TTC/ pregnancy on Prednisolone or similar part 3

[freelancegirl]

For those who are TTC/pregnant undergoing immunotherapy treatment. Current list as it stands, do feel free to come and join us, it's moving quickly round here!:

Tuesday 22nd November

TTC
Waiting to test
Snoopygirl - V High NKC TTC, will be Ist try with Pred, Intralipids on bfp Testing from 21/11
Havingkittens - Upgraded from High to V High NKC TTC #1 after 2 month break/testing 29 Nov -2 Dec depending on my resolve.
Waiting to ovulate
coleyoz - V High NKC. TTC #2 - ov 3 Dec (Pred and Intralipids at BFP)
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle1
batteryhen - High activation NKC, factor v leiden. TTC#1
Suemays - V High NKC TTC/ov 30th Oct. TTC#2.
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov/ 4th cycle of pred
pureequeen - High NKC TTC #2 again from November (BFP cycle one but mc)
eurochick - TTC#1 awaiting first appointment (in Nov)/ov expected 28-30 Nov.
BFPSeeker

BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 24+3 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 -19+1 Due 16/04/12 anomaly scan 23/11
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 16+1 next scan 14/12
Comedy - V High NKC - BFP cycle#2 - 13+3 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 12+6 anomaly scan Jan

1st Trimester
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid - 11+4 next scan 28/11
Scooterchaser - V High NKC - BFP cycle1 - 8+1 Due 01/07/12. Scan 25/11
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. LMP18/10 - 4+6 - Scan 3/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 4+5 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 4+5 Scan 6/12.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LMP20/10 4+4. Scan 3/12.

Updated with Cheerful's new scan date. Couldn't figure out how to underline.

Wednesday 30th November

TTC
Waiting to test
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle1 test 4 dec
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov 4th cycle of pred
batteryhen - High activation NKC, factor v leiden. TTC#1 Test 10 Dec

Waiting to ovulate
coleyoz - V High NKC. TTC #2 - ov 3 Dec (Pred and Intralipids at BFP)
Suemays - V High NKC TTC#2.
eurochick - TTC#1 Awaiting NKC results/ov 28-30 Nov.
Snoopygirl - V High NKC TTC, #2, ov 10th Dec ish
Havingkittens - Upgraded from High to V High NKC TTC #1
pureequeen - High NKC TTC #2 again from January (BFP cycle one but mc)
Hopefulfor2nd - High NKC TTC in New Year
BFPSeeker -

BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 25+4 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 20+2 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 17+2 next scan 14/12
Comedy - V High NKC - BFP cycle#2 - 14+4 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 14+0 anomaly scan Jan
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid -12+6 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 6+3 Scan 3/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 6+0 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 5+6 Scan 8/12.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LMP20/10 5+5 Scan 3/12

Thinking of Scooterchaser :(

Forgive the pun but I really think we just have to take baby steps towards the safer (but still not guaranteed safe) ground of post 12 weeks or at least 10ish when the placenta's taken over. I think my brain now refuses to try to compute anything more than the next scan/intralipids whatever. Which is why it's good IMO that Mr S regime requires us to go for appts every other week at least.

Yes free, completely distracted today :(

Was just thinking, it's weird how we get dated, going on LMP rather than OV date where known. I know some people obviously don't know their OV date, but where they do, you would think that would be used? I'm apparently classified as 6+0 today because my LMP was 19/11, but I OVd 3 days late on CD17 rather than CD14, so on 04/11, which surely will put my bean (assuming there is one) back on dates? In other words, come next week at my scan when figures say I will be 7+0, in actual fact little bean will only be .. what ... 6+4? So less chance of seeing heartbeat anyway? sigh As has been said truly so many times, this really is a headf*ck ...

Agreed choccy, I am relieved in a way that we do have to go for such frequent appts. I cannot think past next week, one week at a time.

And I agree with you Ari re dating I was saying that exact same thing to dh last night wrt free's LMP being earlier than mine but ov later and her having seen a hb yday... Total headfuck

Thanks for the update free .sorry I'm on ny phone and can't work out how to copy and paste. I read a study they did on intralipids and the NK levels were still reduced after 4 weeks in all the women. Many more had reduced levels for several weeks more too. I had my first intralipid at 3w 5 days, so was just going to go 4 weeks later but I doubt a few days earlier or later would do any harm.

I am thinking of scooter lots today too :(

I worry about the whole 12 week thing - if the placenta is supossed to take over around 9 weeks - why did I lose both my last pregnancies at 10 and 12 weeks? I worry that it's not my NKC causing the problem and the the programme won't work for me. I realise also I need to get a grip as I am not even pg yet ....x

There's a lot of mentalling going on around here today isn't there! Aggh! And the most frustrating thing is all we can do it sit and wait :( . We sit and wait to get pregnant, when we are pregnant we sit and wait and wait some more.

