TTC/Pregnancy on Prednisolone or similar part 4

[digitalgirl]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 here

Part 2 here

Part 1 here

Morning all,

Sorry about moaning yesterday, feeling a bit better but maybe because I have a bit of space on my own.... just feel headachey and tired but have lot of congestion on chest which is making me feel crap too.

digi no there is no sign of anything.... i have run out of sticks which is stupid so have ordered some and DH is getting me some for later. Just strange that there is no spotting this month which is common for me in run up to AF. It could be AF messed up and just coming later I spose.

pq was me on testing front - good luck for this week. Oh and I always have white fillings preg or not, dont trust the mercury ones. I need two at moment and been quoted £150 yikes!! Putting it off which know I shouldn't but when theres no pain all I can think about spending that toward is another holiday!

euro sorry about your BFN but things will be clearer on the next run hopefully. Just wish I had taken smiley face stick away on hol at Xmas as might have had better idea of when ov'd.

kittens I hope you find some answers with this scan.

free bet you can't wait to get off the pred, albeit scary. It's not caused me massive probs but def feeling more down when stopped taking them over the months - does it get worse the longer your on it? The come down that is. Hope your Nan is recovering.

coconut That's really sweet about your son

iggi How have you kept preg from DS? Are you quite neat? _ I would be size of house, in fact gone 10weeks people notice with me, pot belies run in my family which doesn't help!

Anyway, I ordered my Letrozole/Ovitrelle for the Sup Ov as the Letrozole needs to be taken from CD2, so panicked didn't have it ordered this morning. Ready for next round. If it doesn't work out this month I can't wait for the follicle scan! Womb cctv and all that, will be fascinating.

Digi your comment - rather than sitting there making me feel as though I needed to come up with things to say.........I too had a few sessions when first marriage breaking up. and what you said was exactly how I felt and stopped going. I think you probably need to find a counsellor you gel with as I didn't with her. It's not an easy thing to get to grips with I don't think...maybe I wasn't open enough to whole thing??

YEY Digi a third tri friend woo hoo. So pleased for u Hunni and so nice to have someone here with me, I'm pleased it's u also as u give me mindless amounts of advice re birth etc !!! Thanks again xx

Hello All,

I have never posted or talked online before, so please stay with me if I make mistakes! I recently stumbled upon your first thread via google search and literally could not put my phone down. I was fascinated and thrilled to find such detail out there from ladies who are going through the same thing. When I reached the end of the thread I frantically tried to find similar and have now found your current thread!

I just wanted to say, thank you for the insight I have gained so far. Reading the good (and bad) news has really helped me understand things I didn't even know to ask! I have found it very reassuring. I can't believe so many people see Mr S! Now I have found the new thread I am hoping I can join....assuming that I have done this correctly!

Hi Cinny, welcome, just tell us a bit about yourself and your situation.

hello Cinny,

Welcome to the thread and hope you find some support here. I too had never talked online about anything and feels a bit weird at first but am now addicted (well to this board anyway).
There are lots of things I wouldn't have even know to ask Dr S if not for this board and in fact when I go to see him I barely have any questions!
If it helps in our quest then long may it continue.

(Wow am sounding like the old positive me again! Doom and gloom over for now hopefully )
x

Thank you.

I have had two MMC (last ERPC in July 11) both losses had heartbeat confirmed at 6wks scan and then nothing at 8/9 week scan. DH and I were heartbroken as (as I am sure your aware) doctors do not seem very concerned after 1 (and even 2) miscarriages. I was told it was one of those things without rhyme or reason. I sought advice and decided that although there are many women who have a far more heartbreaking story than I, I didn't want to wait for the NHS to help me after a potential 3rd MC. So I found Mr S.

The tests highlighted high level of NK cells. I have 3 cycles of 25 Pred & super OV. I am 10dpo with a negative pg test and Dr S says I should stop pred at 10 days after ov. So I am waiting for AF to start fourth cycle. I should mention that so far I haven't super ovulated! My body seems to ignore the super drugs...so I am monitoring this too!

