TTC/ pregnancy on Prednisolone or similar part 3

[freelancegirl]

For those who are TTC/pregnant undergoing immunotherapy treatment. Current list as it stands, do feel free to come and join us, it's moving quickly round here!:

Tuesday 22nd November

TTC
Waiting to test
Snoopygirl - V High NKC TTC, will be Ist try with Pred, Intralipids on bfp Testing from 21/11
Havingkittens - Upgraded from High to V High NKC TTC #1 after 2 month break/testing 29 Nov -2 Dec depending on my resolve.
Waiting to ovulate
coleyoz - V High NKC. TTC #2 - ov 3 Dec (Pred and Intralipids at BFP)
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle1
batteryhen - High activation NKC, factor v leiden. TTC#1
Suemays - V High NKC TTC/ov 30th Oct. TTC#2.
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov/ 4th cycle of pred
pureequeen - High NKC TTC #2 again from November (BFP cycle one but mc)
eurochick - TTC#1 awaiting first appointment (in Nov)/ov expected 28-30 Nov.
BFPSeeker

BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 24+3 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 -19+1 Due 16/04/12 anomaly scan 23/11
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 16+1 next scan 14/12
Comedy - V High NKC - BFP cycle#2 - 13+3 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 12+6 anomaly scan Jan

1st Trimester
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid - 11+4 next scan 28/11
Scooterchaser - V High NKC - BFP cycle1 - 8+1 Due 01/07/12. Scan 25/11
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. LMP18/10 - 4+6 - Scan 3/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 4+5 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 4+5 Scan 6/12.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LMP20/10 4+4. Scan 3/12.

free yay yay yay!!!!!

Good luck cheerful am rooting for you too.

Thanks everyone. I dont feel particularly excited or happy yet, I guess as I am still aware it could all go wrong still. Part of me now feels that next one is bound to go wrong. It just seems that having a baby is something that happens to other people! I keep having to tell myself that people have babies all the time - why not me?

Cheerful I can fully relate to what you're going through right now! I have everything crossed that the scan goes well later. It's all so terrifying isn't it!! I know what you mean about symptoms too, I woke up this morning feeling distinctly unpregnant. I guess even though we are pregnant we can't be expected to have symptoms every single minute of the day can we? I just don't know.

Lurking too for news of battery who I think is at St mary's this morning?

That's really good news, Free

Buster in terms of Harley St or Epsom for intralipids am pretty sure it's just Epsom, where I report live from as we speak. It is an arse for me to get to from south east London, let alone the north east. But yes, when you need it do combine it with a meet up! I know Iggi has actually been coming down from Scotland.

Ari, sorry about the car, last thing you need!

Am sitting here eyeing bubbles in my tube with trepidation. Hope they gp before they reach my arm...

FAN-BLOODY-TASTIC news!!
God 8 wks free
something is working girl, pioneering x

wonderful news free and good heartbeat - am sure you know that speed is an excellent sign. yay!!!

Great news free! 7.6 is def fine. Don't forget, in reality the baby grows from ovulation not from LMP (obviously!)

Didn't comedy have a scan yesterday? I've looked back and can't see a post from her. I hope all's well.

A busy week again for scans and appointments. Best of luck to cheerful today and coconut for tomorrow. And to those with appointments (so sorry, now I've got 3 pages past that bit and can't remember who they were!).

buster, just reading back your post about Mr S refusing to let you have scans locally - funny as when I saw him on NHS he said I could have mine locally as long as the information was passed on. Annoyingly, as I am now seeing him privately for fertility investigations I suspect he will also say the same to me which effectively means I will have wasted the best part of this year just to save a few hundred pounds for the early appointments as it will end up costing me the same for scans etc. as if I'd been seeing him privately all along. I'm hoping that as I am 'in the system' for his NHS treatment he will still let me have my scans locally. Like you, they know me pretty well at my local hospital. I get scanned in the FMU rather than EPU due to my history of chromosomaly abnormal pregnancies so they are slightly more sensitive there than in the EPU.

