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TTC/Pregnancy on Prednisolone or similar part 4

993 replies

digitalgirl · 19/12/2011 11:28

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 here

Part 2 here

Part 1 here

OP posts:
suemays · 06/01/2012 12:22

Hi ladies, have been lurking on here for the last few days but am now back and ready again to start trying.

Free I had a good feeling about this pregnancy for you from the start! I think you can start relaxing now!

I was really positive with the pregnancy I have just lost so was feeling optimistic for a change. I dont think it makes any difference to whether we lose it or not!

Euro dont worry, I didnt take your comment the wrong way as I was thinking the same as you re the non viable egg etc.

Choccy I am not being put on the hydroxy next time as I dont think a chemical pregnancy counts as a proper miscarriage in terms of changing the treatment plan. I know the disappointment etc is the same though. Maybe Dr S will be doing the same with you? I completely agree with you about the mixed feelings of being happy for the successful stories on here but feeling upset at the same time. I think we all have friends who have babies that would have been the same age as one that we have lost. Its so hard to stay strong, like Duggs said, we have good and bad hours not days now.

I have been researching IVF with the Array-CGH that Duggs talked about as its supposed to be good for recurrent miscarriages. I think that will be my last chance of having another child but all depends on the money and if the superov works. I am going to give it 2 more attempted pregnancies on the superov plan before I decide. I am also toying with the idea of surrogacy in the next couple of years as one of my friends has offered to have my baby for me (using my embryo). Not sure it would work well in reality though as it might be a bit weird - would anyone else consider it?

I have booked in for my first acupuncture in a couple of weeks as going to try that next (something has got to work surely?) Does anyone else feel more in control when they have a plan in place or is it just me? Just want my damn period to arrive so that I can start on the letrozole.

I was the one who found out that Asda was the cheapest for the superov drugs, same as any fertility drugs so if anyone does go through IVF you can get the drugs there too at cost price.

Its a good idea to have an alert somewhere on here such as cheaper FRER tests and drugs etc. I bought my FRER tests in Superdrug before Xmas at bogof but they have stopped that offer now!

Duggs how is the plan going now? When do you test?

Waves to everyone else

igginezerscrooge · 06/01/2012 12:23

Hope Sue is doing ok.

igginezerscrooge · 06/01/2012 12:24

I had a ecs last time and will be doing the same again if I get there. Don't know if it's at 38 or 39 weeks though. It's nothing to be scared of really, if that's what happens.

igginezerscrooge · 06/01/2012 12:26

X-posts - I think about Sue and she appears! Nice to see you Smile

PQ77 · 06/01/2012 12:29

welcome back kittens - wishing you every bit of luck for swi. i managed to unwittingly run into a film set at the naval college today - there were 12 hearses and i didn't see the production crew so I started crying as it was so moving as each had flag over the coffin, tearful mourners etc. I got so annoyed when I saw the cameras and the penny dropped! i am sure I ruined all their shots plodding through in my running gear, i don't know how i got through security (of course noticed all the barriers later). Just thought I would share that black humour with you as I think that's your field? Doing everything in writing is so hard; hope you will feel up to our meet up on 28 Jan.

i am expecting a smiley face tomorrow...

Great scan news free and iggi

free - I had a Dr Beer textbook early waters breaking and early labour at 36 weeks - much like digi. but i got to 5cm v quickly ended up with an emergency c section as DS was breech and his foot was pushing out the umbilical cord through my cervix [ie cutting off his oxygen supply]. I never knew you how fast you could end up having surgery...I can bore you witless with my thoughts on hospitals etc when we see each other next.

If (or rather when, let's be positive) I get to that stage again - and assuming I get past 36 weeks - i will opt for an elective c-section at 37/38 weeks, largely because of the previous c section (VBAC is of course an option but at the moment i would opt for the csection).

suemays · 06/01/2012 12:34

Forgot to say, I was 2 weeks early with my daughter and was supposed to be having a home birth. I had hired a birthing pool which my husband had assured me he had set up. My waters broke around 7.15pm on the friday eve and my husband didnt tell me that he hadnt got the pool ready (he was sure I would be late!)

He worked out that it would take 2 days to fill the pool up and get it to the right temp before I could use it (of course he didnt tell me that when I was in labour). The curtains and pole also had to be put up in the room where the birthing pool was as we had just moved in so my FIL was busy doing that whilst I was trying to cook dinner. I had some crazy idea that I would premake lots of dinners for us so that it would be easier once the baby was home. That morning Tesco had delivered loads of fresh meat so I didnt want to waste it! I could have killed him as I was in the lounge having contractions with the midwife whilst him and his dad were frantically running behind me from the kitchen into the dining room where the pool was with a kettle! I stopped dialating at 6cm so because of the risk of infection I had to be taken into hospital to be induced the next day, I never got to use the pool! My DD was born at 8pm on the Saturday so I was in labour for 25 hours. So Free birthing plans rarely go to plan! Also I had a tens machine that DH had put on me but it was only when I started pushing that the midwife told me he had not put it on properly! I managed to go through the whole thing with only gas and air and no stitches or tears. I am sure the fact that we did perineal massage helped. www.babyworld.co.uk/information/birth/assisted_delivery/perineal_massage.asp

