I posted a while ago about uterine polyps. Nearly 4 years ago I had a private ultrasound that found these black splotches on the lining of my uterus. I took the pics to the GP and they referred me to the gynae. They told me they were cysts caused by PCOS, (PCOS was confirmed with blood tests) they said PCOS causes cysts everywhere in the body so why not the uterus, (When I asked why I had cysts in my uterus). That was all the info I was given other than to loose weight. I have since found out it is not true, PCOS doesn't cause cysts randomly in other parts of the body.
I've had irregular periods for the last few years, but when I do have one they are really painful and heavy, full of massive clots and they really knock me out. Sometimes I'm sick with the pain. I went back to the GP this year and said I needed more help than just to be told to loose weight, I am making slow progress with that. I was also concerned about the black things too as I could not find anything about uterine cysts being caused by PCOS. I had another ultrasound and the black things were still there 3 and a bit years later. The gynae said they thought they were polyps. I was booked in for a hysteroscopy and polypectomy. When I came round the Registrar said they were not polyps but it is in fact Endometrial Hyperplasia, thickening of the uterine lining. They have sent off a biopsy and given me a follow up appointment for October. I have Googled and its a bit scary.
It developed because I have had low progesterone all this time and it has gone untreated all this time, if the NHS had followed up the private ultrasound and not just dismissed me for being overweight it could have been treated nearly 4 years ago! I'm a bit scared as it can become pre cancerous and one of the treatments that I keep seeing again and again is hysterectomy, which as I am TTC DC2 is shitting me right up!
I feel that this on top of PCOS really has shrunk my chances of ever having a DC2.
Is there anyone out there who has had these two conditions and gone on to conceive? Any words of advice on how to make sure I don't keep getting fobbed off by the doctors and actually get some help?!