Hi cinny! I remember the relief of finding this thread as well.

I got a positive test yesterday morning, so started cyclogest last night - that's an
experience! We not getting excited, letting the our parents use the c word, just seeing this as the first step. And being realistic that it might not be the first first step.
Don't want to sound awful its just we've been here 5 times and I'm trying desperately to protect myself. I'm terrified really!
How's everyone else today?
X x

hopeful congratulations.

Welcome cinny

hopeful squeeeee! Not saying the C word, but am excited for you having conquered the first hurdle of the pred treatment - actually getting pregnant! How many dpo are you? Will add you to the BFP'ers on the list...

Welcome cinny! Glad you found us and hope we can be of some support to you. Whereabouts are you in your cycle now? Waiting to do another superov or waiting to test? Interesting that your body hasn't reacted to the drugs, have you just ovulated normally then - is Mr S upping your dose each cycle? Do you have PCOS?

ooh hopeful really pleased that you got through 1st stage!! I know how you must feel that's how I would approach it...but you are pregnant woo hoo!

Wow Hopeful, well done. I too didn't want anyone to congratulate me and I dealt with it by telling those who were in the know that I had 'managed to conceive again' rather than 'I'm pregnant'! Seemed to help me in the very early days. It's a great step though and I am very pleased you have made it. I am so sick of the Cyclogest, I think others have said this too. The smell seems to stay with me most of the day! Can't wait to be off it. But it's not a bad thing to be taking on the whole.

Welcome Cinny! Yes dive right in and join us! Sorry about what you have been through but yet it is incredible to all be here helping each other along. I started the initial thread with the hope that other people MIGHT be out there and join in and look at us now - we have around 25 people on here and are not far off 4000 posts all together. It's so good to have the support.

Digi, no I am hospital-less at the moment still! ALthough I am away from home so have not been able to check my mail. I did have those initial blood tests done with my GP (blood sugar, and a few ones like syphilis and HIV as far as I remember) so hopefully that means it is ok. I will get onto it as soon as I get home though. Welcome to the third trimester!!

PQ yes it was a TIA. She had one a few years ago and recovered well but this time she has other things going on and is a bit frailer. Not so bad for someone who will be 97 in March and still got her wits and sense of humour about her. I guess that's what we can all hope for! 9/10DPO is still very early as you know. Let us know how the rest of the week pans out!

Oh btw PQ Thanks for lending me that book - I devoured it page by page! Loved it!. Am hoping you have the next one...? I think I am in love with Edward now, along with the rest of woman-kind who still thinks she is in high school

Hi Snoopy glad you are feeling a bit more positive. I am not sure about Pred come down as the last time I came off it I had just had the EPRC so I guess I wasn't exactly in the happiest pace. I am still getting very tired in the evening and have had a bit of limb ache. My eyes still have huge dark circles as well, which I definitely didn't have before this pregnancy.

Huge congrats to Coconut too for reaching viability! It is another milestone.

Thanks for doing all the list stuff Digi. You are so good at it and it is great to have it to refer to. Am wondering when Cheerful and I are brave enough to go up to the third trimester, or do we not have a choice when we hit 13 weeks? Am still confused whether it is the end of 13 weeks or the beginning. Either way, I am 13 tomorrow! It seems strange, the buzz of the scan having gone now and not having another scan for a week or so yet. I have that inter-scan worry that it has all gone wrong and I am oblivious to it.

Hello to anyone I haven't mentioned. Hope all is well.

For now anyways! Just day by day, could still be a chemical at this stage. That's the worst part about all the tests, we can't pretend we don't know what's happening and we have to test so early.
Thank you ladies, its lovely to have u all around.
It's my first cycle if treatment and I know its not worked for everyone first time they've fallen pg. I just have to be pessamistic, its only day 2 of knowing and I'm very aware of my foo foo and what's going on! Def sticking with its the first step. And its a long road. It may all be over this time next week.

