran more tests there and hooked me up to an ECG. All blood tests came back normal (thank god!). The main thing there were worried about was an infection but the test came back negative. I was still feeling woozy but thankfully my heart palpitations had stopped. Mr S was on call at the hospital so he came to check on me a couple of times. They finally released me at 10pm as my heart and blood pressure had stabilised plus there were no free beds at the hospital. It was one of the scariest experiences of my life. And just to top things off nicely the hospital ran a HCG test and that came back very low so it was a chemical pregnancy. The hospital and Mr S are stumped as to what happened to me. It doesn't look like an allergic reaction as you usually get a rash and I'm not allergic to soy or eggs. But my body reacted to something in that infusion. Mr S said that he doesn't know of anyone that had a reaction like that to intralipids. I was still feeling very woozy and off the next day and the following day I had another episode of heart palpitations. I was out with my daughter and had to call my husband to come get me. Thankfully it hasn't happened in the last 2 days so I'm hoping it's over. This whole experience made me realise that as much as I want another baby it is not worth putting my health at risk. I am very grateful for my little girl and I want be here for her. Mr S asked me to come back when I'm ready to discuss alternative treatment. I'm not sure what I want to do. I think I will take the rest of the month off and relax and enjoy Christmas and see how I feel in the new year.

pj12, god, how terrifying. So glad you are ok. Can totally understand your wanting some time off from all of this. And so sorry it turned out to be a chemical pregnancy, that sucks.

PJ12 - that must have been absolutely terrifying for you! Hope your feeling ok now and sending you hugs. So sorry that it was a chemical. I am doing the same as you and am having a break from it all - for how long who knows? I was broken last month after my chemical and I know I need a short break at least. I hope your ok PJ xxxx

Oh god please help me, I've been so stupid.

As most of you will know I had my baby in May after three miscarriages and seeing dr s for treatment.

Edie is exactly seven months today and I have been feeling really bad for a few weeks. I put it down to my thyroid playing up but this morning something clicked and I tested. There's a big fat fucking line and that wasn't even with first wee of the morning. I had a period 19th October and nothing since then. I've massively, massively fucked up. I haven't even been taking folic acid. I've taken antibiotics for my wisdom tooth and canesten cream because I have thrush. At least I don't drink but I haven't been taking any meds.

I want this baby so much. DH is over the moon. Ironically we were saying we should start trying soon last night but if this pregnancy ends in miscarriage, as it probably will because Ive been so fucking stupid, it will ruin edie's first Christmas.

Sorry for the ranting, the swearing etc I'm just not ready to face another miscarriage

Oh my gosh, Snoopy!!!! Please don't be so upset. The way these pregnancies work has always been a mystery. Dr S has even said that after having a baby your NK activity can completely change (for the better even)! There's no reason to think this isn't going perfectly. This is so exciting!! CONGRATULATIONS! Just start your prenatals now and maybe book yourself a scan to see what's going on? Xxx

Thank you drttc, how are you?

I think I just had a major wobble this morning. I'm just not ready for another miscarriage, especially at this time of year because it's dredged up the memory of the first miscarriage.

I've booked intralipids for Monday. I got folic acid, NAC, aspirin, prednisolone and I'm collecting cyclogest on Monday. I will order some wobenzyme as well.

I just feel bad for the little embryo because I haven't given it a chance.

It's okay and makes complete sense that you're emotional. You've likely got raging pregnancy hormones to top everything off!

You are doing all the right things now :-) Breath and be kind to yourself! How many weeks do you reckon' you are? I'd say you're pretty close to the 'safer zone' aren't you? After 10 weeks the chances of miscarriage fall drastically as I'm sure you know... You're so close Hun!!

I'm really well :-) Enjoying my little man to the fullest! Doing lovely Christmassy things I always dreamed of and feeling so lucky xxx

Aw I'm glad to hear you're enjoying your little guy. We are so lucky.

I'm trying to work it out. I know I did a pregnancy test sometime in November because I thought once my period started again it would be regular but I didn't think I saw anything on it. I can't even think when we would have dtd because DH has been at work every day since beginning of December and he's had so few days off recently.

I'm also worried because my breasts don't hurt and they always have before but I was breastfeeding until recently.

