RESPONSE Trial for recurrent miscarriage: Thread#3

[Marchgirl]

For anyone on the RESPONSE medical trial for recurrent miscarriage, or thinking of joining. Peeps at all stages of the trial welcome!

Link to previous thread is here

It's really weird isn't it how different friends deal with things. I remember I threw a party for 2 friends 30th last August and some of my best friends made some really insensitive comments and that was only after mc 1. My friends sister came to the party - she's about 5 years younger than us but having had a mc between her 2 dcs really let rip at my friends and she's been such a rock since. Someone I know in RL who actually has some idea of what it's like and who knows my friends so can relate when I need a rant.

Some of my work colleagues have also been amazing but I have another colleague who hasn't got a sensitive bone in her body. She recently asked in our science prep room (surrounded by colleagues) if we were going to hurry up and try again and then bounced into my lab and said 'ooohhh... have you heard X is going to be a Daddy.

My best mates general line of support is 'I know it's hard but I truly believe it will happen for you. you just need to relax'. That makes me sooooo And I know it's opening another can of worms but three of my friends who make such unhelpful comments had secret abortions behind boyfriends backs (although a lot younger) and that makes me more mad.

It definitely teaches you who your real friends are! And it seems it's often the ones you least expect that rally and become your rock

The other good thing is places like this! Where you can do the long rants message and it's totally cool. And everyone gets why!!!

X

That's amazing news Joy! At what stage did you find out you were having twins? Are they identical or non identical?

I'm not ashamed to say I am hooked to this thread. It's become my absolute lifeline!

The worst one got me is 'at least you know you can get pregnant, think about those poor couples who struggle!!!' Even the bloody doctors say it!!!

Yeh, cause I am in a better place than them???? Clearly!! At least when / if they finally get pregnant they will have that real joy at a positive test! Not mixed with sheer panic!!

Rant over... x

Congrats Joy! Some lovely news!! x

Vicki... I'm with you there... 'Yes - I can..But it's no f*ing good if my body doesn't let it develop past 7 weeks!'. Grrrrrrr... clueless people

Ahh Joy, it's a bundle of pink. How lovely.
We are team blue.
Did you like the scan place, I thought it was lovely.

I think because it's not talked about so much, people don't know how to talk about IT. And there are some insensitive idiots too.
Hay ho, thank goodness we can rant and rave hear.
What would we sound like if we were all in the same room!!!!! Crazy ladies ;-) xx

Congratulations joy think of all those little matching dresses you can buy!! Do you know of they'll be identical? Xx

Exactly kazz! Bloody idiots!
X

Congratulations joy, how lovely x

As i already have dd, the comments i get most frequently are "well at least you know your body can do it" (er, not recently) and "well at least you already have a child, some people aren't that lucky" (which i interpret as 'stop whinging and be grateful', and which leads to massive guilt that maybe I'm being selfish wanting another)

Morning ladies! Nice solid smiley this morning on the clearblue kit.

Odd as it's about 5 days early! X

congrats joy, I have an identical twin sister and I love being a twin I'm so pleased for you.

vicki yippee that's great news what cd are you again? good luck lovely for this month.

March I get the same comments, just enjoy your ds your lucky you have one some people don't have any, I totally get that and appreciate so much having my son more than ever after all of this but my heart hurts so much as I really want him to have a sibling. I feel so bad as I know more than anyone how lucky I am to have him. he's the best thing ever. even my dh keeps sayings we have our ds and it might not be going to happen again for us it makes me so sad and I feel so alone with it all.

thank God for you ladies, imagine if we all could.meet up, Its so weird trying to imagine you all in my mind!!

good luck brummie this morning

hope you get through to trial nurse okay gen xx

That happened to me Vicki. I carried on testing (although dtd like crazy as much as possible anyway) and got a 2nd smiley 4 days later. I'm pretty sure the second one was the correct one.

I'm on cd14... Very strange!! I will just keep testing I guess!

Thanks Claire! Fingers crossed for both of us!!

Good luck brummie and gen for today. Let us know how you get on.

I am totally hooked on this thread!

Xx

Do you have a long cycle? CD14 is about right for average 28 day cycles?

Well Kazz, my last couple (after the last mc in March) have been 34 day ones... usually i am every 28 days bang on... so could be a sign that they are going back to normal? x

Hopefully that's the case! :) My weird smiley was cd 11 andvhotbanother cd 15.

hopefully its sign that cycles are back to normal x

Good news on the smiley vicki. It does sound like maybe you're getting back on track. Hopefully that's a good sign

Vicki I got my first smiley on cd11 which I wasn't expecting at all! Just go with it....keep testing keep dtd all you can do really!

Spoke to trial nurse thus morning she said to not worry about the bleeding as it has stopped and if starts again to let her know and she will bring my next appoitment forward (my next appoitment should be a week on thursday) so fingers crossed I don't get no more! Xx

I'm having a little panic this morning. One I think March especially will be able to relate to... DH wanted me to do another hpt this morning. And whilst it showed a slightly clearer cross when compared with Fridays it doesn't seem particularly darker! Surely 3 days on it should be much much darker. Now panicking that things aren't progressing and panicking ive jumped the gun getting the trial meds and it's not going to go anywhere and ive blown our one chance!

I also know I sound like a total hypochondriac. Off to the hospital in a min to have my 4 week bloods taken. Feeling panicked and DH had taken my headphones to work so I can't even listen to my hypnotherapy thing to calm me.

Debating asking the trial nurse to run another blood pg test to check hcg has changed since Friday. Thoughts?

I say March as I'm sure you said you had continued testing.

You are right kazz, i was the crazy one testing for weeks. The tests take surprisingly long to go darker, so please try not to worry. Mine wasn't properly dark on an ic until about 4+6. I worried every day, particularly after the two very early losses, but progression is progression. Even a slightly weaker wee can make a big difference at this stage so don't panic yourself xx

Hi ladies had my scan & my little bean is fine!! feeling so relieved! X