TTC/ pregnancy on Prednisolone or similar part 3

[freelancegirl]

For those who are TTC/pregnant undergoing immunotherapy treatment. Current list as it stands, do feel free to come and join us, it's moving quickly round here!:

Tuesday 22nd November

TTC
Waiting to test
Snoopygirl - V High NKC TTC, will be Ist try with Pred, Intralipids on bfp Testing from 21/11
Havingkittens - Upgraded from High to V High NKC TTC #1 after 2 month break/testing 29 Nov -2 Dec depending on my resolve.
Waiting to ovulate
coleyoz - V High NKC. TTC #2 - ov 3 Dec (Pred and Intralipids at BFP)
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle1
batteryhen - High activation NKC, factor v leiden. TTC#1
Suemays - V High NKC TTC/ov 30th Oct. TTC#2.
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov/ 4th cycle of pred
pureequeen - High NKC TTC #2 again from November (BFP cycle one but mc)
eurochick - TTC#1 awaiting first appointment (in Nov)/ov expected 28-30 Nov.
BFPSeeker

BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 24+3 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 -19+1 Due 16/04/12 anomaly scan 23/11
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 16+1 next scan 14/12
Comedy - V High NKC - BFP cycle#2 - 13+3 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 12+6 anomaly scan Jan

1st Trimester
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid - 11+4 next scan 28/11
Scooterchaser - V High NKC - BFP cycle1 - 8+1 Due 01/07/12. Scan 25/11
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. LMP18/10 - 4+6 - Scan 3/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 4+5 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 4+5 Scan 6/12.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LMP20/10 4+4. Scan 3/12.

LMAO You ladies are cracking me up. duggs the thought of sex life prescribed by Mr S

And spontaneously sexy? I've forgotten how .. and rather lost the inclination right now :( Hoping it comes back soon, poor OH!!

Welcome back euro glad you have your diagnosis and can find your similar avatar on here for tips.

Can I ask folk about this ttc timing for sex thing as I am a bit confused and really think I am not getting it right. If dr s said do trigger shot on wed - apparently the egg is released 36 hrs later. How precise should I be for best chance some swimmers will get to the egg(s)? I think some of you first, second and third attempts ladies could share some tips for us entering our 4th or more cycles? X

Ha just remembered. I asked dr s if I should do it in the morning or the evening and he said whatever I preferred I didn't even blink then as I was writing in my little book!!! Crikey !! Now I think about it who knows what he thinks

Duggs get some of his boys up there early. They'll happily wait around for an egg to wander past. Eg last pg for me we did it 4 days on the trot until the night before smiley face on the ov stick. By which point DH and I had had enough tbh. That's the last time we did it actually now I think about it :(

Anyway I'd say crack on. And lie there with your legs in the air for a while after. We tend to watch an episode of the West Wing then go to sleep. Giving away all my secrets here, so romantic, but it gets me knocked up so happy to share!!

Hi everyone else. Survived a day in town today tho I think I'd flip if I had to deal with public transport every day. Now used to it any more.

Thinking of you free for your scan tomorrow, everything crossed for you.

iggi hope it's stopped now. Why can't it just be plain sailing?!

kittens I've no idea how you're coping with everything. We are here to listen and give virtual hugs and comfort so you carry on. Everyone keeps saying we don't know how we'd cope without this thread and its so true for all of us. Big hugs.

Sorry for lack of personals. Oh welcome to another newbie I think it's Buster but many apologies if I'm wrong I'm on phone on train and can't go back to previous screen or I'll lose this train(!) of thought.

duggs - Thanks for your info on superovulation. I'm definitely going to start this in Jan if I have no luck next cycle. I'm really fed up. I just got another BFN on the second round of prednisolone. I am youngish (30) and usually get pregnant every cycle so its a bit of a shock for me and I'm not sure if the pred and stuffed up my cycles. I'm just waiting for AF to come now (took last pred on Friday).

I was fairly convinced I was pregnant this cycle and so was my acupuncturist. She even said I had a 'slippery' pulse at 9DPO which usually indicated pregnancy. Maybe I didn't implant properly??

I'm really struggling coming off the pred too with headaches and yesterday I could barely move or get out of bed. Not great with a toddler running around - at least hubby was home to help out. I wish there was another way without the pred.