PQ77 · 06/01/2012 12:35

hi sue - just missed your post. I think you would be so lucky to have a friend who offered that to you. I would definitely consider a surrogate but i don't think i have anyone who could/would (I did have one friend who offered actually but she has had 5 pregnancies (sadly one still birth) so I think her Dr might baulk at a sixth!!)

having a plan in place definitely helps i think. It is the only way i can even begin to contemplate trying again this month after 6 previous miscarriages - without a plan and some sense of purpose I would be completely crushed.

Havingkittens · 06/01/2012 12:36

I'm laughing, PQ, because I first assumed you meant that black humour was my field (which is very much is) but then realised you meant filming. True in both instances. Now I am imagining the film crew staring bemusedly at you weeping in your running gear, ploughing your way through their shot. Whoops!

suemays · 06/01/2012 12:38

Iggi you must be psychic!

I would go for a natural birth again if poss (if I get to that stage ever again) as I was out of hospital the next morning and down the pub wetting the babies head by lunchtime (after doing a breastfeed)! The recovery is much quicker but it depends on how the labour goes at the time.

suemays · 06/01/2012 12:41

PQ there is an organisation that puts you in contact with surrogates so dont rule it out. You only pay their expenses. One of my mums friends (a midwife) has 2 friends who have done it so it can work out well. I would be up for it but my DH wouldnt unfortunately. He doesnt think its natural! I dont care so long as I get a baby!

I wonder if they will include you in the film - imagine that, you could be famous! At least it will look realistic as you werent acting!

PQ77 · 06/01/2012 12:43

kittens - yip, you've got it, look out for the Hollywood blockbuster next summer with a sweating crying runner in fluorescent kit plodding past the cortege...

PQ77 · 06/01/2012 12:46

that's really interesting sue, thanks - i will add that to my what to do next options list (which includes getting a british blue kitten...)

suemays · 06/01/2012 12:47

PQ funny you should say that about the kitten as I have been looking at Lakeland terrier puppies for sale this morning!

Arianrhod · 06/01/2012 12:47

free fab news about your scan, I'm so pleased (and relieved!) for you.

Births - well I'm not sure anyone needs to be scared by listening to mine, but I would say right now, whatever birth plans you intend to put in place, do keep a very open mind about it as it can all change in the blink of an eye. I wasn't going to have an epidural (I did), was going to have a birth pool (I couldn't), absolutely never wanted to give birth lying on my back, as they advise you not to if you can help it (I did), etc etc. I would also stress that you pre-warn your OH to fight your corner with the nursing staff if it becomes necessary - I needed that, myself, because the nursing staff thought I was just spacing out on gas & air and couldn't be bothered to push, whereas in fact it turned out my daughter was stuck sideways and couldn't be pushed out, but I didn't get the backup I needed because my ex-hubby didn't believe me either!

Welcome back kittens, let's hope 2012 is a damn sight better for everyone than cr@ppy 2011 turned out to be :)

snoopygirl · 06/01/2012 13:43

Loving the birth stories........I even did Hypnobirthing which makes me chuckle now.... I did actually make me really chilled out/ready the birth...although when labour was underway I ripped the Hypno chanting music off my head as I couldn't stand it! Think I would have been better off blasting myself with some ACDC or something
In end the end I thought the C Sec was great. Couldn't drive for six weeks but didn't particulary want to and felt absolutley fine. Think I would go for another one but saying that I felt a bit of a fraud afterwards and like I'd let myself down. And I ended up having so many drugs that wasn't lucid enough to really enjoy the birth.

Oh sue that's does sound funny after the event with the pool and stuff.

Depsite checking with my husband about having change for weeks before for the hospital car park, he said on way to hosp could he just stop at the cashpoint!! Well you can imagine the response....we ended up dumping the car where the ambulances stop!

Comedyworks · 06/01/2012 15:27

Hi all - great news about the scans Iggi and free - I'm twenty weeks today and have got scan next Thursday - still really worried about it - would be good to think that the worry stops at some point but it obviously doesn't!! I had an emergency cs with my first and elective with second so there is no choice with my third which in a way makes it easier. A cs is a bit like someone washing up inside your stomach - a strange sensation but not painful.
I really hope that Duggs is right and everyone will be merrily on their way with pregnancies by June. I understand what has been said about where people would/should be with their pregnancies and now I am in the fortunate situation of it working (fingers crossed!) I just think how i will look at this baby and think how it might not have been them if an earlier pregnancy had worked if you see what I mean. So whilst we can never be glad to have had so many losses hopefully that 'right' one will come along for us all x

cherrycheeks · 06/01/2012 16:56

Fantastic scan news free and iggi!!!