Am I right in thinking a few more a testing this week? Bloomin phone won't let me scroll back x x

Trying to think what to say hopeful - I know the c word isn't right but I am v pleased for you!! If I get a +ve test this week it will be the 8th time I've been pregnant, so I do really empathise with wanting to protect yourself. But you have a lot of people here who understand that feeling perfectly and are wishing you all the luck in the world.

Hi and welcome cinny. so sorry about your losses.

free - you've outed me!! of course I have the rest of the series and you are v welcome to them

X posts with free. I decided to go with my bum as I've an erosion and don't want to make it bleed and have more reason to freak out! . Not the most pleasant thing to do! How do most use it? I haven't noticed a smell or any kind of discharge from it. X x x

Hopeful I think I'm 8 or 9dpo so will be testing in a few days. My luteal phase seems to only be about 10-11 days and I don't feel in the slightest bit pregnant so I'm not holding my breath.

Hey kittens, the only signs which made me think I might be were occasionally sore boobs and I'm also sometimes getting "sensations" in my womb area. Of course, this are also pre af feelings so Que my fears of another chem.

You've still got plenty of time, so u think you'll test thurs? It ain't over til its over!!

My cousin has had fertility issues forever, I think its a endo type thing. Anyways my aunt passed in Sept and my cousin was preg within weeks. She's more than delighted as she had accepted it wouldn't happen and we all so pleased after all that's happened. I'm hoping for the same thing for you kittens x x

Thank you all for the warm welcome.

hopeful well done on the first step. I hope it all progresses well.

digi I am day 10po. Negative pg test. I didn't super ov this month, but I was advised to still do the trigger shot for the one follicle my body made on its own. I started on 5mg of Letrozole, 2nd cycle 7.5 and this cycle, 5mg and Gonal F injections. Next cycle will be Gonal F injections only. Are you doing Super OV?

Welcome to Cinny. I remember I was almost in tears of relief when I discovered this thread. It was such a huge weight off my shoulders actually being able to chat to people who knew how I felt.

Hopeful - Well done. Lovely news. Baby steps and all that.

Digi - Thanks for sorting out the list. I don't know why but I'm always a bit scared to touch it in case I mess it it up. I must stop being so silly.

I'm off to bed. Have a big observation tomorrow and have been going a bit goggle-eyed going through my lesson plan to make sure I've covered everything.

I know PQ I thought about whether to out you. I mean - discharge, wombs, death, bleeding, sex etc we can do on here, but Twilight...? I decided to just go for it and let us be judged I will see if I can meet you later in the week to swap for the next instalment.

On the subject of all the things we can talk about here - a few people have taken the 'back option' with the Cyclogest Hopeful and said that has worked well for them. I am not sure why I never veered in that direction. With the front option, you do get a bit of fall out throughout the day and the smell is not offensive whatsoever, very mild really, but due to nausea I now have a real aversion to it. You know how after you've felt nauseous when pregnant you start to hate the smell or taste of certain things? Well, Cyclogest is now an arch enemy of my olfactory experience. Although to be fair I haven't been tasting it :)

I don't know much about Super Ov Cinny but Digi is heavily pregnant and didn't need to go down that route in the end. SHe looked into it a lot though and others here also know a lot about it so I am sure someone can help.

Kittens, PQ, there are a lot of people due to test again in the next few days I think.

I'll come out as having rather enjoyed the Twilight books... Just to keep PQ and free company in our collective embarrassment you understand... Anyway.

Hello cinny and welcome. I actually cried when I found this thread and read the various stories, and have no idea how I'd have got through the last few months without the lovely ladies here. As always sorry you have found yourself here, but I'm sure you'll find it a source of strength and support and random information.

hopeful well done! On to the next step. Are you on intralipids too? Sorry, it's hard to keep up with everyone's details now. Re cyclogest - I went with the tradesman's when I was pg. Seemed less messy. Only concern of course (tmi alert) is the chance of the Pred-fired wind making you lose it again... Enjoy!

