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Conception

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TTC/ pregnancy on Prednisolone or similar part 3

993 replies

freelancegirl · 22/11/2011 16:20

For those who are TTC/pregnant undergoing immunotherapy treatment. Current list as it stands, do feel free to come and join us, it's moving quickly round here!:

Tuesday 22nd November

TTC
Waiting to test
Snoopygirl - V High NKC TTC, will be Ist try with Pred, Intralipids on bfp Testing from 21/11
Havingkittens - Upgraded from High to V High NKC TTC #1 after 2 month break/testing 29 Nov -2 Dec depending on my resolve.
Waiting to ovulate
coleyoz - V High NKC. TTC #2 - ov 3 Dec (Pred and Intralipids at BFP)
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle1
batteryhen - High activation NKC, factor v leiden. TTC#1
Suemays - V High NKC TTC/ov 30th Oct. TTC#2.
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov/ 4th cycle of pred
pureequeen - High NKC TTC #2 again from November (BFP cycle one but mc)
eurochick - TTC#1 awaiting first appointment (in Nov)/ov expected 28-30 Nov.
BFPSeeker

BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 24+3 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 -19+1 Due 16/04/12 anomaly scan 23/11
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 16+1 next scan 14/12
Comedy - V High NKC - BFP cycle#2 - 13+3 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 12+6 anomaly scan Jan

1st Trimester
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid - 11+4 next scan 28/11
Scooterchaser - V High NKC - BFP cycle1 - 8+1 Due 01/07/12. Scan 25/11
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. LMP18/10 - 4+6 - Scan 3/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 4+5 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 4+5 Scan 6/12.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LMP20/10 4+4. Scan 3/12.

OP posts:
Comedyworks · 10/12/2011 12:54

Hi all - it's been a long week - so need to catch up. Great to see there is another BFP though - great news!
Looking forward to meeting Duggs sue scooter and snoopy later - I'll be looking out for fur and maybe some 'rounded' faces! (or is that just me!)
Have as good a weekend as everyone can xx

suemays · 10/12/2011 13:21

Choccy I would text them a piece of my mind - talk about insensitive! I should imagine most of us without kids would not want to be around other peoples kids anyway when a miscarriage is so recent. A good blast of Colin Firth will help I am sure! I think we all need to listen to you as we will all beat this! Only the ladies that give up dont get their baby - that's my opinion anyway.

Scooter hope you can make it today but understand if it's too far.
I won't be wearing a fur coat as that is a Christmas pressie from DH but will be in a black coat and blue top. It will be a bit like a blind date!

Duggs cant believe you are stalking old ladies in fur coats - how funny!

Well done Stogan for getting to your 3rd trimester! It's natural to start worrying about the birth. I think as soon as you are pregnant the worrying never stops. I still worry about my DD when she is in bed at night and check on her even though she is 3. My mum told me she still worries about me!

Lemon time does drag when you are waiting for your body to get back to normal after a miscarriage. It's crazy as it's the only time you are wishing for the dreaded AF. I think my last one came back around 6 weeks after the miscarriage.

lemonsherbet · 10/12/2011 13:21

choccy SIL news is about a week old. Announced they were going to start TTC and got pregnant within first month and sailing through it. Decided to telephone late one night after they had heard we had seen Mr S to tell us. They know about all 3 miscarriages. Have been fine when friends have told me they are pregnant just this one really struggling. But I think it is partly MIL fault she seems to think we will never have a baby and this has just escalated it to a whole new level. When I have been pregnant in the past and told her and she has asked how many weeks she will then say something like well plenty of time for it still to go wrong. She even did that when I was 16 weeks. Sorry this is not the place for MIL rant that would be a whole new thread.

I am so sorry about BIL can not believe the nerve. You were doing them a favour. I guess they have never had a miscarriage. Am really Angry for you.

ChoccyPud · 10/12/2011 13:47

Lemon, the irony (if that is the word) is that SIL had a termination at about 12 weeks or so due finding out at 12 week scan that the baby's brain wasn't developing at all and it wouldn't make it to term. Chromosomal problem. This was c.4 years ago between their ds and dd.

I'm sure SIL would not display the same attitude as BIL. But it's not as though BIL hasn't been through a "non plain sailing" pg.