PQ yes, that's where the infection is, in the portacath. It's the second one she's had in there. They tried to treat the last one with antibiotics but after a 10 day course they ended up having to remove it and put a new one in the other side. Mind you, that infection took a while to pinpoint so, like you say, finding it so quickly might be her saving grace. Her being in France is a double edged sword. It's really hard on me not being able to just pop in and see her regularly but the hospital that she is in has one of the best oncology departments in the country and France is known for having very good cancer care so they are pretty efficient.

So, I've updated the list, moving myself to 'waiting to test'. I think holding off testing will be easier for me this month. Partly because I am feeling despondent and not really expecting a BPF and partly because my step dad has ordered me a seafood platter for Christmas day (apparently that's standard fare in France for Christmas - especially as I don't eat meat) so I don't want to get a BFP and not be able to eat my lunch. Under any other circumstances I would've suggested getting a back up option but they are under enough stress at the moment, it's hard enough trying to get a present wish list out of my step dad at the moment. My AF is due any time between 23-27 Dec depending on whether my cycle decides it wants to be 25 days or 28.

BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 27+2 Due 10/03/12 next scan 30/12

2nd Trimester
Digitalgirl - High NKC - BFP cycle#2 22+0 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 18+6 next scan 14/12
Comedy - V High NKC - BFP cycle#2 ? 16+2 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 15+4 anomaly scan Jan
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid - 14+4 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 7+6 Scan 13/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 7+4 Scan 12 weeks
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle?. 4+2

TTC
Waiting to test
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov 4th cycle of pred
coleyoz - V High NKC. TTC #2 - Test 12 Dec
Snoopygirl - V High NKC TTC, #2, testing 17th Dec
Havingkittens - Upgraded from High to V High NKC TTC #1, testing 26/12

Waiting to ovulate
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle2
Suemays - V High NKC TTC#2.
buster76 - V High NKC, Factor V Leiden.
eurochick - High NKC, superovuation cycle 1, pred cycle 1

WTTC
Hopefulfor2nd - High NKC TTC in New Year
PQ77 - V High NKC TTC #2 again from January (BFP cycle one but mc)
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - (chem pg cycle 2 of pred (only found afterwards), mc @c.5 wks cycle 4 of Pred, confirmed @6wk scan) TTC#1, review w/Dr S 14 Jan.
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
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I am sure I have looked up heart rates among my many dr google sessions and yes was pleased it was a good rate. Any knowledge, thoughts, research, experience, totally unfounded opinions all welcome though. I need as much PMA as possible!

Forgot to officially welcome euro to the natural killer fold! The diagnosis is great as you now have a reason and a potential cure. If you and PQ fancy a south east London coffee do shout! We can fill you in on all we know

Right, finally out of the garage and back at a computer! I pffted at the garage, their conclusion inevitably meant £££ for them, so I told them to forget it. Saving all my pennies for next pregnancy treatment (see the subtle positivity there?). Hoping to follow in free's footsteps and actually get somewhere with the next pregnancy.

cheerful huge positive vibes for your scan this afternoon, hope everything goes wonderfully and you end up intralipided as well today. Not that I would wish a drip into their arm on anyone, but you know what I mean! Let us know how you get on, when you can?

iggi and choccy ... how are you both doing today?

buster interesting you are also on acupuncture? I wonder how many of us on the thread are, now? Me, for one, but who else?

Yay free!!! Delighted.

More later got a pile of work to do :(

free you crazy woman! They told you the heart rate was very good at the scan didn't they? Surely their word is the final word over all of us Dr Google addicts?

Bloody hell, I've just spoken to Louise and found out when my 'window' is to have my HyFoSy scan. This is all a bloody nightmare! The first window is whilst NLC are closed for Christmas. The second window is when I planned my next trip to France. If I were to have all the tests done when they need to be done I wouldn't have time to go to France at all which is not an option so it's looking like by the time I can get all the tests done it will be Feb/March before I even get back to Mr S, when I will be on the last month of Pred before I have to take a break again. Aaaaargh!