Fingers crossed for those testing this week, let's have some more good news!

hey guys, waves..
cinni welcome.. you ar ein good company here as the girls said.
Super ovulation...I do ovulate but Dr S found mild PCOS back in November (my first round of super ov). I started with dr s in sep, oct - both natural cycle attempts. I was given 2.5mg letrozole.. but got one large dominat follicle ...too large. Then Dec he upped me to 5mg and gave me metformin. I did get 3 follies but no BFP.

Am now waiting for my hysteroscopy investigative op next Monday at St mary's and (all things being well) I will start up again my super ov in Feb.

Interesting that you are on super ov so at least dr s can see how you are responding. That is why I think kittens and snoopy and sue will like it as just gives more info on what is happening throughout the month, rather than a big fat BFN at the end which is so soul destroying month after month, esp on top of the mc. (hope you don't need it but ykwim)

Anyway, it sounds like dr S has a plan for you and gond has a good response.
Can I ask, has your partner been tested, would IUI be any help?

I am planning a super ov in Feb, then IUI in march and April and IVF + CGH in may I reckon if I need to go that far. I will throw myself onto the Paddinton train tracks if I don't get a BFP this side of June.. we all must be preggers by June.

Anyway, is this your first baby? It is mine..(the thought of going through this a second time is hideous which is why the IVF + CGH appeals as they can find competent embroys and freeze them, so am VVV tempted to do that and the defrost one for the 2nd. (if I got that far) But 3 weeks with a 10 week old kitten who climbs the curtains, my legs, gets in the dishwasher and terrorises our other cat , has somewhat put me off the "caring for others" area.

do keep us posted.

Sat here in hospital after having drinking my lovely glucose drink and very upset ! Thought I was only having bloods but they decided to do full GTT which is fine by me so I text DH to say I wouldn't be going into the office and he said "oh well u need to make a call about these payments an then u can update the spreadsheet notes at home" then 5 mins later sent me a text saying "hope u are ok?" what a mindless prick I married !! Feel like crap now

Welcome cinny (ok, so I'm last, but boy this thread moves fast! :) ), and so sorry for your losses.

And a whispered for you hopeful, I truly do understand your caution and while yes, some of us may have not had a successful pg first try on the treatment, but many others have! So statistically you're in with a heck of a good chance, and I'm rooting for you.

Twilight I've never heard of, so you ladies don't need to be embarrassed on my behalf

Cyclogest ... well I was definitely one using the tradesman's entrance, and never had any problems with it. Not the most pleasant thing in the world to do, no, but also nowhere near as bad as I had thought it might be. If I am ever in the happy position of needing to use Cyclogest again, I will certainly be knocking on that tradesman's door again.

Well I'm a bit miserable today. Bizarrely of all the things, it's finding out that my DD's lovely teacher is pg with twins, expecting them in June, one month before I would have been due. She knew about the last pg (or non-pg, as I think of it now) as DD told the whole world, and was incredibly sympathetic about it as she had also heard that I'd already lost 3 before it. She would have known she was pg at the time she was talking to me about mine. I wish her all the happiness in the world, she really is lovely, but it's just made me feel even more that the whole world seems to be able to successfully carry babies while I can't. I know obviously that the whole world can't, but it's just how I feel right now. Guy who sits across the desk from me at work, his wife had her first baby just before Christmas but that didn't bother me too much. But for some reason this news this morning has just really made me miserable. All the mums in my DD's class are excitedly talking about it, and I'm trying to be upbeat about it but inside I just feel like crying. I know all the things Mr S found wrong with me, and yes I'm being treated for it all now, but still it feels like I'm a complete failure. I know you will all know how I'm feeling, trying hard not to feel sorry for myself and reminding myself I have a beautiful 5 year old, but she's growing up so fast and it all just seems so - well I hate to say the "unfair" word, since no-one ever said life was fair, but you know what I mean.

Sorry, didn't mean to rant, it's just making me feel so very blue today. Normal service will be resumed shortly.

/waves to everyone