TTC with PCOS (Thread #2)

[RoseBud2015]

If you have been diagnosed with PCOS and would like a small group of very friendly ladies in the same position as you to talk to, then this is the thread for you!

You can find our first thread >>>>>>>>> HERE

You can find the stats >>>>> HERE

Vixx Yeah 150mg. I didn't have any side effects at all on 50mg or 100mg. I'm assuming these things are linked to taking the clomid and not just illness. I don't feel ill, I just feel really really weird! I've had to phone DH to come home from work because I'm not safe to drive and need to pick up our dogs!

Isit- just realised you get your ov results today! Fingers crossed for you! x

Bloody hell. That must be scary!

Rosebud yes the same v v withdraw and spacey and tired and unable to engage with anything really. Hope your ok it's horrible but it should pass. Two days after I finished taking it a slowly started to feel the energy return. I found a bit of excersize helped a swim or a short run?

Are you having a scan? When's it booked in for.

tomorrow is my first GP appointment to "get the ball rolling" after my telephone appt with her last week. She said we need to get "investigations" out of the way in order to refer us and although I welcome this, it also makes me eye roll slightly as we've done all this before and we know the way it goes: I'm the problem!

Good luck with your appointment Ponty

Isit How were your results? Thinking of you

Well it's not good news from me- I woke up this morning to disturbed vision. Everything was rippled and flashy (hard to explain). It died down after an hour or so, so went into the fertility clinic to ask what I should do. The nurse told me that I must stop taking 150mg clomid immediately because it shouldn't be having that sort of effect on me, and it can lead to permanent eye problems in some patients!!!

Safe to say I am devastated!! I burst into tears in front of a reception room full of people and then just couldn't stop crying! Then I cried even harder when I phoned DH to tell him, and then a cried some more when I got home....... I've stopped crying now.... just!

I've taken 4 days of 150mg clomid (I was due to take the last dose tonight) so they still want to do my follicle tracking scan next week just in case, but I'm pretty convinced that this is the end of the road for us now as far as clomid is concerned . And more devastating is the fact that the NHS cannot do anything else for us!

The receptionist has managed to get me a cancellation with the consultant next Thurs to discuss our next steps- at first she said I was looking at March, but when she saw my face she quickly checked for cancellations..... so lucky that she was so helpful!

Rose I am so sorry!

I think is be tempted to take the last one it you have taken four already? ??

It's not the end, please remember. Sending you lots of love

Thanks Vixx. I did consider taking the last dose against her advice, but I've done some reading online about it and it can cause lasting problems if you ignore it and carry on taking them. For me, it's not worth the risk.

It just makes me feel so angry with the world- why do I have to pay for any further treatment just because I fell in love with a man who already had children- it's so so unfair!

No it is really not fair. The whole eligibility thing needs to be reviewed.

So looking ahead the clomid may have still worked because you missed only one day.

If it doesn't what is the next step? Iui?

Vixx I've done some research on that too, and the success rates for IUI when the woman is confirmed to not be ov'ing are very low, and some private clinics will refuse IUI treatment on this basis. I think if I'm being realistic, the next step will be IVF for us! I can't see any other way.

There's still a chance that this cycle may have worked, but I'm not at all convinced....... I'm preparing myself for bad news next Tues!

We are in the same situation
I am not doing iui the success rates aren't great.

I will have to have ivf but to be honest I am trying to come to terms with the fact that I probably won't have a baby.

I have had a bad week so I understand exactly how you feel.

rosebud I'm so sorry so glad you got an appointment next week though, you need to be moved ahead asap so you know what the plan is for you. The criteria re: help on the NHS is silly, just because your partner has children already doesn't mean you should pay. That's really sad and completely wrong.

Vixx - we mustn't give up hope! There are plenty of women that have the same problems and get their babies through IVF!

