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Original poster

TTC or pregnancy on prednisolone or similar part 11

999 replies

Buzzybee123 · 19/08/2013 22:25

This is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

OP posts:
teamdozie · 17/10/2013 15:59

Basically yea! I've never mc on my own I've always been told during a scan and had an erpc!
My next scan is in two weeks with Dr S but Louise said that if anything happens to give her a call!

I'm trying not to think about it! But I'm to expect a bit more bleeding because if the first sack and if I get anymore heavy then I know what it is!

Xx

Original poster
Buzzybee123 · 17/10/2013 16:03

team big hugs

sue I hope all went well

free again so sorry

OP posts:
teamdozie · 17/10/2013 16:06

Thanks Baking yea I have a scan for 8 weeks on the 31st!

Thank you! I'm staying so positive! I reckon this baby will surprise me! Or here's hoping! X

teamdozie · 17/10/2013 16:21

Thanks Buzzy xx

scooterchaser · 17/10/2013 17:20

Hi, a long lost friend here. Free, duggs, sue, choccy, ari, iggi may remember me. Had a quick look through the latest and delighted to see good news for choccy and that free is bravely and wonderfully in print!

Duggs, free,sue I am so so sorry for your recent heartbreaks. In solidarity, having one of my own at the moment...9weeks with my ninth pregnancy (after 7 losses) and bleeding today without warning. Know theres a chance but hasn't ever panned out well before. Possible scan tomorrow. Waiting game begins.

Big congratulations to kittens who I see made it to the light end of the tunnel :) With everyone else, still remain hopeful but think its surrogacy next for me, can't do this again...

Waves to everyone else. I will read back a bit more carefully and update myself with your stories.

freelancegirl · 17/10/2013 17:37

Ahh scooter, lovely to hear from you but so sorry you've had bleeding. What did the last scan show and a what week was that? Hopefully the bleeding is that routine bleeding we all hear about but never seem to have here - rather we just seem to get the bad bleeding. Let us know what happens tomorrow x

brownstag · 17/10/2013 18:06

Wow Team! Was this a natural pregnancy or IVF? I like your attitude. Fingers crossed for you. I sometimes wonder whether positive attitude does make a difference, as after several miscarriages I finally went to see Mr S, and with pred the pregnancy with my DS went to term. At the time, I had total faith in the treatment (I'd never met anyone else who'd miscarried on it) and so I relaxed.
And fingers crossed for you also , Scooter. I had routine bleeding with my DS (as well as bad bleeding with all the mcs!), at 8.5 weeks and 26 weeks, so it is possible.

suemays · 17/10/2013 18:19

Hi all, back home after my Erpc which went as well as it could. It was the least traumatic one that I have had done, probably as I took a mate with me who kept my spirits up. I only had one little cry when I was being anaesthetised but apart from that I felt numb to it all. Looking forward to forgetting about TTC and pregnancy now until January so I can have a few drinks! Anyone care to join me????!!

team sorry to hear about your scan but good for you for staying positive! Keeping everything crossed for you.

scooter lovely to hear from you (in the wrong circumstances) and again hoping that the bleeding turns out to be not another miscarriage. I was thinking about you last week funny enough as you are another 'old timer' and I wondered how you were getting on.
It's very weird that myself, duggs pebbles and you seem to be pregnant together and then sadly all lose them. Little did we all think that we would still be in the same position so long after our meet ups. Makes me very sad.

free any reason why you won't have the products tested? I would think you would qualify. I am having karyotyping done so hopefully it will turn something up.

brown I remember mr s telling me that he doesn't believe in clomid but I don't tend to have lining probs so would be keen to try it. Loads of women conceive on it so it might be worth a go. I have a few concerns with letrozole as I have had 3 cycles on it and 3 failed pregnancies, 2 were on superovulation. On each go my cycle has been lengthened to around 20 days to ovulate which I know in Chinese medicine is on the border of a healthy egg for successful pregnancy. I normally ovulate on day 12 so I am not convinced that letrozole is giving me the best quality eggs. It's all speculation though!

suemays · 17/10/2013 19:12

I can't remember but is anyone else on here in the first trimester apart from team and scooter? It was helpful when we used to have the list??? I have lost track on 2nd and 3rd trimester ladies too apart from buzzy and choccy. Apologies if I have left anyone out. It seems that there have been a lot of miscarriages lately and not many successes. Maybe we should resurrect the list unless anyone objects??

Bakingtins · 17/10/2013 19:36

I am. 7 weeks today. It has not been a positive week for the thread, has it Sad I am not feeling the love and positivity for the little white pills at the moment.

