TTC with PCOS (Thread #2)

[RoseBud2015]

If you have been diagnosed with PCOS and would like a small group of very friendly ladies in the same position as you to talk to, then this is the thread for you!

You can find our first thread >>>>>>>>> HERE

You can find the stats >>>>> HERE

Wow this thread has been busy and I've only been away for a month.

chandelier I'm sorry to hear your news

Congratulations to all with BFP'S.

Well after we decided to stop ttc for a few months I went to see my consultant who really gave me some prospective and had said I had come so far so why stop now.
So I agreed to have another two clomid cycles and he agreed I could have scan this month to see what was going on. I went on Tuesday which was day 11 and there was one possible follicle but only measuring 9.3mm (should be at least 18mm at this point) so I have to go back tomorrow incase I could ovulate late. Long and short it's looking like clomid may not be working for me even though I believed I was ovulating (only had a blood test the first cycle). The nurse said it is possible to have a tolerance to clomid which sucks.

So plan of action is scan in the morning and if it's no good then she will speak to the consultant and get this mystery plan b underway. It is another drug but I dont know what.

Hello ladies! How are you all? Great to see some progress happening, I honestly am always checking in to keep updated, and spreading as much baby dust on you all as possible. So I may seem quiet but im always on here in spirit!

Thought I would update you, i had EC on Monday. I was really worried as had over 30 follicles that I would get bad OHSS, but they got 15 eggs. 12 fertilised and 3 have made it to grade 1, so having transfer Saturday. I am constantly anxious but obviously happy with the result so far. I def swear by high protein diet, and I love acupuncture!

After the failed Clomid and ovarian drilling, I know this is our only hope of getting preggers. So ladies if you feel Clomid is doing nothing (like me) and you never (or rarely) ovulate, there are other options for you. I think deep down I always knew it would get to this stage, and this thread is a massive support as u realise u are not alone..

Hello ginfizz I hope your SI works Hunny! I am Cd11 done SI Cd3-7. Started OPKs, which I feel really stupid doing as my AF was fake and I havent a clue what a positive would really look like on those Internet cheepies . But hay ho I'll persist. FX for you!!
Dollface easy enough for people to tell you not to worry! All woman must go through that horrible worrying stage, having to battle with PCOS on top must only make it more of a worry. You've come so far and I am sending you all the luck for a H and H pregnancy. I too would get a private scan if I ever get pregnant. Especially if it will help you worry just a tiny bit less, it's worth it. Once all is confirmed I hope you really enjoy being pregnant and getting bigger!! Xxx
mistle hello again! What a nice consultant to say that! A break may have been what you needed to get your plan b into action! Hope you get some good news from your scan and I am glad you have a plan b if needed.
Newby I think we may need to go down the IVF route! It must be really mixed emotions for you and your DH. I cannot wait to get to that point. Glad you got 3 grade 1s, that's brill. Sending you lots of love for Saturday. Make sure you rest up once that embryo is placed, literally go home and be waited on hand and foot! xxx
*isiti your right we need thread 3 soon lol! I would be lost without you lot. I hope you find the energy to DTD so much. Your DH must know by now that our hormones make us think crazy things. I've told mine to leave me before now to which he looked at me in utter confusion! such a stereotype but woman and they're thoughts ay?!
Xxx
Lots of love to everyone

Woohoo newby that’s amazing! Keeping all my fingers and toes crossed for you - hope your bean(s) get nice and snuggly, and you take good care of yourself during the 2ww.

gin good luck this cycle, that all sounds mega promising!

IsIt sounds like you have a brilliant strategy in place wink My poor DH has been dealing with living with a right mentler, so you ain’t alone. Years of being on the pill and having any hormonal madness suppressed, meant coming off it was hell on wheels as I’d forgotten how batshit hormones sent me. I think volatile would be putting it kindly!

mistletoe I’m so so glad you have such a great consultant. Having sympathetic doctors really does make the world of difference and it sounds like you have a great one. I’m keeping fx for you, and whatever the outcome of this cycle, your Dr obv has a good plan in place for you (I’m dying to know what mystery plan B is). I wonder if it’s Femara? Which isn’t strictly licensed in the UK for fertility but it’s sometimes used off label and is v v popular in the US as a Clomid alternative, either if you’re Clomid resistant or if (like me) Clomid thinned your lining and dried up your CM.

