TTC/ pregnancy on Prednisolone or similar part 3

[freelancegirl]

For those who are TTC/pregnant undergoing immunotherapy treatment. Current list as it stands, do feel free to come and join us, it's moving quickly round here!:

Tuesday 22nd November

TTC
Waiting to test
Snoopygirl - V High NKC TTC, will be Ist try with Pred, Intralipids on bfp Testing from 21/11
Havingkittens - Upgraded from High to V High NKC TTC #1 after 2 month break/testing 29 Nov -2 Dec depending on my resolve.
Waiting to ovulate
coleyoz - V High NKC. TTC #2 - ov 3 Dec (Pred and Intralipids at BFP)
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle1
batteryhen - High activation NKC, factor v leiden. TTC#1
Suemays - V High NKC TTC/ov 30th Oct. TTC#2.
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov/ 4th cycle of pred
pureequeen - High NKC TTC #2 again from November (BFP cycle one but mc)
eurochick - TTC#1 awaiting first appointment (in Nov)/ov expected 28-30 Nov.
BFPSeeker

BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 24+3 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 -19+1 Due 16/04/12 anomaly scan 23/11
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 16+1 next scan 14/12
Comedy - V High NKC - BFP cycle#2 - 13+3 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 12+6 anomaly scan Jan

1st Trimester
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid - 11+4 next scan 28/11
Scooterchaser - V High NKC - BFP cycle1 - 8+1 Due 01/07/12. Scan 25/11
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. LMP18/10 - 4+6 - Scan 3/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 4+5 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 4+5 Scan 6/12.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LMP20/10 4+4. Scan 3/12.

quick post from work - just to say hugs for scooter I hate that we have this worry all the flaming time. Why can't everything just be plain sailing like it seems to be for others? I hope your scan reveals a nice little hb and bean is just snuggling in. Crap you have to wait till tomorrow, but glad your DH is there now.
free - Maybe your spotting is just to do with the cyclogest and things 'up there' are a bit irritated?

I hate all the uncertainty and stress that comes with early pregnancy :(

Will post later or I will be sacked xx

Scooter I know people who have bled on and off throughout pregnancy and had good outcomes. I hope it will be the same for you.

Bloody hell, it's not a good day. Is it a full moon? I have also had red spotting today at 5 +4 (list shows me as 5+5). It seems to have tailed off a bit and I can't be bothered going for a scan or another HCG test this early, but I have been dashing to the loo all afternoon to check it out. I've been using the (giggle) tradesman's entrance for the cyclogest and far too scared to S without I so can't be that. I am paranoid about ectopic. You would definitely get pain with that would you?

Scooter - I am so sorry to hear of your bleeding. One thing it could be is a hematoma. With high NK cells we are apparently susceptible to them according to Dr Beer's book. Make sure they have a good look for one on your scan tomorrow. You can actually get loads and loads or just a little (or even no) bleeding with them. Most times they eventually get reabsorbed by the body and cause no harm. Of course it could be something completely different but just something else to consider. I have my fingers crossed for you.

Brownie - was it your scan today? How did it go?

What the hell is going on round here today?! First Scooter, then myself, now Cheerful. Are you still spotting occasionally Choccy or has it stopped now? I haven?t yet called Louise but will do so in the morning I think. I also have St Mary?s in the morning but they might not even see me being that I am (at the moment anyway) pregnant.

I haven't had any more as yet but I fully expect to. I just can't see how you can just get a bit of pink and then it all go away. I have now cracked open the dodgy pastel pants instead of my usual black ones to make sure I know exactly what is going on.

Scooter so sorry to hear it is getting worse. I know it must be a long, long wait until the scan tomorrow. We all know we hear of people bleeding in pregnancy all the time and then they are fine (yes even people who have rmc and mc in the past) but we all automatically think the worst when it is happening to us. For fucks sake ? this is all such a flipping nightmare.