I know what you mean about family pg's - its just too close to home and such a direct in your face comparison. My other SIL is pg with their second due May. My mum told dh last week when he called to tell her about my mc so he knew and could prepare me for it when he thought it as the right time to tell me. We are supposed to see them at Xmas so that's another thing to think about whether I am ready to handle it, but which I'm putting off still. What seems so unfair is worrying about spoiling their day by being down, or snapping something about they don't know how lucky they are, or you telling MIL where to get off with her thoughtless remarks.

We could turn it into a whole other thread, but it's really all about how we handle our grief/stress/mentalling and how others react to it and how we try to pussyfoot around their emotions when we should be looking after our own.

Have a lovely time this afternoon ladies... scooter I did the Farnham thing too, you aren't the only one!! Blush

Cheerfulcharlie · 10/12/2011 15:23

Wow-ee. Cannot believe these in law comments. Unbelievable. Hope you guys manage to find the patience to rise above it.

lemonsherbet · 10/12/2011 16:10

charlie it is OK, think some people just do not think and it is hard to know what this is like unless you are going through it. I think if anything this has made me a more understanding person to others. Does that make sense? I look back at what I would of said to someone after a miscarriage and realise that at the time, I thought I was being sensitive, but now I realise I could of done a lot better.

choccy sorry realised I was very judgemental that your BIL did not know what a non routine pregnancy was like. I hope that you get to enjoy some of strictly tonight and actually get a chance to relax and have some me time.

You can all see I am having a mumsnet addicted day. Hope the meet up is going well. Anyone seeing Mr S soon?

ChoccyPud · 10/12/2011 16:39

I didn't think you were being judgemental at all lemon. Indeed I think it's worse that BIL responded as he did when he has experienced a loss.

Looking forward to the stories from this afternoon's meet up!

Comedyworks · 10/12/2011 19:59

Lovely meet up this afternoon - really enjoyed meeting you Duggs sue snoopy and scooter - thank you all. As we've all said so good to talk to people who understand. Really think you are being very strong scooter by the way.

I am seeing Mr S on Wednesday this week - although sixteen weeks does give you some confidence still very nervous - excited about the possibility of finding out son/ daughter but fearing the worst as well.

Hope everyone is having a good weekend - possibly wrapped up warm watching strictly like me!

snoopygirl · 10/12/2011 21:02

Hi all,

Yes lovely to meet you all - your all lovely wise ladies and i just wish I had a bit more to wisdom to impart but spose i''m just on start of pred journey really. So it's been straight 5 m/c's on own without sharing it all on board like this. Dead glad I've found you to go through it with.
scooter echo what comedy says and wanted to give you bigger hug but felt that was bit friendly on first date! don't think i could have met up so soon after without crumpling.
comedy you look blooming and am wishing you all the luck for the future you so deserve it. let us know how scan goes.
sue sorry didnt' get to talk much, if def no luck for you this month then hopefully he will consider you for the Sup Ov program, hope things improve with OH. message me if ever you want to spill it out. I'm a good listener.
duggs hope Sup Ov scan goes well and looking forward to reading the results of your scribblings and some new analysis from you!

Tick DS asleep, Strictly, and meal 4 one, next up x factor, wine and christmas bickies...whoops.
x

scooterchaser · 10/12/2011 23:42

Ditto so great to meet up.
So uplifting to be talking so freely to such lovely people on the same journey. Possibly not so uplifting for the people on the next table to overhear, but quite rightly sod em!

Sharing all our knowledge is so important. Even without my follow up appointment, I feel like I have a few ideas to improve my chances for catching a good one next time and a realistic though patience-testing timescale (oh we were such geeks and wrote it down in Duggs's little book!) Thanks guys :) feeling positivity creeping back again.

Comedy you were inspiringly glowing today and will be crossing everything for a happy scan on Weds.

Snoopy enjoy preps for that well-deserved holiday. PS believe me I do crumpling too. It's usually every other day... today was a smiley one, possibly won't venture out from the duvet tomorrow. At least it's good to be prepared for the crash landings.

Sue & Duggs we shared some great tips (note to the team: apparently we are to stay off immune-boosting honey!) let's hope this next cycle is the one for both of you. Bring on the new year BFPs.

duggs1976 · 11/12/2011 01:16

Hilarious . . Just read the posts from earlier! Yes "pub diagnosis took place" in my little book. No honey or royal jelly tablets, no swi everyday - must be every other, longer on pred for scooter, some mid ov scanning for sue! Tis all in there, we could open an advice line.