I'm another needles lady. I've been going since April/May time. It has definitely improved my cycles.

kittens I understood Mr S to work out of the Epsom and St Helier NHS hospitals as well, could you not ask Louise if it's possible to have your scan at one of those considering what you're having to juggle right now? Just a thought ..

free fantastic news 8 weeks wow so excited for you!

good luck cheerful today will look out for news,.x

Yes comedy hope all is well with you, let us know how you got on x

kittens can it get any more stressful?? nightmare, your Mum sounds like she's in the best place though. Can't believe the situation your in... Can you not get the scan anywhere else, sorry I don't know what it is. Or does Dr S have to do it?

buster when I mentioned Intralipids and Healthcare at Home he said they don't use them any more as they had problems with them?? Which is a shame as it's much more convenient and that would have to go to Epsom.

Kittens, what a nightmare! Is there anywhere else you can see him? Christmas really means sod all to me this year so its surprise to remember things will be closing and people will be going away. What dates are the clinic closed incidentally?

I've just booked a scan for 9am on fri 23rd December at nlc. Another very long ten days of mentalling, knicker scrutinising, symptom / non symptom alert.

Looks like am outta here in a bit, drip running down. Will lurk for news from other scan-ees.

That is fantastic Free I burst into tears on train when I read your post. I know there is a way to go but that is great and a strong ickle heartbeat too! X

Good luck Cheerful thinking of you and wil lurk for update.

We had our 15wk scan this morning and although I had persuaded myself all was wrong, it was amazing. We absolutely never thought this possible a year ago, but now we have hope. This treatment is the dogs doofers is all I can say. Am in London for rest of day as have appointment with St Mary's at 17:30. Finally going to start telling family and friends now.

Am on iPhone so will post properly this evening. Waves to everyone, you gus have been our rock so thank you!! X

Brilliant news from you too brownie ... you guys so give the rest of us hope!

Ahh, brownie, that's amazing .

free, Louise told me NLC was closed until 3 Jan. I can't remember what day they close. I didn't write it down as it didn't affect any of my tests. I thought she said 20th or 22nd (can't quite remember). Maybe that's for new patients, I don't know. Perhaps the have a small clinic running scans for those who are pregnant as it would be a bit of a nightmare if you couldn't get in for scans when you need them.

Louise also said it may be ok for me to have my scans at St Helier but said something to the effect of that mantra that I've come to know so well...."first catch your rabbit!".

OK, hysteria over! I've spoken to NLC and there is a day that overlaps both cycle options - ie. if I have a 24 or 28 day cycle which is the day they re-open. If it turns out to be D11 then Mr S has said I must take precautions and not TTC that month, but that's fine a I can then have a month off pred and it's better than waiting 'til feb/march for all my results. Phew! If I'm lucky, my period will come later and I can carry on as normal. If I'm even luckier I will get a BPF and save myself a lot of money!

Here's to luck, and may a good measure of it be coming all of our way in the next few weeks!

I'll drink to that x

Brownie that is wonderful news. This is turning out to be a lvoely positive day on this thead.

kittens I have just booked my pre-ov scan at NLC on 22nd so they must be open then. It has to be close to ov so they can tell you when to take the trigger shot, so maybe they are just running short clinics for those who need to be seen for scans at particular times.

brownie well done that's fab news too bet you can't believe it and enjoy spreading the good news x

Brownie that is such amazing news!! I too feel rather tearful for you. It really feels like you might definitely have the worst behind you. I do hope you and mr brownie can relax and enjoy Xmas.

Kittens thank goodness you have that sorted. Oh one of the nurses told me Christmas closing times are 23rd Dec to 3rd Jan.

The nurses and mr s were so positive for me today I feel like I would feel doubly bad now as they all want it to work out so much!

Great to hear brownie It will be so lovely to be able to start telling people.

Well my scan went well. Phew. Got a measurement of 7 wks 5 days which is spot on. Doc wouldn't measure heartbeat as a caution at this stage (first time I have had a doc hold back on that). Now checked into hospital and waiting for them to bring me my milky drip!

kittens you cope with so much, the frustration must be incredible. You need a French Monsieur S clone to set up a clinic next door to your mums.

Thanks everyone for your thoughts and good wishes, I feel a bit daft about my irrational panic the other day.

Double woohoo cheerful, that's just fabulous! This is a Good News Day on our thread, for sure!

And don't feel daft about anything .. there's no such thing as 'irrational panic' where what we've been through is concerned. Any panicking is real, allowed, and can be comfortably shared here. :)