Am a bit paranoid about ectopic too Cheerful. I have looked up the pain thing and apparently there is a chance we would have had it before now, but I just don?t know. I have had some twinging in days gone by but it has felt like what I am assume to be the corpeus luteum as I had it last pregnancy and that wasn?t ectopic. It was of course a mc though so who knows what these things should feel like when they are going well?!

I am hoping it is indeed just a bit of irritating Battery and Ari but we just never know do we. Rest assured I will be trying the tradesman option for Cyclogest tonight and definitely not doing any S without i!

Hope everyone else is ok!

PS Euro it was the Pura Ayurveda in GMV - really good! My french manicure is lovely. They have some good prices for other treatments too. We should have a micro thread meet up you know - CW or there or wherever!

www.ayurvedapura.com/

Thanks free! I might have to check that out. It sounds good.

BTW, I'd love a minimeet. I live a mile or two from Greenwich. Message me if you are interested. But I understand you have other things on your mind right now. I hope all is well. x

Blimey, what an awful day for so many of you! Scooter - There are so many stories of women who bleed and it's all OK but of course you're not going to be able to relax until you know for sure. I hope tonight and tomorrow morning go quickly for you.

Free and Charlie - Hope it all tails off for both of you too.

Stogan - They thought I was going to get OC in m preg with ds but it never actually materialised. If it does turn out to be that, they will monitor you really closely which is really reassuring. Fingers crossed it's not though.

That place looks nice Free (I have to admit I went straight to the cafe page!). I'm also not a million miles away from there, but north of the river. Would love to jump onto a micro-meet bandwagon if you do arrange something.

OOh, location specific PMs winging their way to Euro and Coconut as we speak... I am ALWAYS up for distraction, in fact especially when things like this are going on.

Thanks to all for your reassuring posts. I'm not actually worried about it being OC it's just the bloody waiting around that kills me, it's all we seem to do isn't it ??? Wait to ovulate then 2ww then Confucius waits for scans and then wait for the little blighted to arrive phew, I'm off to bed !!!

Thinking of u though scooter, have u been scanned to check for heamatoma (crap spelling sorry) mr s said I had one and to look out for heavy bleeds. I've not had anything but he did tell mr it was common and if I got it just to inform my MW purely because I'd need an anti d injection and nothing more sinister than that, hopefully could be what ur experiencing. Eitherway still got everything crossed for u and hopeful ur scan will be perfect tomorrow xx????

My god, must have my eyes crossed too as my spelling is atrocious (blaming the phone and swollen eyes from crying) sorry guys hope u can make sense of my ramblings xxx

Just a very quickie as DD is chomping .. free yep you can get a little bit of pink and then it stops, especially if it's post-rumpy pumpy. That's exactly what I had both times last year. Freaked me out no end at the time (and I wasn't even on MC alert back then, O Naiive that I was). Obviously I can't say that is def what has happened .. but I can say it's very likely.

cheerful hope yours is just transitory too. Not a full moon today but a crescent one .. maybe those tidal pulls are having a dastardly effect!

There's definitely a lot of waiting going on Stogan!. I am waiting as we speak - for more nastiness. So far nothing but I am fully expecting to wake up with something going on in the night.

BTW it's my appointment with St Mary's tomorrow at 10am and I realise I have done nothing of what they have asked me to do so I might not even had an appointment. They said to call to confirm (and also call if I can't make it, which of course I can make it) and also post ahead a questionnaire and bring a copy. I will take the copy but haven't posted. They also say you can't be helped if already pregnant. Is it a total waste of time me even going? Quite possibly but I think I will go anyway and if they just turn me away they turn me away. I just want to get into their system just in case and I have been waiting to get through to them since April!

free I turned up and they had lost my q anyway so just take it along. Also I'm there tomorrow at 10.30 so perhaps we will meet? I'll look out for you. I've dark curlyish hair about 5ft 8 ! Also isn't waste of time as it takes an age to get in. Although am less than impressed so far. Haven't read all your post as got excited that I'd be able to say hi.

Ooh duggs - do you know what I look like? I will have a furry leopard print coat on, dusky looking, long dark hair.