MistressIggi · 17/10/2013 19:36

Sue I hope they sent you home with some decent drugs Smile Thinking of you.
Team what a traumatic scan! Sorry about the miscarriage and also keeping everything crossed for the twin - I don't know how negative they were with you, but right size and heartbeat sound like very positive signs to me.
I waited ten days once to start mcing after a bad scan, the next time the same thing happened I had an eprc and it was much "easier" if anything can be easy. Let us know how you get on Free

Scooter! I have often thought about you and wondered how you were getting on - I imagined you might have stopped ttc I think. How much bleeding are you having? I had dc2 over a year ago and you'd-laugh-if-you-weren't-crying at how often I had bleeds during that pregnancy, including ones caused by (ahem) haemorrhoids, and one from treatment for thrush. We all know blood is not a good sign, but it's not always what you fear most. Best of luck to you.

Must be due some good news on the thread surely??

MistressIggi · 17/10/2013 19:37

Cross posts with Baking - 7 weeks is good news - pupo!

Bakingtins · 17/10/2013 19:58

Pupo??

MistressIggi · 17/10/2013 20:52

Pregnant until proven otherwise!

Bakingtins · 17/10/2013 22:07

Smile thank you

suemays · 17/10/2013 22:47

baking I had a feeling that someone else was pupo! Have you had a 7 week scan yet??

Bakingtins · 18/10/2013 07:36

Had a scan at 5+4 to make sure sac in right place before starting clexane, but too early for HB. Next one is at 8 weeks. It is normally obviously going wrong by then though don't tend to actually MC until 9-10 weeks, so that feels like the big hurdle to get over.

Bakingtins · 18/10/2013 08:03

Sorry sue that was a bit mememe. I don't function until I've had my one cup of actual tea for the day. Hope you have managed to get a decent night's sleep and are coping ok.

scooterchaser · 18/10/2013 09:31

Hi,

sue didn't spot your recent erpc, hope you are feeling ok this morning.
team and baking positive thoughts your way.
baking I am on fragmin, similar to clexane? Though no other drugs as pred failed for me three times. Fragmin was the only thing I haven't tried.
brown remind me what stage are you?...without the list it's difficult to know, are you ttc?

free I haven't had any scans opted out of 6 and 8 week ones because they found heartbeats and I lost them a matter of hours afterwards. Always felt it was disruptive, trying to get a scan today, if not Mon as I am about 9 weeks now and should be able to get an external scan.

Thanks for the reassurances about 'normal' bleeding. Am in less pain in the tummy this morning but had crashing migraine type headaches all night, never a good sign for me and I seem to bleed every time I stand up.

Remaining PUPO, hope the UPO doesn't come too soon.

suemays · 18/10/2013 09:34

I actually had the best nights sleep since getting pregnant. It sounds awful but I feel like a huge weight has been lifted off my shoulders now I have had the Erpc. No more frantic knicker checking and checking dates etc or worrying if I had taken my tablets! It just takes so much time as I feel like I would have wasted 6 months if we do decide to TTC again after Christmas. Wouldn't be a problem if I was 21 rather than 41.

suemays · 18/10/2013 09:39

scooter good luck with the scan today. Could be you have twins in there and one is miscarrying? I know you are probably expecting the worse case scenario as its hard not to when it happens over and over again for us. Are you with mr s with this pregnancy? Have you tried hydroxychloroquine?

teamdozie · 18/10/2013 09:57

Hi Sue Hope you are ok.. i know that feeling you are experiencing, i felt that last time.. its so weird..

Scooter thanks for the wishes hope all goes well for you today.. keeping everything crossed..

Mistress they said that the fact there was a tentative heartbeat and a foetal poll was all a good sign and in my favour BUT the fact that the sack was an abnormal shape could pose a threat.. the sack was round but seemed to have a bit sticking up inside, although Louise did say that when the Dr moved the probe it seems to change and look more symmetrical but we just have to wait and see now..

Brown it was natural conception, this is my 6th pregnancy and 3rd twin pregnancy.. This is the first time that i have felt so strongly about being positive..
Normally my head says its all ok but deep down i know its not but this time its the other way round.. Is it a coping mechanism? Have i relaxed cause I'm doing something different? Who knows..

Whatever it is im holding on to it tooth and nail... i have no option but to..

xxx

scooterchaser · 18/10/2013 10:06

sue know the feeling! feel calmer since it started to go wrong. Going wrong is somehow less frightening than the prospect of it and all the frantic checking and worrying. This experience turns us into strange creatures! Glad you got some sleep finally.

Yes, did try hydroxy twice I think. I am a complete anomaly to Mr S, he has never had so many treated failures, he wanted to throw the kitchen sink at it this time but I wasn't going to put myself through all the drugs that never worked before.

Doesn't look like I can get a scan today. Going to be a long weekend.

scooterchaser · 18/10/2013 10:07

team crossed posts with you. You sound amazingly strong, hang in there.

VillageMum · 18/10/2013 11:23

team and baking sending you positive thoughts. Really admire your courage team Smile

Sue I felt exactly that after each ERPC - sense of release at going back to 'civilian' life, just like a soldier being demobbed and no longer having to check for sniper fire, random ambushes, etc! Hope you are still resting up.

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