Loving all the birth stories too- especially snoopy and the hypnobirthing.. I also ripped it off like a mad woman during labour! It has worked for lots of friends though. I vaguely remember listening the hypno lady chanting about breathing a hole in a block of ice for weeks and weeks.

BFN for me so far. I wasn't really holding out for a BFP on the first cycle of superov but still a bit sad about it.

Thanks sue for the Asda tip!

At a spa hotel in the country with DH and DD.. Very relaxing, DD looks so cute in her little fluffy robe! Hotel very toddler friendly which makes it so much more enjoyable. Off for a cocktail and an early dinner now.

snoopygirl · 06/01/2012 17:29

Hey Comedy Wow! 20 weeks what a milestone, sounds like it's going great x

cherry That's funny about the ice thing we didn't cover that one! Did your DH go with you, we did have a laugh about it. Ooh wheres the kid friendly spa sounds lovely. Sorry about another BFN, you kind of have renewed hope starting a new regime. How many DPO are you?

Child free night for us tonight........what to do? Don't say SWI I'm fed up of it!

duggs1976 · 06/01/2012 19:40

Hello cocoon house. I am supposed to be on a "month off" waiting for my (probably waste of time) nhs at marys hysteroscopy. It is 23 jan. So no ttc or pred for me this month.

Depending on what they find do it might take me out for feb?
Also..
My boss resigned this week (yippee) so I have been told I'm off to LSD vegas for a TS/TM store opening! Sounds more glam than it actually is. Early march. So I don't really want to be preggers whilst there or flying there.

Kind of weird thinking I can't really ttc until April? What am I doing then??

Tried to keep away from thread and immerse myself in real life but keep coming back. I feel close to u guys now.

Anyway as for plans I am queen of plans.

Super ov
IUI
IVF and CGH
It is all lined up to be preggers by June.

After than sue surrogacy and egg donors on list.
Then adoption.
But I need a time limit as living like this is exhausting, draining, torturous and not a way to spend time on this planet.

Had 2 glasses of red via train home so probably rambling nowGrin

Hi to all x

Comedyworks · 06/01/2012 19:43

I always need a plan Duggs so I like your style!
Vegas still more glamorous than a primary school!!

batteryhen · 06/01/2012 19:53

Hello everyone :)

I am teally pleased to hear of all the positive scan news ....great success's all round it would seem.
kittens I am glad everything went as well as it could, and that you got that double line :) Lets hope for some really good news for you this month xx
duggs I like a good plan too. Vegas sounds good, how long is it for? could you ttc in feb as if you were pg in march you would be back to get any treatment you need?

I have a question - I think free and digi may be able to answer. I am currently under St marys - and am seeing them next week for a scan. I haven't booked to see MR S yet. My question is should I? and at what stage? I already have the sheet of instructions to wean me off my drugs etc, but now I know I have to take the aspirin all the way through according to St Marys - which I am happy to do,. I really dont want to see too many people and get conflicting information? As I am in the midlands it is not easy for me to get time off and get down to london - so have to be a bit selective with who I see...... any advice welcome!

I hope everyone is ok .... I have not gone back to work yet - first day on Monday. Rubbish .

digitalgirl · 06/01/2012 20:10

Have been stupidly busy today shopping & baking for Dh's party tomorrow. Am knackered and my boozy brownies are a disaster Sad so will be trying a second batch using a different recipe.

Just wanted to say congrats to comedy for hitting 20 weeks. Really really chuffed for you. Smile

OP posts:
ChoccyPud · 06/01/2012 20:10

Just a quickie as I'm on my way out... battery if you're an employee, you're entitled to reasonable paid time off for antenatal appointments, and IMO, as you're pg, seeing St Marys or Mr S counts as antenatal. Downside being you have to tell work you're pg and explain why you have to go to London to get the time off as antenatal, but of you do, you won't need to take holiday. Just a thought...

Hello everyone!

Stogan · 06/01/2012 20:28

Ok so now terrified of the birth !! Mr S never mentioned me having a section, is this something I should be mentioning to my consultant ? Mr S said it should be classed as a "normal" pregnancy from 20 weeks. Must not panic, must not panic !!!

eurochick · 06/01/2012 20:37

I am loving the idea of LSD Vegas.... I don't think I would take another month off because of the trip. The US is a reasonably civilised Wink English speaking country with good medical care. I think in your shoes I would fine about flying there in early pregnancy.

Comedy 20 weeks. Wow. That has flown by.

Stogan I'm sorry. That is exactly the reaction I was worried about causing with my answer to free. Please don't worry. The Beer book was written a while ago and this whole area is still in flux (as recent posts have shown re: aspirin). If Mr S says it is a normal pg from 20 weeks, I'd happily go with that! His advice has done well for most of us on this thread so far! The comment only stuck in my head because I am a bit terrified of being sliced open! Also remember that we live in a country with pretty damned good ante-natal care by most standards. You will be monitored and you will be fine.

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