Yes saw you on tv! I've a long fury coat too ( was my mum's from 70's she wore when pg with me!) so my lucky coat.. We can send a joint update on here as nothing else to do but sit about for ages x

Evening, apologies for not posting sooner, in the rush this morning I forgot my mobile and have only just got home.

Firstly, am so sorry Free, Cheerful, & Scooter that you have had such a horrible day. Can't believe you have to wait till tomorrow Scooter, sending you big hugs and hope that all will be ok. Given our past it is always easier to assume the worst, but sometimes life surprises us. As Battery says, all the uncertainty and stress for us sucks big stylie.

Good luck at St Mary's tomorrow Free and Duggs, my appointment is on the 13th of Dec. I am going to see them and I am up duff so hope too they won't have a problem with it. Mary the secretary is lovely so am sure the Q won't be a prob.

Hope everyone else is ok?

Well, as for me, today delivered one of those nice surprises that me and DH had convinced ourselves we would never get after 6 mc's. Today we saw a very active little bean waving at us at our Nuchal Scan. We both sobbed like girls for about 10 minutes which took them by surprise :) All I can say is that where others haven't been able to help, the NK Cell treatment has so far.

I meant to say the other day, my DH is a lurker on this thread every day. He thinks it is great we have such a good support network going and that you are all lovely ladies :).

Great news Brownie. Congratulations! x

I've been trying to explain superovulation to my OH. The best way I can put in in "man terms" is like going up a level on asteroids or space invaders - there are more targets to shoot at

Hello Brownie and indeed Mr Brownie! That's such amazing news about the scan today, you had me welling up in tears for you both. And Mr B is right, it is indeed great to have this support.

I spoke to Louise earlier about the spotting and she was very lovely and said (as we all have said) that lots of people have that sort of thing. If it gets worse she says to double up on Progesterone and to also keep the appointment for the 3rd (was actually thinking of pushing it back so I would be more like 7 weeks something rather than 6.4) and hope that at that stage we do see something. I was freaking out at the prospect of another inconclusive scan. But i have decided to just be brave and go for it.

Just almost strained my stomach as I ran to get the phone and slipped - not great activity for a rm sufferer who was spotting earlier but hopefully all is as was!

duggs see you tomorrow I hope, Scooter we all have our fingers crossed for your scan tomorrow. Oh and Brownie glad you too are going when up the duff. I guess there must still be things they can test for such as TEG etc. Are you both going to tell them about the Pred and Mr S? I think I am, they seem a bit more open to these things these days I think.

Brownie fab news ! It must be so lovely to see the bean very much alive and kicking.

Kittens loving the space invaders analogy!

scooter everything crossed for your scan tomorrow, I truly truly hope everything's ok for you and it's just breakthrough bleeding. It is horrible that we have to go through such a scary time especially when there are no outward signs to reassure us and I know it's hard to assume other than bad things. We are here for you hugs

free if you've tailed off again and didn't have much or for very long, maybe it was a reaction to the sff? So many of us are/have been spotting at various stages, all the stuff we take must be part of the equation and maybe the slightest irritation or contact sets us off?

I've got plenty of heartburny niggles esp when my stomach's empty, and various little twinges, not painful just like stuff is pushing and pulling around all round my lower abdomen, lower back and upper legs. BUT not spotting any more. Of course now I've said that... But I'll stop that thought there, I'm trying to be optimistic.

/waves to everyone :)

Hi all - have been lurking around feeling ill which I shouldn't complain about as all pregnancy / steroid symptoms.
Sorry not to get to meet up with you Duggs and sue and hope you are feeling better sue
what a crap day for so many of you - really sorry to read about it - I thought mine wasn't great but that was just because of some lost school shoes, usual school stuff and not being able to open the glove compartment to get my purse out! So sorry to read about the bleeding - I know I've said it before so sorry for being repetitive but I had no bleeding in six miscarriages but have bled with this one - so please take heart and I'll keep fingers crossed for you all.
slogan hope you get diagnosis soon - just 19 work days to go!
Brilliant news brownie - really pleased for you and DH!