I missed you all too! My bloody Mumsnet app keeps saying it can’t connect, and I was missing you all so hopped on the computer to see if MN was working there!

Hi all,
This is such a great support network- the site being down has been a real blow as even though I'm a newbie and haven't posted that often, I feel such a connection with everyone TTC in the face of our various ishoos.
Banana, I'm v glad you're sticking around on this thread. You are so clued up and dynamic, it's inspirational. Fx for your next steps.
DH and I are off to the GP tomorrow to start the referral process. Hopefully we will have an appointment (at which I expect/hope for a no-brainer decision of a clomid prescription) by the time I've got over the ovarian cystectomy (which is scheduled for a couple of weeks' time). Oh and they are going to do the dye test at the time of the surgery so that will be one more test ticked off the list.
Lots of crossed fingers for everyone going for scans/trying to catch eggs etc etc!
greengoth, I have to say I so wish I'd come off the pill earlier - not necessarily to TTC earlier but to work out how my cycles were. Then I could have spent the year before my marriage (which is when we started TTC) trying to sort out various associated issues rather than the year (and counting) afterwards. It's like not being able to get off the starting blocks when planned. Ah well.

Hello, my DH and I have been ttc for two years. I was diagnosed with pcos last April. DH semen analysis was all good and I've been waiting ages for Clomid! Decided to go private in the end. Yesterday I was prescribed Provera (5mg) for five days then (10mg) for five days. Then to take Clomid on days 2-6. I'm so excited I cried when he gave me the prescription as I was so happy! I have 3 months of clomid (50mg) and told to go back in 3 months time if I'm not pregnant by then. I asked if I'd have scans or anything but he said no, it doesn't really matter. I'd be so so grateful for any advice on provera/Clomid and also any success stories. I'm 29 and DH is 33. Thank you so much in advance. Emma x

Great to hear things are going so well for you both Dollface and Rufus!

Dollface I know it's hard not to worry about mmc but ultimately there is nothing you can do and no amount of scans can prevent it, if it is going to happen. I know that probably doesn't make you feel better- but try to enjoy being pregnant and the build up- it's a very exciting time for you

Isit You seem a lot more positive in this cycle! It's great to see! I had a melt down at DH the other day too for a similar thing- 150mg clomid turns us into psychos doesn't it!!! lol

Mistletoe for you! It's still possible that those follicles could be slow growers so don't give up hope yet! Will you increase to 150mg if it doesn't work?

Newby You are PUPO!!!!! That is so bloody exciting!! I am keeping my fingers firmly crossed for you! Did you have 1 or 2 transferred? What drugs and protocol did you follow? xx

Fee Let us know how your GP appointment goes! Fingers crossed they are pro-active!

Emma Welcome! I cried when I got my first clomid prescription too! It feels like such a relief to have something to try doesn't it?!

As for me, I went for my follicle tracking scan. My lining has doubled in thickness to 5mm (still too thin but getting there!) and my follcile has grow to 15mm! She thinks I will ov at the weekend but I have another scan on Tuesday to double check.
So this is it..... my one and only chance to conceive naturally on clomid! I am so emotional today- I really really need this to work! If not, it's IVF for me! So scared!

Hi ladies. Thanks so much for all the support. I had some brown discharge today so freaked out and raced to the epu. Results are in and everything is fine! Nice strong heart beat and about 8+4. I am delirious. Hope you don't mind me sharing my scan but you all feel like such a part of it for all the help on my journey. I want to share the good times as well as the bad with you guys. Xxx

Ah amazing to see the scan, Dollface! Sorry that you had a panic to get it but hopefully it will put your mind at ease.
GP was very efficient and is sending off the referral straight away. Could still take 6+ weeks to hear from them, though.

