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Original poster

RESPONSE trial thread

984 replies

Marchgirl · 04/05/2015 19:50

For anyone who had joined or is thinking of joining the RESPONSE medical trial for recurrent miscarriage

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17
LouiseM1987 · 19/05/2015 15:52

Philippa i can't say anything other then try not to which as we have all been in that situation it's hard for us not to be in scared/shitting in frame of mind. Every little thing is going to play on our minds, earlier I was punching my boobs and nothing. All I can say is we are here for you when your happy or sad your are not alone sending big hugs xxx

Original poster
Marchgirl · 19/05/2015 15:58

Big hugs philippa. Completely understandable that you are worrying after what we've all been through. Just take one day at a time. And keep thinking "today I am pregnant". We're all here for you x

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philippa88 · 19/05/2015 17:06

Thank you for your kind words. I'm just so angry that I've lost my positive attitude, and that in turn makes me cry more. My oh tells me it's all going to be ok and work out this time, yet I snap back 'I've heard it all before and all 4 times it was not ok'. It's like I can't let this black cloud go and I know it's worse for baby but I can't shake it off. It's literally like I'm waiting to bleed, the cramp to me signals it's going to happen and I have that horrible feeling that if I lose it, then I'll be kicked off the trial then how will I ever have a baby. Sorry to be such a misery it's just it all seems to have hit me today and realisation has scared me. :( xx

Kazz2112 · 19/05/2015 18:35

Awh hun! Massive hugs. It's so unfair we're all having to go through this. It makes what time an exciting time really tough. Try to surround yourself with comforting things and get an early night. I find things always seem better after a good nights sleep.

Also bear in mind... your moods are going to be all over due to your hormones. Which is a good sign!

clairemorgan81 · 19/05/2015 19:23

so sorry your feeling so down philippa. it's so understandable. Hope your feeling a bit better now. sending you lots of love and strength xx

girliesaints · 19/05/2015 20:07

Scan is at 10.30am. Hopefully we'll know either way tomorrow. Philippa wish you the best for tomorrow.

Sorry ladies not really in chatty mood tonight. Feeling very low/ scared/ resigned to the enviable.

Original poster
Marchgirl · 19/05/2015 20:53

Best of luck for tomorrow girlie and louise. Keeping everything crossed for a good outcome for you both. We're here whatever happens xxx

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clairemorgan81 · 20/05/2015 07:00

lots of luck for today girlie and philippa . hoping all positive news x x

Indiedog · 20/05/2015 07:25

Good luck today girlie. Positive thoughts.

It's a new day Philippa, another step along. I hope you feel a little better, as each day passes hopefully you will feel more at ease.

Xxx

clairemorgan81 · 20/05/2015 07:41

so sorry its louises scan today not philippa!! I can't keep up! good luck Louise and hope your okay today philippa x

Indiedog · 20/05/2015 08:11

Claire, I can't keep up either.
Good luck to you as well Louise, keeping everything crossed for you, and girlie xx

Joy2713 · 20/05/2015 08:23

Good luck today Louise and Girlie :) xx

sizethree · 20/05/2015 08:46

Thinking of you both today louise and girlie

Original poster
Marchgirl · 20/05/2015 09:50

Thinking of you louise. Hope it's good news x

Everything crossed girlie. Hope you got some sleep x

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philippa88 · 20/05/2015 09:50

Good luck today girls, I'm thinking of you!!

Today I'm feeling slightly better, more so after reading the 2 main side effects of the drug are headaches and menstrual cramps.. Maybe that's what's giving me cramp?
Those who've been on the injections, did you get cramp?? Xx

Original poster
Marchgirl · 20/05/2015 10:25

Glad you're feeling a bit better today philippa. It's going to be a long road but you'll get there.
Af arrived (finally). Hoorah.

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sizethree · 20/05/2015 10:54

phillipa yes I got cramps and backache in the early weeks. I conforted myself with thoughts that the pregnancy was burrowing in securely. I got a few headaches too but upped my water intake to three litres a day and that fixed them. (But makes for more trips to the loo and wipe inspections!)

clairemorgan81 · 20/05/2015 11:02

so pleased af arrived March I'm sure we were only a couple of days off each other last month as well Smile x

girliesaints · 20/05/2015 12:13

Had scan and it's still inconclusive. The egg sacks have grown but the yoke sack is bearly visible and there's no heart beat visible. Got to go back next Friday to have hopefully the final scan but it's looking like it's not viable. If it isn't I'm then having surgery next Friday.

Original poster
Marchgirl · 20/05/2015 12:19

So sorry to hear that you're still in limbo girlie and that is not looking good Sad. Hope your dh is looking after you x

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Kazz2112 · 20/05/2015 12:42

Really sorry to hear that Girlie. Hope next week comes quickly for you xxx

philippa88 · 20/05/2015 12:50

So sorry girlie. Don't give up altogether though, you never know. At least next Friday will bring a conclusion. Hugs xx

Size three - were the cramps like actual period cramps? They've been on and off today but I defo have that low down achey feeling :/ xx

sizethree · 20/05/2015 12:58

girlie I'm really sorry the news wasn't more definite. Not knowing either way is the worst torture. Wishing you a very speedy week and lots of support in RL and here.
phillipa I had lots of low down cramping and back pain with the injections, up to about week 9 I think. But with my miscarriages I never had cramps until after the spotting /blood started. I also got weird whooshing sensations in my boobs too about 45 mins after injecting.

girliesaints · 20/05/2015 13:23

Thanks ladies. Disappointed it's not more conclusive at this stage as if it's not viable, want to move on.

Response team have been great as technically still on trial until a definitive answer. They're putting the wheels in motion that if it's not successful that I may be able to transfer to some other local trials the hospital are running.

Louise, any news? Hope it's better news than me.

clairemorgan81 · 20/05/2015 14:12

it's so rubbish having to wait. I waited 3 weeks with my first mc then another 2 for d&c and its horrendous as you can't even begin to move on. I hope next Fri brings better news girlie.x

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