I hope tomorrow is a better day for everyone x

I hope everyone is feeling better tonight, am keeping my fingers crossed that everything is resolved tomorrow and that all bleeding stops xx
duggs and free I will be interested in what happens at st marys tomorrow, as I have my appointment on the 13th december (same as brownie:)) I hope to be pg by then - so I wonder what they will say If I am? I have sent the questionnaire back but didn't keep a photocopy so I hope they haven't lost it!

Big waves to everyone, I hope all thiose who need to get a decent nights sleep xx

Hooray for scan too brownie xxx

re: St Mary's questionnaire. I filled it in the day before and took it with me to my appointment. I actually went to the address on the letter to drop it off before my appointment but they told me it was fine to just take it along and hand it over to the receptionist. Good luck with appts tomorrow free and duggs.

Sorry to hear you've had a bit of spotting too cheerful - it really has been a day of it . Glad it's tailed off though.

scooter thinking of you tonight and hope scan tomorrow proves bean is just a bit of a drama-bean.

choccy glad all's looking relatively boring with you now. Heartburny niggles and stretching pains sounds fairly straightforward.

brownie hooray hooray hooray!!! Am so pleased for you and Mr Brownie!! Really is wonderful news! Are you having another scan between now and the 20 week one?

Fixing cheerful on the list...have I messed it up for everyone? Or just those on the first trimester bit? Have upgraded brownie now she's had her nuchal and is all official! And have moved kittens:

Monday 28th November
TTC
Waiting to test
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle1 test 4 dec
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov 4th cycle of pred
batteryhen - High activation NKC, factor v leiden. TTC#1 Test 10 Dec

Waiting to ovulate
coleyoz - V High NKC. TTC #2 - ov 3 Dec (Pred and Intralipids at BFP)
Suemays - V High NKC TTC#2.
eurochick - TTC#1 Awaiting NKC results/ov 28-30 Nov.
Snoopygirl - V High NKC TTC, #2, ov 10th Dec ish
Havingkittens - Upgraded from High to V High NKC TTC #1
pureequeen - High NKC TTC #2 again from January (BFP cycle one but mc)
Hopefulfor2nd - High NKC TTC in New Year
BFPSeeker -

BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 25+2 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 20+0 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 17+0 next scan 14/12
Comedy - V High NKC - BFP cycle#2 - 14+2 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 13+5 anomaly scan Jan
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid -12+4 next scan?

1st Trimester
Scooterchaser - V High NKC - BFP cycle1 - 9+2 Due 01/07/12. Scan 8/12
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. LMP18/10 - 5+6 - Scan 3/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 5+5 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 5+4 Scan 6/12.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LMP20/10 5+3 Scan 3/12

Thanxs for the congratulations, you guys have been such a great support I wouldn't of survived this roller coaster without you

Scooter thinking of you tomorrow x

Free I am a bit nervous about telling St Mary's about the NK treatment as I don't know what their view is on it these days but can't help but think she would be happy with the fact we have managed to get this far. We are going to her to see if she will monitor us till 20 or beyond as my local hospital want me to continue specialist care as they deem me as high risk. I know they are doing a progesterone trial at St M so want to see their opinion about me continuing with it for longer. When I was with them last I also promised them my placenta should I ever have a successful pregnancy. Think that would be a good cause.

Battery what time is your appointment? Mine is 1745. How great would that be to meet up.

Hi brownie really really pleased to hear about your scan, that's great news.

As for me, it's been a long night of hot sweats and a banging migraine. I've been awake ages but too frightened to even get out of bed and find out what the situation is. I need to get up and take the pred at some point so building up courage. I am lucky I guess that DH is here and he is letting me rest - in case that can do any good.

I just want to say thank you so much for all your support, every message just kept me going yesterday. Means a lot to hear from people who really know.

Just the wait til the scan now.

thinking of you scooter x