Oh and Rosebud, fantastic news that this clomid cycle might work for you, after the side effects it caused you- it's the least it could do

rosebud that's awesome news! Cheering on that egg and keeping everything crossed for you, you deserve this so so much

dollface wow!! That's just amazing to see, thanks so so much for sharing with us. Just beautiful! Really hope you can relax soon and enjoy being pregnant

Feefee wishing you all the luck in the world for your procedure, and hope the GP was helpful

emma welcome! So glad you've got the Clomid prescription. Are they going to do any blood tests to confirm if you've ovulated or not? As not being pregnant within 3 months doesn't necessarily mean the Clomid hasn't worked. Or if you know in the first month that you haven't responded to 50mg then means you can try a dose up the following month (rather than trying 3 months on the same dosage). There are several pregnancies - including Clomid BFP - on this thread, hope you join them soon

Looking good dollface

rose you've got to be close to where I am in my cycle, I'm day 15 today.

Welcome newbies.

I had the second follicle tracking scan yesterday and my lonely follicle had grown and is now 18mm, she's said it's still got a little bit to go but not far off so it's looking like a day 18 ovulation for me again. Oh and my lining has thickened since Tuesday so all going in the right direction.
We have a very business weekend so I shall have to attack DP.

I also know what plan b is.............its another drug that begins with l, can't remember the name but it is unlicensed for fertility treatment but has had good results and then plan c is injections so I do not want to get to plan c. Ideally I don't want to get to plan b either but nice to know there is a back up

Dollface gorgeous scan image! X

Mistletoe I'm CD17 today so we are close but I'm defo going to ov later than you! Your follicle is growing so much quicker... from Tues to Fri over 8mm for you and 3mm for me! I have definite follicle envy! Lol x

Oh and the drug is Letrozole (or Femara is its fancy name) and I am in the process of strongly encouragin pushing my consultant to give me a try of it too before they discharge me from the NHS and send me on my merry way! She is letting me know next week! Eek!

mistletoe so glad to see you back here! How are you? Im interested in your mystery plan b drug!
So glad you have good news about your lining and follicle! Fingers crossed for you.

Newby that sounds promising. I think we all have our fingers crossed for you today

Pebbles and Bananafish Im so glad other people understand the madness. A few days after that meltdown, I really can't remember what I thought I was seeing. Poor DH!

FeeFee which part of the country are you in? I hope your referral comes through quickly

Rosebud I am sending all my positive, growing nice and big thoughts to your follicle!! Good luck!!
Also, yes 150mg does turn us into crazy people. Im now at the stage where I keep thinking about how much I love DH and how nice he is and its making me soppy. He keeps looking at me like this

Dollface that scan is beautiful! Please keep updating us

Emma as far as I know you should be having some sort of tracking. Some of the nicer NHS trusts, and usually private patients, are getting follicle tracking scans. Where I am doesn't offer that but I do have a cd21 blood test done every cycle to monitor if I am ovulating. I think you should ask about this as quite often the amount of clomid cycles you can have are limited and you don't want to waste 3 on a dose that isn't working for you.
I had 50mg for a cycle before being told it didn't work and to increase to 100mg. Ive increased it again since then but I only know what works through blood tests!
Good luck this cycle though, and believe me, we all understand the joy that is seeing a dr and coming out with an actual plan!

For me, I have no real update- feeling soppy and hormonal, still getting hot flushes, on cd10 today. AM having issues about pressed - I ordered some but it hasn't arrived so its not going to be here until after bank holiday, which will mean Im cd13 at the earliest and its stressing me out!

*preseed not pressed!

dollface fab scan photo! Not long now until you can shout it from the rooftops!

I'm away on holiday soon so I won't be on for a while - really hoping I come back to some BFPs!

Hi all, hope your having nice weekends :)

fee how did your GP referral go? I hope you have a supportive doctor, it makes all the difference I think..
emma good luck with your clomid! Very exciting when starting out, wishing you all the best with it, keeps us posted how you go!
rose and mistle
amazing news about your lining and follicle! That's massive! I have everything crossed for u that u ov this weekend
doll that scan if lovely to see and very happy for u that everything looked great at the scan. Natural to freak out about everything I can imagine!
banana how re you? Hope all is well with you
isit thanks for your kind words. Just had the embryo transfer. We were very lucky and had a blastocyst grade AA, and five other blastocysts frozen. Very quick procedure, no problems. Although I was desperate for a wee afterwards so worried that I weed it out!! Now the waiting begins...!

