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TTC or pregnancy on prednisolone or similar part 10

999 replies

roseandroli · 14/02/2013 10:17

We are now on part 10 of this thread! I hope you can all find this. This is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Links to earlier threads:

Part 9: www.mumsnet.com/Talk/conception/a1552980-TTC-or-pregnancy-on-prednisolone-or-similar-part-9

Part 8: www.mumsnet.com/Talk/conception/a1492407-TTC-Pregnancy-on-Prednisolone-or-similar-part-8#33842381

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

OP posts:
ConeyIslandBaby · 31/07/2013 13:50

Thanks Stogan x Silly isn't it? I knew to expect it but I still got that awful sinking feeling when I saw it. Even after such a positive anomaly scan experience yesterday. I need to give myself a stern talking to and buck up!

Have you tried peppermint tea for sickness (or a ginger biscuit) Grin? Really helped me in first 12 weeks.

mollieboo · 31/07/2013 15:05

Hi ladies

Wow there is a lot going on here, lots of good news which is wonderful.

clabbage I'm thinking of you lots today, happy birthday to Harry x It is so hard to get through birthdays and anniversaries. Great news on your Harmony scan, so glad its going well for you this time.

cartoon and buzzy so glad all is going well for you both too.

choccy great news about seeing and hearing the heartbeat on your scan, long may it last.

duggs wow wonderful news getting a bfp just before starting ivf!

coney glad your anomaly scan went well. It must be very frightening having the bleeding even when the hospital scans show all is well, I do feel for you. I'm due on 23 December so just two days behind you.

baking good luck with the results of your testing, will be good to get some answers, have heard great things about Prof Quenby from the internet.

stogan great news re your pregnancy going well. I would have taken the pred too as a precaution! Sorry that you're feeling rough though but hopefully the symptoms will wear off when you get a bit further along.

I'm now 19 weeks along, I worry a lot. My hospital is scanning me every week which is really good of them. I even had to go for another private one this week which is two in one week as I was so worried! I can't feel any movement yet but will just have to be patient. I've got a very important scan on Friday - 20 week anomaly scan and checking the blood flow through the placenta. When I gave birth prematurely to Oscar it was because of problems with the blood flow through the placenta, so I will be really nervous and hope and pray all will be ok.

Waves to anyone I've missed x

Stogan · 31/07/2013 15:06

Believe me coney I've tried everything and the ginger biscuits are my best friend also hot water with lemon is helping my mega bloat lol.

Hope ur feeling ok Hunni x

Stogan · 31/07/2013 15:08

Wow mollie 19 weeks got everything crossed for you and don't worry I was same with no 1 either being scanned or listening to hb at least once a week. If that's what helps you Hun then you bash on, only you will know what's best for you xx

ConeyIslandBaby · 31/07/2013 16:49

Ah Mollie we are close together! Good luck for friday, I'm sure it will all be fine. I can't feel any movement yet either, but my placenta is anterior so may be cushioning kicks at the mo. He was certainly wriggling about on the scan yesterday, its amazing I can't feel him yet!

Stogan, I'm feeling better thanks. Had a shower and brushed up and have decided to go out and try and have some fun and stop worrying for a few hours... Hope your sickness subsides soon Smile

freelancegirl · 02/08/2013 10:12

Wow ? so much has happened!

Huge congratulations Rose, hope it?s all going well and Rumi is thriving.

STOGAN!!! OH my god ? our first Thread Baby and here you are again! Wow. Congratulations. Maybe symptoms are so horrible as you?re not on all the Pred this time as that is said to mark it isn?t it. Such great news though.

Cartoon ? sounds like you?re going from strength to strength. Hope the wait for the 20 week scan is not too long.

Choccy ? lots of exclamation marks for you too (!!!) so lovely to hear the heartbeat is going strong. Do you have a 12 week scan scheduled?

In a complete overload of exclamation marks ? Duggs!!! Wow. Everything is crossed for you.

And Clabbage, and Buzzy and Cartoon and Coney?.and anyone I?ve missed. Such great pregnancy news on here lately, it?s really good to see a bit of positive news.

Mollie good luck with the scan today ? we will be waiting for news.

My news is (no! not that) I?ve finally managed to make some headway with the documentary and have a really good editor on board. We?re putting together a trailer to help us get some funding to edit the final version and hopefully shoud have it completed in a couple of months. Everyone I have shown it to so far has shed a few tears. So far it just concentrates on recurrent miscarriage as I haven?t found a person who has ?only' had one miscarriage to talk to yet. It?s not like you can just post on the mc boards and say hey ? come on camera and talk about this devastating experience you?ve just been through. But I am thinking recurrent miscarriage might be a good focus for it anyway.

I?m tryng to think of a title for it, if any of you are feeling creative please have a go and PM me.

Lots of love to everyone and so good to see good news and also our first RETURN for a second go (on the thread of course, I know there are people here who are on their second Pred Babies).

Also if any more of you would be up for interviews do let me know. I have wonderful interviews from Sarah and Jaffa already.

mollieboo · 05/08/2013 19:15

Hi ladies, how is everyone doing?

I had my 20 week scan along with bloodflow check and everything was fine :-))) Was in tears in the first part as the head was measuring abnormally small, had to go for a walk as the baby was lying on his front, then after half an hour we went back in and right at the end the sonographer re-measured his head and it was fine! I was in bits thinking something was wrong, what a relief.