I'm glad we have one recent BFP - congrats Battery

Good luck to free for your scan tomorrow and looking forward to your updates.

Just wanted to say, something that may or may not have helped me get pg in the past (especially with daytime sex when you have to get up some time shortly afterwards) - I put in my mooncup to stop the 'fallout' and leave it in for a good few hours. In the past when I've done this I've got pg that cycle. Worth a try.

Thanks for your thoughts and letting me blow off steam here. To be honest, I'm not exactly sure how I cope either. I can distract myself sometimes and other times I just fall apart. Don't have much choice but to soldier on really!

duggs DH had borderline low sperm count (within normal range, but lower end of normal) but we did it every day - so I don't hold much stock with the whole 'depleting reserves' theory - perhaps that's for blokes with v low sperm count. Ideally, for us, it was every day in the three days leading up to ov, day of ov, and day after just to be sure. Plus an implantation shag at around 7-10 dpo. Whenever I've done this I've got pg, maybe there was one cycle where it didn't work. But the deal I had with DH was that if I'm going to be taking shit loads of hardcore drugs then the least he could do was provide the goods whenever I asked. I realise that not everyone is up for this method - and there are plenty of those who get pg on just the one well-timed shag (just not me).
My totally unscientific theory is that the more you do it, the fresher those swimmers are as they've not been hanging round for days waiting to be released. But that is totally unscientific, as i'm sure it takes something like 90 days for a sperm to be made.

euro sorry for shitty early AF , but hooray for diagnosis! Did Mr S say that NK Cells could possibly be affecting implantation? Did he suggest any further fertility treatment or to just give the steroids a go and see what happens? I shall update list with your new info in the morning.

coley sorry for your BFN too. As I mentioned earlier to Cherry, do you think perhaps you ovulated later than usual if AF still isn't here? How many dpo are you? If you ovulated later, then maybe you stopped having sex too early? Or perhaps it's still too early to rule out pregnancy?

I was just googling earlier about duggs folicles and found this:

www.babyworld.co.uk/information/trying/secretsofconception.asp

Basically the view is here that it doesn't matter too much about every other day SWI as the count is only slighty depleted and there are still millions of the little buggers!

Also read bit about sperm being cool....no tight pants/boxers for you boys out there.. shame....baggy arsed boxers are in....hang loose and cool is the way to go!

I have a feeling all those lurking OH's are not going to enjoy reading the swi/sperm related conversation currently taking to the forefront... no pressure guys! :) [inappropriately happy wave to said OH's]

Am loving all the swi chat! I don't really hold much thought with the whole depleting the stocks idea either. Dp works away from home during the week so we don't have any choice but to just go for it when we can :) This cycle I know I ovd on the saturday so we SWI on Friday, Saturday and sunday afternoon before he drove back

The only thing I did differently too was to drink red leaf rasberry tea - which was grim but I did try!

Sorry about all the crap AFs turning up and bfns. I am shifting up this bench and there is lots of room for next months bfps!!

My appointment tomorrow is at 0945, so we hope to go for some nice lunch after. free when did you drop into the conversation that you were pregnant??

Here's the updated Monday list. I think I have caught up on the thread now (but I am sure I will miss some comments I meant to make!). Welcome Buster, huge congrats to Battery. Congrats to Stogan too for reaching the 3rd trimester.

Digi when we last saw him he suggested Letrozole regardless of the immunology results so I am starting that this cycle too (just popped my first pill in fact).

We're now on cycle 14 and have hit ov or the days around it every single cycle, trying just about every timing combination along the way and got no where! Mr euro's SA is also at the lower end of normal but neither gynae we have seen has been concerned by it.

I have a question about the levels. I'm a bit confused. My count at 400+ is way above normal but the % seems to be within the normal range (I think Mr S said it should be below 12% and it was 6.9% - or have I misunderstood that?). And I understand that the activation is in the upper half of borderline. So if it'a only the absolute number that is high and not the percentage, doesn't that make me "normal"? Particularly as the activation was only in the borderline range? I didn't ask all of the questions I should have as I saw the 412 number against a 200 normal level and didn't take the rest of what he was telling me in as well as I should have (and Mr euro was late and not there for that part...). Can anyone help explain my results? I'm seeing him next week for a scan to see what the Letrozole is doing but it would be great if any of you can give me some pointers before then.

BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 27+2 Due 10/03/12 next scan 30/12

2nd Trimester
Digitalgirl - High NKC - BFP cycle#2 22+0 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 18+6 next scan 14/12
Comedy - V High NKC - BFP cycle#2 ? 16+2 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 15+4 anomaly scan Jan
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid - 14+4 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 7+6 Scan 13/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 7+4 Scan 12 weeks
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle?. 4+2

TTC
Waiting to test
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov 4th cycle of pred
coleyoz - V High NKC. TTC #2 - Test 12 Dec
Snoopygirl - V High NKC TTC, #2, testing 17th Dec

Waiting to ovulate
Havingkittens - Upgraded from High to V High NKC TTC #1
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle2
Suemays - V High NKC TTC#2.
buster76 - V High NKC, Factor V Leiden.
eurochick - High NKC, superovuation cycle 1, pred cycle 1

WTTC
Hopefulfor2nd - High NKC TTC in New Year
PQ77 - V High NKC TTC #2 again from January (BFP cycle one but mc)
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - (chem pg cycle 2 of pred (only found afterwards), mc @c.5 wks cycle 4 of Pred, confirmed @6wk scan) TTC#1, review w/Dr S 14 Jan.
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January

hi all. In keeping with what everyone else has said i have read all the posts and am thinking of everyone even if I don't mention them but as I type this tis a bit much for my bird like brain to toggle back to earlier pages and make sure I haven't missed anyone!

going back to the ancient past (Saturday) - choccy I hope your BIL realises that he has now lost his free babysitters? I will send him a link to the Sitters website with my compliments.

Hello buster! Hope you can keep up with everyones news better than I can

Free hope you are asleep for for your early start tomorrow, but i will be thinking of you first thing and anxiously awaiting your update.

Glad you have a result Euro - I think it means a lot particularly when most of us have had umpteen tests on the NHS showing absolutely "nothing" wrong with us

digi - for academic interest only (as my problem is that I am in the unfussy killer uterus camp and get pregnant every time, crap egg or not): what does an implantation shag achieve?

iggi how horrible that you have been bleeding. If you would like some unscientific anecdotal evidence that might make you feel better - every single one of my friends who has bled in the 2nd and 3rd trimester (and there have been few) has gone on to have a healthy full term baby.

duggs - your eggs sound like they are coming along very nicely!

thanks for sorting out our next meet up. i can make lunch on Sat 28 Jan, looking fwd to it. On southbank Skylon is nice but i haven't eaten there just drank & had bar nibbles (though apparently v good) or strada is tried and tested. Canteen a bit overpriced for what it is but the table set up might be conducive to a group of us chatting. Pingpong yummy but the big round tables too big for us all to talk and quite public (I think free and i thoroughly traumatised a woman on the train home the other night - don't know if you noticed Free but after 20 minutes of me laying out my miserable existence she looked like she was about ready to section me...). Back to restaurants. Giraffe is out as it is like a creche. Can you tell I hang out here a lot...but in short i don't mind where we go, will just be great to see people.

cheery so sorry to hear you have been down. I hope the rest of the week picks up for you. I was a bit of a disaster over the weekend. Friend called to cancel a date with me, which I had been looking forward to, because she was pregnant (with #2) and her morning sickness was too bad. i started crying over the phone - absolutely mortified and somehow managed to pass it off having a bad day thinking about my dad and christmas etc. So now she wants to take me out to lunch this week - she is v insistent - and she is quite possibly the last person I want to see at the moment. Gah. i know everyone else on this board knows how I feel but I think you are all better than i at keeping a lid on it!

kittens - is it a hickman line/portacath thing in your mum's chest that's infected? Great that they picked up the infection - with the right anti b's they will get that nailed (dad had one a few years ago but they were v slow picking up what was infected). Those permanent line things really gross me out but I think we could probably all do with one what will all the blood tests, injections and intralipid transfusions we are in for!

Ooo, another meet up? I must have missed that on my thread catch up. I like Canteen. I love Ping Pong but hear what you say about the tables. Strada is good. Giraffe on a Saturday lunchtime would be a BAD idea. There is also that street a little back from the river (The Cut, I think - where the theatres are) that has a bunch of restaurants on it. There's also a pizza place and a couple of other options at Gabriel's Wharf, a little bit along towards the Oxo Tower.

