Immune /natural killer cell treatment when ttc or pregnant (aka the 16th pred thread!)

[sunnyday01]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

Girls I'm thinking of getting my hcg done tmrw and wed. Yes or no?
Yes - means il chill out! Was fine all weekend and am freaking out again.

No-hassle. Not sure if Gp will give me forms. If it's not risen enough not sure I want to know?! Or if it's boderline im going to freak out. If it's low they won't do anything till a 6ish week scan anyways and then reacan in 2 weeks to see change. As im not spotting so presume there is something in there

Agh! I didn't want to do one...but it feels v tempting now

Ok thinking no after writing that. I don't think I want to know!?

I'm not sure about your GP, but mine wouldn't help me get an hcg. Said it was only possible in an emergency situation, from the hospital.

It's a decision that only you can make. You know the balance of curiosity, anxiety, or patience that you have!

Thanks drtcc. I'm going to leave it!
How r u doing?

Caved. Getting them done now. Am having a anxiety filled day today :(
Really hate this :(

trying - can't believe you caved! hopefully it will put your mind at ease though. It is so very hard - like you i had no symptoms and wondered if anyhting was going on in there - for me i just had to keep my head dowm and get through those weeks by thinking i was doing everything i could. I think just me and the dh knowing about it also helped as we didn't really speak about it and just tried to get on with things as normally as possible - i distracted myself with reading and watching box sets, and even playing candy crush on my ipad!!

Even now after having two good scans, i worry - i worry that even though i have no blood i might have a mmc, or something else will be wrong. I think worrying is something we will just have to deal with. I thought after the scans i would be better but it hasn't really made a different, i'm just worrying about the next week and a half to the next scan and what will it show. I guess at some point we will just learn to live with the worry and get on with it! I wish i could fast forward time so i was at my due date!

Change of subject - i'm a bit pee'd off with the miscarriage clinic, i went for my scan over a week ago and still haven't recieved my pics. With my first scan it was a week until i got them. I contacted the office and they said they have to wait until mr s downloads them - that's fine and i know he is a busy man but its not cheap to see him so you would expect to get the pics quite quickly, plus in the line of business he is operating in, a lot can happen in a few days, let alone over a week and it could be very upsetting to suddenly recieve the pics in your inbox one day!

Ah trying, i hope you get some reassuring results. Its so hard but if its worrying you that much then maybe its good to check. I presume you ll go for another in 2 days to chk its doubling.

Sunny - thats a bit rubbish of them. You definetly have a point and when i ve had private scans at the fetal medicine centre i ve had the pics straight away. Hope they send them soon.

yes it is a bit annoying Hula! I'm not really sure if i want to 'complain' as such as its not the office's fault but i do want them!

hi sunny. i know I'm naughty! i was actually thinking before about u and how controlled u had been despite no symptoms! I've had days where the anxiety has been in background and I've told myself what will be will be and i can't do anything. and then today i just had a massive melt down (maybe as home alone and didn't have anything planned BAD IDEA, luckily busy rest of week).

had heavy boobs yest - although they were mildy heavy (!) and today they have gone. hence the panic. I've had 2 miscarriages at 5+4/5+5 which is what i am today and maybe thats set me into panic. no spotting (but I've had one mmc) but those cramps continue too..

its so hard NOT having symptoms. but then its also hard when they come and go?! but i know they can come and go and i also know the pred masks them too. oh its a bit of a head f* really!

i have scan at 6+4, 7+4 and 8+4 (if i make it past these few days) and i think that will keep me calm! will just need to find a way for one or 2 after that!

that is annoying about the scan pics, its been over a week hasn't it? have you explained to them why you don't want them in 2 weeks time and want them now? I'm sure they could sort them out soon for u.

hula are u on holiday? hope ur having a good time and enjoying urself. the weather is crap here now so well timed!

waves to others
x
sorry for being crazy (again!)

i must admit i have been a lot calmer than i thought i would. my symptoms, when i have had them have been come and go - one day my boobs hurt the next they don't, some days i have nausea and can't eat certain foods (today its sandwiches!) and some days i don't. Sometimes i wonder if the symptoms are in my head!

It's so hard around your previous dates, especially when time drags! when are your blood tests?

i just had my first one. my gp is SO efficient. i rang him and within 5 mins the forms were ready and waiting.
next one will be wednesday at 230 so 48 hours later. luckily I'm at a course so i can just escape and get them done, wouldn't be possible at work.

Im not blaming(!) but the spanner in the works with my DH testicular failure has DEF added a huge amount of stress to us both. i found ivf OK, as in it wasn't nice but i thought to myself i can do this again if i need to.......but now the thought of us not having infinite chances despite being youngish has freaked us both out and we feel we have a lot more riding on each BFP now (although emotionally every BFP for jus all is the same)

my DH has his urology appt in 2 weeks so will be interesting to see what he reckons......

are u going to say something to the office?

overall though I'm so grateful my first cycle gave us a BFP. i could be in a very different situation this week worrying why it hadn't work etc.
I'm on all the drugs and i shouldn't really be so worried and anxious. need to put a lid on it!