How is sat 28 jan looking for a lunch on southbank ?

comedy I've thought about u a lot since and u r inspirational. scooter ive seen u twice this week and reckon you've OD'ed on the "inappropriate happiness" front as u certainly seem in good spirits. sue reckon you r PG or if not reckon u should talk to digi as think u shagging when u should be testing etc. A round on super ov will give u an ideas of what's happening inside if nothing else. snoopy I wanted to hug u you looked a bit shell shocked that we were all there. The young chicks behind us r scarred for life now and I do feel stronger and energised mentally and physically after real life meets. If anyone can meet even 1 person from here it has to be a good thing.

Hope all is well - is free ok ? X

Cheerfulcharlie · 11/12/2011 03:31

I've had a horrible night - woke up at 3am to find boobs no longer sore and now I feel convinced it's died. So stressed out. Have to go to works as I have an important client meeting but I feel so knackered from lack of sleep I can barely think. Can't get a scan until tues either as my dad is visiting for a couple of days :-(

duggs1976 · 11/12/2011 08:05

Hey cheerful when was last scan? Boobs will fluctuate ESP on pred...what a rollercoaster for us it makes me so Angry when I think about the "journey". I've never got past 12 wks so maybe a more experienced one of us can back me up about fluctuating symptoms ? Big hug to you honey you are still pregnant - boobs aren't a reliable enough guide. X

duggs1976 · 11/12/2011 08:11

Just asked dr google - " my boobs aren't sore anymore in early pg" - baby centre thread !! It's quite normal for symptoms to fluctuate. Sorry I can't copy link as on iPhone in bed. Am sure you've read it. X

Comedyworks · 11/12/2011 08:34

Morning cheerful useless a piece of advice as it is try not to worry - I had almost no breast soreness on the pred just occasional and it has only kicked in now I've weaned off them. I've been sore at times from the constant prodding rather than soreness itself. I know loss of tenderness can be a sign of miscarriage but do remember that our cocktail of drugs has an even greater effect and I didn't realise how much until I came off them. Take care and fingers crossed for Tuesday xx

scooter Duggs and snoopy thank you for your lovely comments I don't think I've ever been described as 'blooming' in pregnancy - usually 'pasty' 'palid' and 'sickly' are more appropriate so thank you! Hope we can do it again at some point + 28th Jan good for me Duggs*. X

batteryhen · 11/12/2011 09:02

Cheerful, agree with the others, symptoms do come and go so it is probably just that. It is such a worry though so hugs to you x

On my phone so can't post much. The meet up sounds great, I wish I could have been there x all is ok here . Had dps Xmas do lots of free wine and cured italian meats which I love but was happy to stay away from !

Will post more tonight , have a good day everyone x

scooterchaser · 11/12/2011 09:55

cheerful remember pregnant until proven otherwise. I went to two of my scans with a complete absence of symptoms, feeling doomed, and found a little bean chugging away. Symptoms always came and went when pregnant with my son and I just didn't know any better then so it didn't bother me. I remember thinking that perhaps it was all a dream when I felt totally normal. Hope today goes quickly for you and you start to get some other reassuring signs but try not to panic if you don't. Keep thinking some women have no idea they're pregnant til they give birth....btw who ARE these women and can they please spread a little ignorance in our direction because it is so appealing.
Sending hugs and may time speed til Tues scan for you x

choccy hope your Colin Firth therapy gave you just a moment of 'inappropriate happiness' this weekend and that BiL has been suitably blasted for his comments. Hope they had to stay in and reflect on how very lucky they are to have their kids because it sounds like they needed to get things in perspective. Sunday hugs to you too.

digitalgirl · 11/12/2011 10:46

cheerful my boob tenderness came and went a lot in first trimester. Actually went up a notch after I came off pred (as comedy has already mentioned).

battery how are you this morning preggars? Feeling totally normal if not a little wired on the pred? I very very nearly bought some Parma ham the other day as I miss eating it so much. (i did however succumb and ate some m&s tempura prawns). But hooray for lovely chrismassy distractions getting you through these early days. What date is your 6 week scan? I'll add it to the list.

Glad to hear yesterday's meet up went well. It's amazing what a bit of group therapy can do.

I was at home making Christmas cards with ds, except he got bored about 5 minutes into it and went off to do some painting instead. Cards all done now, just need to write them out. We were meant to go to a xmas cocktail party last night but it got cancelled. So got the presents all wrapped too - just need the last few bits and pieces (ds, dh, dsis and dmum - ah right, the most important ones...) Right - off to get those last bits now. Will catch up more later.