I think I could do the meet up too.

I posted this before but didn't get a reply: does anyone on the ttc list want some free pg tests? I have some leftover from my stash of internet cheapies and boots own brand.

Sorry not to name check this morning, still catching up. Wanted to say thinking of you this morning Free, am keeping everything crossed for you x x

Thankyou all for the lovely welcome. Thanks for the advice on injecting clexane battery, I think I'll get my DH to do it too - I could be there for hours!
We are staying at the in-laws this weekend - when I'm due to ovulate! Lets hope they pop out for 5mins (maybe 10 ) - otherwise they'll be no swinging from the chandeliers!! As if!!
Would love to meet you all, I live in the North East though. But fingers crossed if all goes to plan this month, I may have to pay Mr.S a visit around 28th for my lipids. Can they do those at Harley Street or is it Epsom only? Epsom will only take me 5 hours to get to Be worth it though.
Probably counting my chickens before they hatch!
Great hearing all your stories - you should write a book!
I found reflexology helped me conceive, Ive had acupuncture for the last fews months (thanks credit card), hoping that works.
Good Luck everyone. Hope the scan goes well today Free.

xx

Morning ladies .. Sitting not at all patiently in my Nissan garage for the third time in two weeks waiting to find out what they didn't fix (but were supposed to have) on my car's heating system two weeks ago. Lurking for free's news ...

Will catch up properly later but just a quickie from the clinic- it's still alive!! Measuring 7.6 weeks (one day less than my LMP) with a good heartbeat of 167. Am in a side room now wired up for intralipids and seeing him again at the end of next week. If I get to 9 weeks we start to taper the drugs. Deep breath, pump myself full of soya and milk infusion and neck drugs like crazy until the next scan. Agh!!! Am already mentalling at the thought of it. Gosh, there was a baby there with a spine forming, a head and limbs! Positive thoughts anyone? It's ok that it was 7.6 not 8.0 isn't it? Tallies in with his previous measurements I think. See - already mentalling!

Woohoo!!!! Excellently fabulous news free, that's so good to hear! Yes it's absolutely fine that it's 1 day "out" .. babies develop at different rates at different times throughout your pregnancy, one day is nothing.

So so very pleased, lots and lots of positive thoughts heading your way!!!

Hi Ladies

Free thinking of you and your scan this morning. Hope it's all gone well and you are sitting there with that drip in your arm right now.

I have a scan this afternoon, depending on the results I will then go for intralipids straight after. I am so nervous, the build up to these scans is just so stressful and I hardly slept last night again. Everything was fine until Sunday when I have noticed a definite marked decrease in all my symptoms. I even have loads of energy. Can't even blame the pred for messing with my symptoms, because I don;t take it. Anyway, I'll report back later.

iggi how are you getting on?

Ari - i feel your pain with the car. My car is also in the garage racking up a huge bill in the garage and DH's just needed all tyre replacing. There goes the TV we were going to treat ourselves to for Christmas.

I am really jealous of this meet up. I used to live in Waterloo and would love to go round there for lunch !

Very reassuring to hear we have some nurses in the house!

Buster - welcome! I'm not sure about this but I thought you could get intralipids done at home through a scheme called somethign like NHS at Home or something like that? I have read about it on these sorts of forums but don't know the details. Might save a long and expensive trip to London? Maybe one of the others knows more about it.

OMG Free brilliant news! Don't be daft - of course it's alright that it's just ONE day different from 8! It's not that accurate but also remember you have been scanned very early in the morning so fetus hasn't even had his full day of growing yet - give it a chance! Have an intralipidtastic morning!

Hooray! Fantastic news! Been lurking at the train station waiting for your post - keep bumping into grumpy commuters as glued to my phone! Xx

Fan-tastic!!
Lots of postive vibes! xB

Good luck with scan today cheerful sending lots of positive thoughts your way Xx

Really must try and actually get on a train now.

When I asked Mr.S about having lipids at home, someone I know had then at home (she saw Mr G on Harley St), he pretty much point blankly said no. I asked him about having scans at my local hospital too - they know me quite well now!
He said no to that too, saying it was him who was prescribing so his registration on the line if anything were to go wrong. Can see his point, going to be a nightmare travelling though, hey ho!!
Good Luck with the scan cheerful.
xx