Awww trying I can really relate to all your worry! It's hard not thinking about what you want more than anything. Good luck on your hcg- I'm certain you'll be fine! So great that your GP got it done... I had to pay £50 a pop at a clinic. I think I need to change GP's! When do you hear back?

I'm well! I'm getting ready to ttc next cycle. Will have been on ubiquinol about a month on CD1 (for egg quality- ideally you want to be on it for 3 months), folate at the same time (better than folic acid supplements if you have issues absorbing), NAC supplements today (sound amazing), acupuncture & potentially Chinese herbs start thursday. Will be seeing Dr S on CD10 as well so have asked him if there's anything for me to do in the mean time as I want to start ASAP.

Once my cycle starts I'll also have loads of fun distractions (house hunting, hen do, 2 weddings, holiday planning) so I'll think it'll be a great month :)

yes, you need to think where you are, you got a bfp and that is great compared to where you could be!

Might wait until wednesday and see if anything turns up then i might have a moan!

wow sounds great DRTCC. all those supplements sound really good, i might go on them too if this one doesn't work out. i didn't really take much except pregnacare and omega 3 this time., Glad ur appt with mr S is soon and i hope he has some ideas of what can be altered for success next time. or possibly he doesn't think anything needs doing. also sounds like u have loads planned, thats def the best thing to do. before you know it you will back on the TTC wagon with a BFP, I'm sure. and i hope its a sticky one. we need some more positive vibes back on this thread!

im not sure when ill get them, the blood taking lady said they would go with the last van to another hospital so may be tmrw am but possibly by 630. GP said likely tmrw am. ill ring them at 615 before they close and see if there is a result. either way not the longest wait which is good. yeah, its unusual how different GP's are. I've got to same mine are excellent , but diff areas have diff rules about what they can and can't do.....ive been lucky they even prescribed all my if drugs like hydroxy/pred/asprin etc so not had to pay private costs to IVF clinic. they wouldn't do my clexane but I'm going to try for that one again!

Ps re the chinesse herbs there was a alert from my ivf clinic saying couples with good results were having strange fertilisation rates and they discovered they were on herbs. These herbs can be really strong and unmonitored levels of strong meds so just be weary! I don't know much about them but that's what the letter said from my clinic!

No result yet, which means tmrw am. Which means Thursday I will know what's going on. Just in time for wedding anniversary .

drttc I've heard great things about nac and I've ordered some.

trying so sorry your having to worry like this. It isn't fair that all the happiness is sucked out of pregnancy. Hope you get good results in the morning to ease your worries.

Ladies help me, I'm having a meltdown. I've been back at work for three days and spoke to my line manager today and he was actually really nice but apparently HR have turned around and said miscarriage doesn't count as pregnancy related sickness and they want a case conference over my sickness. He said it's just paperwork and I have nothing to worry about but I can't deal with this anymore. I gave everything to that job and I feel like they just want to kick when I'm as down as I can get. I didn't choose this, I'd give anything to just wipe the last eleven months of my life away but they seem to think I'm faking feeling this way. Every time I start to piece my life back together it's just smashed to pieces again so what is the point of even trying anymore.

Hmm noted on the Chinese herbs! Maybe I'll hold off on them this cycle!

Good luck with your results tomorrow!

Snoopy im pretty sure it does count as preg related sickness. Ask the ladies over on the miscarriahe board ive seen them discuss it before and they are SO knowledgable. I'm so sorry they are being shit on top on everything you have been through.fy1 I had similar problems and it really pissed me off and I'm still angry about 1 year on! Sadly it's just more of life's shit to deal with. But u will get through it and it's nothing compared to what u have been through. And really it doesn't matter in the big scheme of life.
I'm sure it classes as preg related though...I hope u sort it and sorry

Thanks trying. I'm just really struggling tonight. I've tried so hard to try and get back on track and proactively look for jobs that will be less stressful and one of my old sergeants even said he had a vacancy on his team if they would let me go. But now I'm just a snotty, red eyes mess. I feel like I've failed in every way imaginable.

I'm
Sorry snoopy :( I literally had the exact same exp. It was so hard. I felt like I had worked so hard and been a great employee and when I was down instead of support I just got shit. I felt hurt and betrayed. It was really really hard when it went on and it was the last shit I needed to deal with. But like all rm stuff, u come out of it. And ur stronger and u realise what's imp in life. PM me if u need to, because I know how hard I found work side of stuff ontop of rm. Can u see a counseller? She helped me understand it for me...promise u-it will be better and easier. And it will be a bigger deal to u than them. they will forget about it 1 day! Xxx

Aw trying, lets hope you will have two things to celebrate then.

Snoopy so sorry you re getting this crap. How hugely insensitive for them to be questioning this, i m so cross on your behalf and can t believe it can happen. You totally have a right to feel the way you do, anyone who has lost three babies would do, but people who haven t been there don t understand and think its 'just a miscarriage'. Please don t feel a failure, the fact you are still trying (and able to actually go to work) shows how strong you are and when you do suceed (and i really feel you will get there) then all the work shit will become so unimportant. Big hugs.