ChoccyPud · 11/12/2011 11:01

cheerful just to echo Scooter, try not to worry too much. Get a scan ASAP so you can have a look in there. Hugs

LMAO at Scooter's comment about BIL... You're quite feisty for a small girl aren't you?!! And yes a little bit of P&P is always cheering... sigh :)

Hi everyone else... Ari any news from second hcg test on Friday? Free how you doing?

freelancegirl · 11/12/2011 11:04

Hello all, am in Brighton for the weekend and not ways got connection here so haven't cracked open the laptop all weekend! Been quite nice really as usuall am welded to it. Have been lurking on phone but difficult to be posting much.

Choccy so sorry it all seems to have hit you, it's bound to catch up with you after everything you've been through. I hope you're looking after yourself and just taking it easy.

Cheerful I am with you on the symptom spotting/ symptom disappearing so I can't talk, but the others are right, things ate different on the Pred and mr s even said symptoms can be masked so we just have to trust in the PUPO theory! Hard I know. I am with you, my boobs only occasionally 'feel' anything. Am thinking surely if I were properly pregnant they would be doing something!? I always think that having not had a successful pregnancy to compare to is a disadvantage but maybe in some ways it leaves me blissfully ignorant too. Try not to mental too much, it's not going to do you any good. But we are here for hand holding.

I did v well with the party last night. Told a couple of friends am very close to and drank clear drinks all night from dh at the bar. Stayed out till midnight, but it's amazing how alcohol makes it much easier to sit in one room for hours and hours. Sober it's not the same. One of the girls there was pregnant and hadnt found out until she was 14 weeks!!! Imagine. She's had no horrible first trimester and some of here have had 10 months of that this year, with nothing yet to show for it. Mind you, she wasn't TTC so it took a bit of adjustment for them as they are both v high flyers with a penchant for exotic travel and had no near future plans for kids.

Another weird thing happened to me regarding kids yesterday. It affected mea bit. We had lunch with friends and their friends and one of the women asked if I had kids. Usually I say 'not yet' quite genuinely as I am of the age, I have always thought, when it's still a possibility, but she said 'it's unusual to meet people who don't have kids'. It was weird, like it's a done deal! I later flung out that she is 50 and maybe she thought I was older too (hope not, as I like to think I can scrub up ok when I need to) but also I think there was something in my demeanour that gave me away as being awkward about it this time. As really what I wanted to say was well I am hoping to have one by July, if I could just stop killing these damn babies.

Also odd for me is that only around half if my social circle DO have kids, ad again we are still at the age (again, I hoped) that it's either just happening or still being contemplated! Maybe I am bring over-analytic being my current state.

Anyway, am wittering. Fluctuating symptoms from me here too. Definitely a lot more stretching-like movement than previous pregnancies but who knows if that's good or bad?! Oh, and I just had honey on toast for breakfast! Agh!

Love to all xxx

OP posts:
freelancegirl · 11/12/2011 11:10

Waves to scooter, Digi and choccy who I crossed posts with. Digi, sounds lovely and festive. I love the idea of doing Christmas properly but then forget and barely send a card or buy a present! Might get something for the people who spend Xmas day with but as a family we have no real Xmas traditions and my parents, who spoil me rotten throughout the year, aren't that into Xmas presents. Dh and I rarely get each other anything either! And are often somewhere sunny for Xmas and new year. Grounded this year of course so maybe I should make more of an effort!

OP posts:
Arianrhod · 11/12/2011 12:02

Hi ladies .. Sorry not been on since Fri but things so manic here haven't been able to get the laptop out, and on phone now so apologies for lack of meaningful content! I do not get on with the keyboard on the iPhone at all, drives me bonkers!

Well in a nutshell hCG level dropped as it should Fri so Mr S happy all is ok, as we thought. Just waiting for bleeding to stop and results of NK cell testing, then appt with Mr S on Jan 4th to talk about what next.

choccy how you doing? I read all your posts, you are absolutely allowed to feel as you do and bugger off to anyone who is less than sympathetic or doesn't understand. Sod 'em, you take care of yourself.

cheerful definitely lack of boob soreness (and generally fluctuating on/off symptoms) are very common for early pregnancy, even more so for those on Pred. I know that doesn't help a great deal, but hang in there until you can see for yourself what's going on inside.