Oh and I took Imodium a couple of days ago because I thought I had norovirus I couldn't have messed this up anymore if I tried

We always find a reason to questions things though! Before I was nauseous I was worried, when I had a few hours reprieve from the nausea I was worried... No one pregnancy is the same! And with a little one to take care of I'm sure it's harder to keep track of potential symptoms.

The only definitive answer at a given moment is an ultrasound- so keep doing your best until you get there :-) xx

Well I'm all hooked up to my drip, on the medication rollercoaster again.

You're right drttc. Ultrasound is the only way. I don't think I'm going to book one until after Christmas. I think I'm only about five weeks and I don't think that seeing a little sac or a feral pole will allay any fears. I haven't had any bleeding and I haven't started the cyclogest yet. I think I'll just try to forget about it like I did with edie.

Great news! I think that's a good idea. The beginning is so grueling and I firmly believe distraction is the only thing for women with our history.

And congratulations on your first Christmas as a mummy ! Can you believe that not so long ago we were both feeling hopeless and terrified we'd never hold our own baby in our arms? You deserve to cherish this incredible milestone!

Thank you drttc and congratulations to you too. I am a very lucky person and I need to remember that everyday. When I think back to Christmas two years ago I can't believe everything we've been through, good and bad.

I hope everyone else is getting through the day. There's been such sad news recently which is heartbreaking.

Wow! Snoopy! What a surprise!! Congratulations!! We all know how scary those first few weeks are, just let Edie and all the coming festivities distract you. I'll be keeping everything crossed for you.
Did you have your intralipids at Epsom? Or do you have another place near you?

Hi seeking! How are you?

I had the intralipids at Epsom. My appointment was at 9am and the place was already packed. I didn't have the absolutely awful experience that pj had but I have a large red mark that has spread halfway up my arm and is now sort of turning into a massive bruise. I didn't have any problems with the drips before and they looked the same so it's a bit odd.

Also seeking was it yourself that tried progesterone from ovulation? I'm probably wrong but I was thinking about the hyperfertility theory, that some womb linings just accept every little embryo that comes their way when they don't stand a chance. I never had any kind of tests done for that so don't know if that is an issue and I know dr a doesn't support the theory but it's always been a worry for me.

snoopy big congratulations, I think trying to not think about things at the moment is a good strategy. People do all sorts of things before they know they are pregnant and the babies turn out ok so I wouldn't worry about the immodium etc.

I took prog from ovulation on the advice of Prof Q in Coventry. Made not a single bit of difference, I still conceived almost immediately and then mcd at 8 weeks.

I'm on my way to Epsom right now for final intralipids and to be discharged from Mr S. Scary stuff! And I'm going to be 20 weeks on New Year's Day which feels like a nice round number of weeks to start next year on!

Oh wow yomping that's great news. What an amazing way to start the new year! Do you have your 20 week scan booked?

Yes, although it's ended up being at 21.5 weeks instead - but that means less time between that and the 28 week one, and anything that reduces that massive gap is a good thing I reckon!

Well there was some brown discharge this morning so my gut is saying it's over. I did another test, still very positive but I know that means nothing. I knew I'd ruin Christmas

Oh Snoopy... I know with history your instinct is to think the worst, but It may not be what you think it is.
I can't remember if I did progesterone after ov... I think I did a couple of cycles but not on the successful one.
Hang tight and try to put it to the back of your mind. You have your beautiful baby girl and your first Christmas as a mummy, enjoy that for now lovely and hopefully your fears will come to nothing. Will be thinking of you and hoping your little one stays put. X

I know I should be grateful I have my daughter but I completely despise my body.

Oh snoopy . I know this feeling so well and it's awful. And I know nothing helps. Sending you the biggest hugs.

You are grateful lovely, but that feeling of your body failing you again and again is a horrible one. And it's come as a surprise and at a time that should be magical and lovely.
Be kind to yourself.
Your body may be crap at times but just look at what you've already achieved, how far you've come. You know your body CAN do it, cling on to hope that it can do it again. Xx

You lot are so lovely, no idea what I'd do without you.

Sorry to be so 'woe is me'. I think I'm a bit down because the Christmas period has generally been a bit shit. DH hasn't had a day off since I can't remember when, my mil is being a bitch, my mum is as all over the place as ever, friends all busy so it's really just me trying to be festive by myself which is very tragic. As soon as I saw that positive test I just knew in my heart that miracles don't happen to people like me.