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RESPONSE trial thread

984 replies

Marchgirl · 04/05/2015 19:50

For anyone who had joined or is thinking of joining the RESPONSE medical trial for recurrent miscarriage

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Choccywoccydodah · 27/05/2015 16:55

Just nipped on, JOY JOY JOY! Double congrats to you!! Amazing news!! So so happy for you!

Girlie, have you had a scan today or have I missed that?

Indie fabulous you're off the jabs now! Enjoy your hol and telling everyone!

Welcome sushi, so sorry you're here :( I'm down the road from you too in a town beginning R :)
I think amazing things about cov, D and L are amazing and I truly believe like Louise I have the drug. After 8 consecutive early losses it's too much of a coincidence. 18+4 today and I felt a proper kick 2 days ago, not just the butterflies. I was in bits as never ever thought I'd feel that again x

clairemorgan81 · 27/05/2015 17:27

how wonderful choccy feeling baby. best feeling in the world xx

girliesaints · 27/05/2015 19:03

Amazing Choccy. Enjoy every moment x

Scan isn't until Friday this week, thanks for asking x

LouiseM1987 · 28/05/2015 11:10

Hi ladies I'm not sure if anyone can help but thought I'd just ask... I'm having really bad difficulty sleeping at the minute because my brain is constantly on. I'm exhausted to the point in at work now and on the verge of tears because I desperately want to sleep ! Can anyone recommend anything that actually works ? I'm tempted t go to boots to buy a pillow spray that's £16 (as its he only one that says safe during pregnancy) I've been having bad pains so the lovely trial nurse got me a scan yesterday and everything is fine which I thought would help me sleep but it didn't ! I'm so tired I'm ready to have a hissy fit/crying fit/melt down hope everyone else is ok ! Xx

Marchgirl · 28/05/2015 12:21

Do you do acupuncture louise? There are points they use that can help sleep, and also with anxiety etc, which might indirectly help. Along a similar theme, have you tried the headspace app? They have a free download of 10 x 10 minute meditation sessions that I found useful. To join fully is a bit pricey but these are free and you can just use them over and over again

My only other suggestion would be to do some physical activity if you're able (even just walking). I often find i am mentally exhausted so feel incredibly tired but not physically tired enough to sleep. I feel for you. Everything seems so much worse when you're tired x

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Joy2713 · 28/05/2015 13:07

I always have trouble sleeping (up until I feel pregnant and now by 9pm every night I'm out if it) sounds easy but just concentrating on taking deep breaths really helps me, as i stop thinking, and my nan always used to say starting from the toes up do like relaxation techniques, whether this helps I don't really know! Glad everything is alright otherwise though.

Good Luck for tomorrow Girlie, got everything crossed for you xx

clairemorgan81 · 28/05/2015 14:02

March what kind of acupuncture do you have?x

Kazz2112 · 28/05/2015 14:45

I started to see a hypnotherapist after my third miscarriage to get over a blood test phobia. It's really helped and I still use her cd to listen to now. It sends me to sleep in minutes and helps with any anxiety. Something similar would help. Hers is on Sound cloud which you can download on your phone.

LouiseM1987 · 28/05/2015 14:48

March yes I do have acupuncture I'll mention it to her next time I go. Joy I had tiredness up until 2 weeks ago and I've now got no symptoms I'd give anything for my tiredness to come back just so I can sleep ! Kazz I'm going to look in to it tonight thank you. Also going to buy that pillow spray later. Xx

Marchgirl · 28/05/2015 14:59

claire, she's just a normal acupuncturist although she does have a special interest in fertility and women's problems. She normally puts points in for stress/anxiety, hormones, sometimes sleep and today my liver was a bit hot (!) So she put some in for that. The hormone points I feel especially work (really helped flush them out last week after progesterone) and just feel very relaxed after going there.