Laughed a lot to hear about the written analysis going on at the meet-up, but what's this about royal jelly? I take that as it's supposed to increase egg quality, so a bit alarmed to hear I shouldn't be??

free hope you're doing ok today? Don't you worry about those who make comments about when people should or shouldn't have had children by. It's easy for outsiders to judge, although they shouldn't. Ignore them, it's just ignorance.

digi I am further awed by your domestic skills. Making Christmas cards, all your present wrapped?? I couldn't even manage decorating the tree with DD yesterday, we were supposed to spend the afternoon doing the tree but she decided after about 2 minutes she didn't want to after all. Oh and after going out especially to buy blueberries because she wanted to bake blueberry muffins, which we then duly did, when they came out of the oven she then decided she didn't like them! Aarrgghh.

Right, decorating to do .. /waves to everyone, hope you're all having fun whatever you're up to today!

iggi999 · 11/12/2011 18:48

My phone broke on Thursday and tonight is the first chance I've had to get on the computer - my life is empty! Hope everyone is ok and I will read back through once ds is asleep.

Coconutfeet · 11/12/2011 21:36

Bloody hell Choccy ? your BIL is unbelievable. I understand that it?s a bit inconvenient for them but you?ve just lost a baby for God?s sake. I can?t believe how little compassion he?s got, especially as they?ve experienced a loss themselves.

Lemon ? Your MIL too! I wonder exactly how she thinks her comments are helpful.

Glad your meet-up went well yesterday ladies. I?d definitely be up for the 28th.

Charlie ? I second all the others about fluctuating boobs, especially on the pred. How are they doing now? (slightly odd question I realise, but hopefully you know what I mean)

Free ? Sorry to hear that woman upset you. To her it was probably a throw away remark but I can see how it really hit home. Those kinds of comments really throw you off don?t they? I remember being out with some local mums (who I know in a we?ve-all-got-similar-age-kids-so-do-things-together-but-we?re-not-that-close-kind-of-way) shortly after yet another mc. One had two small children and was struggling with it all. In a jokey way she asked me if I wanted the baby and it really upset me. Stupid really, as it was just an off the cuff comment, but I found it really difficult to respond to. Then, I thought, I bet I?ve made throwaway comments to people that have upset them at similar times.

Stretching feelings sound promising BTW!

Ari ? Really glad your levels have dropped. That must be a relief. I really hope the bleeding stops for you and you can start to move forward.

I made the mistake of ?popping? to Westfield this afternoon for a spot of shopping. Unsurprisingly it was horrendous and I quickly dashed to a café for some respite before heading home again. I haven?t managed to write a single card yet. Ds and I made some mince pies the other day but that?s about as festive as I?ve managed to be so far.

Hope everyone else is OK!

suemays · 11/12/2011 22:16

Snoopy Duggs Scooter Comedy it was great to meet you all yesterday - I left on a high and I can honestly say it was the first time I felt like I have laughed in ages! It was great to talk to people who understand and can offer other ideas and ways of dealing with things. It was a bit ironic that there were 2 lesbians on the table next to us and not a fur coat in sight!

Snoopy thanks for the offer of support etc, I may just take you up on that.

Duggs I will PM digi as my cycles are so messed up. Did another FRER test today which was a BFN so it was my AF coming early. Hopefully I should be OV this week so can start the process again.

Comedy you certainly are blooming in pregnancy. After everything you have been through, you deserve some good news with this pregnancy. It was interesting that Dr S told you that once you get to 10 wks and have a good scan you are more or less out of danger. I can only dream I will get to that stage!

Scooter you are coping so well and it was good to try and make some kind of sense of your recent miscarriage. Hopefully by the time Duggs has compiled her charts and lists we may know more than Dr S!!!

I will try and make it on 28th Jan but not 100% sure as its the FILs birthday that weekend so we might be out for a meal. I am also happy to meet up closer to Banbury or Farnham (in Surrey) another time.

Ari I read on another board somewhere that as honey promotes the immune system maybe we should avoid it? It makes sense as you drink honey and lemon when you have a cold etc. We are supposed to be controlling our immune systems with killer cells. I used to take bee pollen but have stopped now. I think Duggs needs to write all the 'facts' in her book for us as there are probably other bits of info that we might want to take heed on. So glad your levels have dropped - must be a big relief!

Cheerful my boobs would ache on and off with my DD so dont read too much into it.

Free its horrible in the first trimester when you want to tell people you are preg, especially to shut people up that are insensitive! Did she have kids? Maybe there is some underlying history with her?

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