Immune / natural killer cell treatment when ttc or pregnant (aka the 15th pred thread)

[sunnyday01]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

That does sound unusual. Was it def EWCM, not just clear CM? Are you using any monitors to see if it was a late ovulation? I hope you get answers soon.
I was finally getting on a more even emotional keel and then woke last night with a bad night sweat and just felt 'not pregnant'. My slight symptoms seem gone and I'm only feeling tired due to lack of sleep today rather than pregnancy fatigue. I'm really worried. I've a scan here on Fri late morning and meant to be in London for another Mon but not booked travel yet as so anxious. Most things I've read online suggests this could be a drop in hormones prior to miscarriage ... :(

Rosa - I'm sending you massive positive vibes. Do some positive visualisation. And remember, remember, remember it could very likely be the pred. Do not give those negative thoughts any space in your mind. I know exactly how hard this is and I'll be here rooting for you all the way. I cannot wait until Monday for my scan when I'll hopefully find out too. I'm just hoping that my little bean is cooking away nicely in there and yours is too.
Drttc - I hope you get a better answer soon. I tested at 11dpo with an Internet cheap stick and it was a bfn, then 12 dpo with a frer was a bfp.

Thanks Seeking. Positive vibes back at you. It's just so hard as feel so different. Also have twinges that feel more like the cervix than uterus..which assume can't be good at 8 weeks. Arg.. Positive, positive. I'm hanging off to book London until Fri night after scan. But need to arrange intralipids today. It's quite difficult project managing everything isn't it?!

It's very confusing at times! How many lots of intralipids have you got to have Rosa? I'm booked next Friday. Quite handy that they come to your house now though!
Just take it day at a time, one little milestone at a time. Get to Friday and then think about the next step. I find looking too far ahead terrifying! I'm just concentrating on Monday and then I'll think about seeing DrS and intralipids.

I know, I've had more crampy feelings, quite low down, tonight though. So so so worried. Scan on Fri can't come soon enough. I've just had one intralipid and due another very soon and at 12 and 16 weeks.
I know what you mean about small milestones. Mine are getting past each toilet visit right now! Que sera sera... I wish the future was our to see though, just for a moment even x

Good luck tomorrow Rosa - will be thinking of you and sending you lots of positivity x

Good luck Rosa.

Good luck Sasha!

Thinking of you today Rosa.

Xx

I'm (we're!) ok still so far.... HB and now apparently 8+6 which is amazing on 2 levels. First- wow I'm so so shocked and relieved- tears of relief .. But still need to keep excitement in check as still early. Second- Based on first day of last period I should be 8 tomorrow. But that makes me 9 tomorrow?!! How's that possible???
Thanks so much for thinking of me and checking in. Hope others are good and good news comes your way soon xxx

Wow that's amazing Rosa!! So happy for you! Told you all would be fine!
Also I think in the first few weeks baby can have growth spurts but he time you get to 12 weeks he/she might have settled back to your original edd. Or you could have ovulated earlier than you thought?
Glad you're feeling more positive.
My turn next .... Here's praying!

Everything crossed for you Seeking!
When is the scan again?
I'm not sure what is going on as had SO and this would mean conceived before the ovitrelle- infact think would make it an immaculate conception as pretty sure I was nowhere near DH at that point! Bizarre .... But hopeful nothing to worry about. So I need to remember .. All the pains I felt to date were not bad signs, or the days I felt absolutely not pregnant, or the night sweats which were just like those I got before my miscarriage. There really is no way to predict anything is there?! X

Mine is Monday afternoon (6+2). Beginning to feel the nerves kick in.
Did you have to have intralipids rosa?
I'd just ignore everything you're feeling as ultimately you can't tell what's going on in there one way or another. Just think positive and if your that way inclined send a little prayer upward.
Have you got another scan booked in?