Although I guess, as I keep trying to tell myself, following the treatment in the first place from TTC to pregnancy we are doing all we can. I think we all go through the 'what if it is something else other than NKC' and also 'what if the meds aren't working' thing (I particularly get the latter) battery but I guess we just have to try to trust in the treatment. Easier said than done. Am still in mentalling mode along with the rest of us it seems.

Choccy it is weird about you and I having weird dates. I have looked at the list and tried to work it out before. I was guessing I ovulated around Day 14, but this time I was actually only guessing. I guess (a bit of a running theme...) it is because the whole due date estimating thing (lets pretend for a moment we are in the 'oooh I am pregnant, that means I am having a baby on xx a date' crowd) is not really an exact science and we might all give birth within a couple of weeks either side of any due dates. Gosh, wouldn't it be nice to think 'I'm having a baby' rather than 'When is this going to go wrong'...

On a lighter note, today I have discovered hot Ribena and can't believe I haven't tried it before! I also bought a dress from Zara. It's a snakeskin print shift dress with a black panel down the middle (slimming) and an elasticated bit around the waist (handy for hiding any bloat). Felt I needed some retail therapy. If anyone needs a party dress do go in and see it. It has longish sleeves too so reasonably practical (well, as practical as a snakeskin print dress can be).

Following on from the more positive vibe - those up for the meet up next Tuesday how about Charlotte street hotel - in Charlotte street - googe st tube. It does afternoon tea as well as wine so caters for all. I'll be there from 6 ish so folks can join anytime.

Those further away we will fill u in with updates. X

Oh hot Ribena, that's been a fav drink of mine since I was a child. Yet you mention it to most people and their noses screw up like I'd just suggested they eat marmite and dairylea on toast. Which I can also recommend

So gutted I can't come to the meet, would mean a days travel for me

Hope u all have a fab time and can't wait to hear how it all went ! X

Have been trying to get my head around the stats and at a glance, despite the recent tragic events - we're still doing rather well for a bunch of women with killer wombs.
I think iggi in particular is flying the flag for those who are embarking on their second pregnancy on treatment. Without wanting to put any extra pressure on you iggs getting to second trimester is an amazing achievement and something that all of the women in the first trimester look forward to.

I also wanted to say to those worrying about miscarrying around the 8-9 week mark, my last mc was detected at 8+3 with the baby measuring 8+1. I wasn't on the treatment, but if I was it wouldn't have made any difference because the karyotyping revealed the baby had triploidy - a chromosomal problem. There was nothing I could have done to prevent that from happening. And I think that's the key thing to try and hold onto - you are all doing everything possible to make your pregnancies work. Sometimes that's not enough, but it won't be because of anything you are or aren't doing. As difficult as that is to accept - it means that no amount of worrying wil make the slightest bit of difference.

I know how hard it is getting through those first few early weeks. It's really unsettling when one of us miscarries, especially when they're 'close' to you in pregnancy terms. When Georgie (from the first thread) miscarried I felt the rug had been pulled from under me. She was only a week behind me - I felt that the same could easily happen to me. But it didn't and I'm so so grateful...and I hope that I too can be one of those that offer you all hope that there is life beyond the first trimester. If it's not too unsympathetic to say, I felt the baby kick lots today. And it really made me smile that this baby is reminding me all the time that they're still there.

Just got home from work and am so very very sorry to read about your loss scooter - thinking of you x

Hi to everyone else and very much with you regarding the very big space these pregnancies / TTC are taking up in our brains. Amazing we hold down jobs really!

Sorry if I've said it before but free I've had a lot of pain on lower left to the point where around 7 weeks I thought it was ectopic but was told that it could partly be caused by constipation - which made a lot of sense for me!

Looking forward to meeting some of you next week - I won't be able to get in until closer to eight I think x

Ah and Charlotte St Hotel is minutes from my office so I'll be there super early too!!!!

Thanks digi. We need these kinds of reminders. I guess we were also " supposed to be having kids in our early 20's biologically - don't know about anyone else but I hardly knew WHERE I was during most of my 20's let alone where I was headed. My auntie - not a blood relative - told me out of the blue she had 7 miscarriages, 3 still births and she is a mother of 3 -40 somethings and a grandmother to 5. She was a nurse and am sure started in her early 20's but she was quite matter of fact and said back then they just said wait 6 mths an try again. Not an awful lot of progression over past 40 yrs then but her eyes widened when I explained about the cocoon thread. She said her mother hardly knew let alone anyone talking about it. I guess women over the ages have had to carry many burdens and I have to say -later life stage families (late 20's onwards) - and other modern afflictions -PCOS etc) are def the curse of our generation.
BUT we r lucky enough to have got this far with the best attention in the world and each other so we can smile to ourselves for that. Strong women the lot of us x