Isit, don't worry - I am sure you will be able to do this without Preseed! Think positive .
My doctor was fine - very happy to make the referral but didn't really go into any detail and said he couldn't estimate how long it would take for an appointment etc. I'm in outer London and finding it hard to find anything recent on the internet about wait times in my area. Depending on how soon after the cystectomy I get the all-clear, we might decide we should just bite the bullet and do it privately (sooo impatient now!) as Clomid etc isn't that expensive.
Though, on that note, Emma, it seems strange that your clinic wouldn't do any kind of tracking. I thought that's why GPs don't prescribe it, as they're not set up to track what's going on with it. Maybe you should go back to them after the first cycle at least, if it doesn't end in a BFP already that is. (Am I overly unrealist to hope that's what might happen for us?!)
Newby, sounds like it all went really well-fingers crossed! How long is the wait til you know more?

I am not having a good day. My insides feel like there about to fall out my fanjo because everything feels so heavy and I have a lot of cramps. This has got to be good news right? When I've ovulated previously I've had pinching pain but not this time.

Sorry to rant, my poor body is having a tough day.

Oh mistletoe rant away lovely. Have you put a hot water bottle on your belly now? I hope your DH is looking after you, it sounds so tough
Fingers crossed this means good news for you.

feefee thank you. We are just going to go ahead regardless and the add preseed to the mix whenever it arrives.

I am so emotional today. DH was messing around earlier, just gently teasing and I got very upset and cried then got even more upset when he realised and started being nice to me

Thinking positive thoughts for everyone!

Thanks isit I woke up twice during the night with cramps and have got up with them this morning. I'm very bloated too.
If I didn't know about the follicle I'd be sure AF is on the way but that's can't be.
I did two OPKS yesterday and both were completed negative so I must of already ov'd. I will check again later today

Dollface thats wonderful thanks so much for sharing. Rosebud and Mistletoe things are looking good, well done to both of you hoping you are able to stay chilled.

Rosebud Hope you've had a lovely bank hol weekend, and that your follie has done its thing, all sounded most promising! In the event of plan B, keeping fx you get Letrozole - know women who were prescribed it instead of Clomid and had fabulous results!

mistletoe massive hugs!

Ponty hope you have a fabulous holiday!

Rufus sorry you’re feeling so pants, but hope your bean is nice and snug and growing beautifully. Are you going to find out what ‘flavour’ you’re having, as it were?

Newby fantastic to get to blast, and some frosties too! Just wonderful! So so pleased for you, keeping everything crossed for you. Hope the 2ww flies by and you get your BFP v v soon

IsIt oh lovely, hormones are such a pile of arse, aren’t they? I was weeping buckets on Clomid and bless him I don’t think DH could have done anything right no matter what he did! Yours sounds like an absolute gem and I hope he’s taking good care of you

mistletoe Rant away! Sorry you’re having such awful cramps, but hoping v much it’s a sign of something positive happening! I had some stonking cramps c.36h after my trigger, which lasted quite a few hours, so must have been ovulation related - so hoping it’s a juicy follicle and indicative of a nice ’strong’ ovulation. OPK going -Ve after +ve def sounds promising!

afm, just biding my time until my appt on Thurs. DH and I did all our HFEA paperwork yesterday, we understand why it’s all necessary but the ‘welfare of the child’ form - where we have to declare whether we’re kiddy fiddlers or not, and the clinic have to pass judgement as to whether they think we’d be supportive parents or not - just feels like a kick in the face. Firstly, if you needed as many consent forms before having a shag, the human race would be extinct! Secondly, any old arsehole can go and get knocked up, but the couples putting themselves through physical, emotional and financial stress because they want so desperately to have a child - they’re the ones who have to be assessed as to whether they’re likely to be fit parents?!!

Banana that does suck and seems pretty ridiculous. But its all good news and you are getting ever closer to your BFP inspite of all the (many) bumps in the road.

I had another BFN this morning. I am gutted as it all seemed to be going so well. Responded to everything etc... less gutted than last time feel like I am getting better at dealing with disappointment.

Got three more cycles of Clomid left... I know I have to see them through but I do wonder if I am just wasting time with it and should go straight to IVF. hmmpphh anyway I am on holiday so going to try and not be a total misery guts all day.