I've bought an Angelsounds doppler now, great for reassurance at home listening to the heartbeat.

coney hope you're feeling ok and the bleeding has stopped? I've got an anterior placenta too so that is probably why I can't feel anything either.

free would love to see your documentary when its finished.

Waves to all.

ConeyIslandBaby · 05/08/2013 20:50

Mollie, I'm so pleased for you. What a relief. Sounds like a stressful start, how awful for you. So glad everythings ok. We can stop worrying now eh? Ha ha ha Grin

Bleeding has stopped thank god. I went to the ante natal assessment unit today to get a listen in which was really reassuring. As the midwife pressed the doppler to my stomach he did this almighty karate kick which I actually felt for the first time so that was amazing. I'm going to spend the evening pushing my tummy around, see if I can feel him again!

Hope everyone is doing ok x

teamdozie · 06/08/2013 20:58

Hi everyone

long time no post..

first congrats to everyone on all their good news.. too many to do it individually..
it gives me so much hope..

xx

freelancegirl · 07/08/2013 14:46

Mollie that's amazing news! So good to hear it's all going so well.

Lovely big kicks too Coney and glad bleeding has stopped.

Welcome back teamdozie!

It's quiet on here at the moment! I just wanted to let you all know I've set up a facebook page for the documentary. I know I am facebook friends with some of you already. PM me if you want details and I will send. It would be lovely to have you on there and of course I can keep you updated x

teamdozie · 07/08/2013 15:03

Thanks Free

Whats news with you? Other that the documentary?

Sorry i havent been on here for ages.. what is your documentary about? or is it obvious? Lol

XX

freelancegirl · 07/08/2013 15:33

Recurrent miscarriage and my treatment! I've been filming my experience, interviewing others and interviewing a few of the experts.

teamdozie · 07/08/2013 16:22

WOW Free

Thats Amazing....

Hubby and i talked about doing something like that.. but you know how life gets..

Thats brilliant i cant wait to see it and i do hope it gets put on national TV..

freelancegirl · 07/08/2013 16:50

Are you in the media too TD? I'm looking to PM you the details but can't see the option on my phone. I can reply if you send me a message though.

cartoontrickster · 07/08/2013 18:09

I am rubbish at keeping up on here!
free its amazing what you are doing! I really don't think theres enough awareness. I hate as wellbthat many medical professionals still don't believe in the nk cells. I'd love to do an interview but think I'd be too camera shy. Confused
mollie glad your scan went well even though they did scare you half to death to start with. I hope you can be calmer now!
stogan that's wonderful news. a 'normal' pregnancy!
rose I hope your little one is doing ok. is he home yet?
urgh! this is trouble with posting from the app I can't check back to see what I've missed. so love and luck to you all.

Buzzybee123 · 07/08/2013 20:17

mollieboo great news on your scan :)

stogan congrats :) number 2 already

free your documentary sounds interesting, something I and many can relate to

coney glad the bleeding has stopped

well I'm 15w2d and still feel like shite, I'm really breathless even when I don't do much Hmm I'm having a private scan tomorrow, waiting for my NHS 16 week appointment,

waves to anyone I have missed

sameoldIggi · 07/08/2013 23:46

Hello all, spent some time searching for you tonight, hampered by not actually being able to spell predniselone! (Predniselone? Oh who cares!)
Have just seen Stogan's news - wow! Congratulations!
Mollie I did not feel movements at 19 weeks if that's in any way reassuring for you. Definitely not.
Off to see what is this news for Choccy and Duggs Grin

Stogan · 08/08/2013 08:35

Morning all

Sorry it's been a while again u can probably see the pattern, I work mon-wed hence me not being on here lol !

Fab news Mollie xxx

Free I think u are a superstar. There is so much I want to do to help people and so many people I want to help but its all still a very taboo subject here uuuppp north !! People say miscarriage like its a dirty word, much similar to cancer. I would love to bring the subject into the open more, yes it's hard but how will people know there is hope if its all behind closed doors? If there is anything at all I can do to help with your research free then please contact me Wink

Massive love and hugs to everyone else, not long til the weekend Smile c

teamdozie · 08/08/2013 14:38

Free

Ive sent you a message

mollieboo · 08/08/2013 18:05

Hi ladies, thank you for all of your congrats. I had the worst possible news today less than a week after my 20 week scan and two days after finding a heartbeat with my Doppler. I went for a reassurance scan and they told me my baby has died. I don't know why and feel that all hope for the future has been lost as I was on lots of treatment. I'm not sure there's anywhere to go from here.

ConeyIslandBaby · 08/08/2013 18:37

Oh god Mollie, I am so sorry Sad Can't believe you have to go through this. I can't think of any words that come near how you must be feeling. I'm devastated for you. If there's anything I can do... here for you xxxxx

sameoldIggi · 08/08/2013 18:56

Mollie I am so, so sorry. Sad Sad. I just can't believe it.

cartoontrickster · 08/08/2013 19:03

oh Mollie I really don't know what to say. I'm shocked, I can't imagine how u must feel. I'm so sad for you. will they be able to tell you why? x

freelancegirl · 08/08/2013 19:40

Mollie. I don't know what to say either. I'm so so sorry and so shocked to hear that. It's just awful, there are no words. If I can help in any way at all please let me know.

Buzzybee123 · 08/08/2013 19:51

mollie I am so so sorry, I can't imagine what you are going through, we are here for you, big hugs x

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