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clairemorgan81 · 28/05/2015 15:09

I'm going tomorrow for my consultation and first session March. I feel a bit nervous for some reason. I've just spoken to her and she wants blood results/trial info etc she mentioned progesterone and said she can do bloods??x

Marchgirl · 28/05/2015 18:25

Never heard of them taking blood before claire! But glad she is interested in the trial etc.
I presumed my acu lady would be against me taking a load of chemical hormones but she's actually quite open to mixing Western medicine with TCM

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Kazz2112 · 28/05/2015 18:26

The joys of TimeHop. Just been reminded that it's exactly a year ago today since we found out about my first mc. (Obviously didn't plaster that news online but we were on holiday in Jersey so that's the give away).

Been an absolutely horrific year with the 3 miscarriages, mother in law having two strokes and lots of other little bits of bad news. Feeling more positive atm and hoping that this is the start of positive happy times! Just being on this group has helped massively. Thank you!

clairemorgan81 · 28/05/2015 19:19

I didn't think taking blood would be something she would do. gosh I hope she's ok!!x

philippa88 · 28/05/2015 20:17

Evening!

In response to trying to sleep, as whipped as he sounds, my oh always gives me a back rub! Nothing full on, just a light tickle lol - I'm asleep within minutes!! Maybe worth a try :)

Anyone who's using the injections right now - at your appt's when they do your blood pressure and temp, is your temp slightly raised? Mine has been twice now and it's possibly a side effect of the drug - I like to think so anyway lol!

Going on holiday for a week on Monday and the day after we get back I have my first scan! I'm excited but I keep holding back cos I kind of can't seeing myself making it that far :/ I'm feeling positive and as of today this is my longest pregnancy but I can't help but worry!

How are you ttc ladies?? Xx

Indiedog · 28/05/2015 21:01

Hi Phillippa,

Glad you are feeling well, and positive. It's our last night tonight, and we fly back at midday tomar!
As far as my dating scan I am 13 weeks yesterday, and trial is 13 Monday! I am amazed, and I think that takes me into the second trimester BlushBlush

As for injections, my temp was always ok. Who knows lovey, I guess we all react differently. I can't believe we might have to wait until the whole trial is complete before we find out what we've had.

I think I am going to book a private scan for 16weeks, as I can't wait till 20!! Plus I still need to know my bump is ok. Also, I might ask if they can tell the sex, and put it in a sealed envelope, and I will give the envelope to a friend to keep! Untill the official scan!

So glad you are going to have some time out, and so glad you have got this far.

Hope everyone else is ok
Girlie, I will be thinking of you tomar, keeping everything crossed for good news.

Xx

sizethree · 28/05/2015 21:24

Dropping in to wave to you all. Not been great at keeping up with this speedy thread this time you chatty lot!
Also wanted to say to girlie that I've been thinking of you lots this past week and wish you a peaceful night's rest as you can get under the circumstances and will be sending the best strength and positive vibes to you tomorrow. Please let us support you in any way you need. Massive hugs. X

girliesaints · 28/05/2015 21:50

Thanks ladies for the wishes. Scan's at 10.30am and booked in for surgery later tomorrow so hopefully home in time for dd's bedtime.

Kazz2112 · 28/05/2015 22:05

I hope no surgery will be required Girlie but I totally echo Sizes words. We're all thinking of you and crossing our fingers for you and are here for support whatever support you may need.xxxxx

LouiseM1987 · 29/05/2015 06:58

Good luck girlie, I echo both size and Kazz
I have everything crossed for you and your dh. Xx

philippa88 · 29/05/2015 07:18

Good luck girlie - thinking of you xx

Indiedog · 29/05/2015 07:41

Good luck girlie. Thanks Xx

Choccywoccydodah · 29/05/2015 09:07

Thinking of you girlie, praying all ok in there xxx

Indie I went from 14 weeks as second tri, there's so much conflicting info online so I though 14 was safe lol!! Even though officially I'd say 13 weeks 2 and 1/3 days Grin

Choccywoccydodah · 29/05/2015 09:08

Re sleep Louise, I seem to have good and bad nights. Yoga helps a bit x

clairemorgan81 · 29/05/2015 09:26

thinking of you girlie good luck xxx