We won't have IVF in the UK. We have already discussed it and it is too expensive and pot luck as to whether you get the care you truly need. We are pretty set at going to Reprofit in the Czech Republic. It's £1,300 for ICSI per try. Then you just need to get flights, accommodation and pay for the drugs. We've worked out it will cost us about £2,500 for one cycle! (compared to £6000 in the UK!). I've emailed them now to say that we are interested- I need to feel like I have something else in the pipeline, otherwise I think I will go mad!

rose I'm so sorry that clomid didn't work out for you . Def not worth putting your health at risk, our bodies are funny things, and who knows four days may be all that was needed!

just seen the the guy McFlys wife announced she is pregnant after IVF with PCO so gives us all hope
I never knew IVF was so much cheaper abroad.. Def something to look into. Are the reviews all positive?

Rose that price is really good! I am glad you're looking ahead. Clomid is the first step and not the last. It's hard to remain positive though!

I saw that the guy from mcflys wife was pregnant as well the other day. I wonder how many rounds they had.

Oh rosebud I am so sorry I will never moan about clomid side effects again.
I think you need to just let yourself be upset if that's how you feel - be brave another day.
And I agree about the ivf criteria, it's completely rediculous and unfair! I'm surprised it is still the way it is to be honest.

Hello lovely cysters,
Well this morning's scan has brought the news I've been dreading but half expecting. There has not been enough progress; this pregnancy is not viable. I have opted for surgical management (not for everyone, I know) because I feel like I've had enough of this now. Five weeks ago, I was told I was miscarrying. I've been back and forth with highs and lows (am I/aren't I?) ever since and have arrived exactly the same place today. And my body is hanging on to the pregnancy (am struggling with nausea etc!) so this is the right plan for me. I'll be off the forum for a bit but back again when the dust settles. Thank you for all your kind words and support. Hope to see some BFPs on my return. Love and unmumnetty hugs to you all.

Chandelier, you have been so strong throughout! I am so sorry you've been through all of this, wish you a speedy recovery. Please come back soon and let us know how you are. Big hugs

Chandelier I have been holding my breath and crossing my fingers for you and am so so sorry to hear this news. As Ginfizz says you are so strong and I send you lots of hugs at this really difficult time. I hope you have lots of support at home and please look after yourself. xxxxxx

RoseBud dont' give up yet, I only had 3 doses of clomid on my 1st cycle due to not starting till day 5 and had follicles. You can't say it won't work until you have your scan.

Chandelier I'm very sorry, big hugs and look after yourself

Chandelier, I'm so gutted for you. What an awful journey you've had to go on with this. Good luck with the surgical management and stay strong. Be kind to yourself.

Rosebud - sounds scary . I hope all the visual symptoms are gone now but that the four days' worth of clomid do the trick - it ain't over for now - Fx for the scan! But it's great that you already have next steps mapped out - it really helps to have something to focus on, doesn't it. Oh and thank you for the tip re not being too passive when it comes to expecting the referral. I remember that being said upthread (probably by you!).

Place marking had to create new account.

Chandelier I'm so sorry

chandelier I am so so sorry No one here is going to judge your choices. In a situation like this you have to do what is right for you.
It's completely understandable that you need to step back for now, but please come back if you need support x

Rosebud I hope your vision has improved. how is your dh handling the news?

Chandelier I'm so sorry to hear that . I hope to see you back here in the future when you have had some time away- take care of yourself

Newby I've been looking really really hard for negative reviews, and cannot find one...... anywhere, only positive! I'm going to keep looking!

Vixx I think that's great that Mcfly dude and his Wife have opened up about IVF. It still seems so taboo in the news, and yet I'm sure I read that 2 in 100 babies are born through IVF now!

Thanks Rufus I'm trying to keep positive- there is still a chance that this cycle could work so we plan to give it our best shot. AF has just stopped so it's all systems go in the Rosebud household

Isit DH is being great- his usual, chilled out "we will find a way" self- god I love that man! Now you MUST tell me what your ov results came back as!!! Don't hold back- I would love for it to work for you! Well??!!!.......

Thanks for all of your messages ladies- you lot seriously are great! I don't know what I would do without all this support so thank you .
My visual disturbances have gone now, although I still feel completely wiped out and not myself. And I still don't think I'm safe to drive. But I'm not as bad as yesterday- Woop! x