Ignore the intralipids question... Just read back

It is nerve wracking but I'm sure (certainly hope!) you'll be ok. Most news is ... It's just when it's not it's devastating so we focus more on they. I've another scan Mon. Shame in a way as seems unnecessary but need to see Mr S so can get ongoing prescriptions. It just adds lots of expense as we travel from Edinburgh and stay over / plus of course the cost of scan etc. but totally be worth it if all keeps going well. And I will appreciate his most expert view etc.
you'll feel much better Mon eve after speaking to a pro. X

I'd question the need to have the scan with DrS, he said he's happy for me to be scanned by NHS but will still want to see me fortnightlyfor prescriptions and bp checks etc. If I can get scanned by the NHS and just show him the u/s report I'm going down that route - save myself a few £££. My local epu have said they'll scan me fortnightly so seems a bit ridiculous.
Fingers, toes and anything else crossable are crossed for Monday!

Made my day to hear your news Rosa, so so glad its still all going ok.

Good luck for monday seeking - rooting for you too. x

Hey guys

Sorry for the huge radio silence. I've needed a few weeks to sort my head out and come to terms with my new plan! But and u have all been in my thoughts daily (literally) my virtual "friends".

Rosa-so glad for u. I've been logging on mainly to see ur progress Really over the moon. Am sure things will keep going well and it's only a few more few more weeks of madness u will need to tolerate and hopefully after u will feel calmer past 12 weeks although I'm sure fear will never go.so glad.

Hula happy bday! Hope u had a fun day. Well done for being brave taking the humira and I hope it works it's majic for u soon.

Determined im glad the break did u good. Postive mental attitude and all that....I hope when ur ready to go again u feel strong and ur body feels ready. Hope u been having lots of laughs :)

Seeking, good luck for ur scan. Drtcc, good luck for ur next cycle!

Hope amazing, ur nearly there! So happy for u. Will be our first graduate from the bunch of us! Hope ur getting some sleep.

As for me, I start my ivf cycle in 2ish weeks. The ivf clinic discovered a few more issues, meaning I need metformin and hydroxychloroquine (12 weeks) and clexane throughout pregnancy and 6 weeks post natal too for the clexane. Like NK cells, these are contresversial tests/ not loads of evidence and hence why Shehata prob doesn't test for them. But now I don't really feel like his patient anymore! I'm in a totally diff world. So I'll be taking pred intralipids asprin clexane metformin and hydroxy!!! The whole ivf process is so confusing! Just going to take it week by week, and hope I manage it all with work. It's quite intense. Wish me luck!

Xxx

Thanks Hula - having stop myself from changing my internal theme tune from que sera to zipadeedooda!

Trying - really good to hear from you .. I know how it is when you have to learn about yet more stuff and another programme.. It's daunting but it sounds like you're in great hands and they are covering all bases... Plus 2 weeks is no time before things start happening! Really looking forward to hearing how you go and everything crossed for you of course :) loads of luck xxx

Has anyone had anything deliered from healthcare at home? Do they do weekends and after work hours too?

Ps thanks rosa. Will keep u guys posted. Not really expecting it to work out first time around, but there's always hoping. Feels a bit unfair I have 2 hurdles to jump now. I feel stressed about getting a bfp and wonder if it will ever happen and if ivf will work! and then I'll be a mad woman when I do!!

Hi Trying - good to hear from you ! Exciting you ll be starting soon but i understand how daunting it can seem too. Good plan to just take it a week at a time. Do keep us posted on progress.

My humira came from healthcare at home and if you order by 3 you could get stuff next day and chose 7-1 or 1-7 i think. They did deliever on a sat morning too. It does need signing for. It did come in a plain box but mine needed refridgerating straight away so i didn t dare send it to work in case someone else tried to be helpful and opened it ! Good luck.

Thanks hula!
Out of all the crap I'll be doing that was stressing me out the most
Hopefully I can plan it for a day when I'm not at work!
Have a lovely weekend.

Also don t know if you ve injected yourself before but i did mine over my stomach and it was fine.

Thanks hula. How r u feeling about trying? Are u still going for 6 months more and then stopping or is that still up for debate?