Updating my testing and ovulation date:
Wednesday 30th November

TTC
Waiting to test
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle1 test 4 dec
Suemays - V High NKC TTC#2. OV 23 Nov, testing on 7th December, pred cycle no. 3
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov 4th cycle of pred
batteryhen - High activation NKC, factor v leiden. TTC#1 Test 10 Dec

Waiting to ovulate
coleyoz - V High NKC. TTC #2 - ov 3 Dec (Pred and Intralipids at BFP)

eurochick - TTC#1 Awaiting NKC results/ov 28-30 Nov.
Snoopygirl - V High NKC TTC, #2, ov 10th Dec ish
Havingkittens - Upgraded from High to V High NKC TTC #1
pureequeen - High NKC TTC #2 again from January (BFP cycle one but mc)
Hopefulfor2nd - High NKC TTC in New Year
BFPSeeker -

BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 25+4 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 20+2 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 17+2 next scan 14/12
Comedy - V High NKC - BFP cycle#2 - 14+4 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 14+0 anomaly scan Jan
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid -12+6 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 6+3 Scan 3/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 6+0 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 5+6 Scan 8/12.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LMP20/10 5+5 Scan 3/12

Thinking of Scooterchaser

Free dress sounds lush, will have a look in a minute!

I also echo all the sentiments about having each other to talk to. I am finding this a lot easier than before mainly down to all of you!!!

Hello, wishing I was coming to the meet, would be lovely to meet you all.
Told some friends when out for dinner tonight - find it hard being asked stuff about when I'm going to stop working Other people are a thousand times more positive about my pg than I am! Think I'm going to book a private scan for next week, when I'd be 15 wks. Wore a maternity dress today for first time, made me look enormous! But that's quite nice.

YEY digi for the baby kicks, isn't it awesome !!! The strangest feeling ever but fantastic too. X

Marmite and Dairy Lea on toast Ari?? I could just eat that!

I have been pretty nauseous all day actually, that and needing to EAT SOMETHING NOW quite often. Of course I can?t just accept that this might actually be a pregnancy symptom. My current way of thinking is ?oh am I getting ironic pregnancy symptoms just as something starts to go wrong?. I have spent most of the day sitting around having lunch and then tea in random cafes. Also had to go to the Docs and then chemist to arm myself with more drugs.

Thanks for the positive words Digi. I think we all need that after the couple of days we have had here. Iggi is indeed doing amazingly and so are you and Stogan. Kicks!! And Coconut, Comedy and Brownie too. Can?t believe I am top of the first trimester list at only 6.3 (or whatever it turns out to be on Saturday). There?s a big 6 week gap now between the second trimesters and the firsts.

Charlotte St hotel sounds great to me! I can be there 6pm too being that I probably have sod all else to do

AND I know what both Digi and Duggs look like so that will be good. The rest of you can shuffle in like new girls and we can have that weird awkward bit where we all get to know each other in RL and call each other by our MN names. Shall we create an email address master list so we can email names and details of meet up?

Sorry, voice of misery here. I need to let off a bit of steam as I feel like my head is going to explode sometimes...

Don't even get me started on the 12 week mentalling. After my first pregnancy, during which I started bleeding at 10 weeks and found out I'd had a MMC at 11 weeks I was offered an 8 weeks scan in my following pregnancy. Considering my first pregnancy stopped growing just after 8 weeks it wasn't much consolation to see a heartbeat at 8 weeks, especially when I ended up finding out at the Nuchal that things were not as they should be, and terminated the pregnancy. Having had that particular joy happen twice in a row too means that even if I don't miscarry my next pregnancy before 12 weeks (if I ever even get pregnant again, that is!) I won't be able to relax until I at least get my CVS results back, or until I have an unremarkable anomaly scan.

I'm so totally overwhelmed by all the stuff that's going on at the moment. I'm in the middle of 3 separate, enourmously heartbreaking situations with my 3 closest family members. I fear that if I loose a 7th pregnancy in amongst all of that I might also seriously loose my mind with it.

Sure . . . I'll pm those who've said yes to meeting and I'll take it from there x

BTW, I am around (so far) next Wed too. digi might know what I look like as she's seen my website. I know what free looks like... off the telly. I have a rather distinctive feature which makes me easy to spot too - a natural white streak in my hair.

If it's a chilly day I suspect it might be a fake fur frenzy, certainly from duggs, free and my side anyway.

Oh, and I promise to be cheerful - don't be frightened by my last post. Just needed to vent, sorry!

I can't imagine what that is like to get to the 12 week scan and have to make that decision but it is seriously playing on my mind too Kittens. It must have been so awful for you.

Like I said, it's playing on my mind a lot. The whole run of everything that can go wrong is playing on my mind constantly. It would also just be sod's law to get through all those early weeks and those hurdles and then fate to bite me in the arse in the most spectacular fashion.

No wonder you need to vent though, especially with everything else that is going on with the family's health etc.

Ooh can you pm me your website? The hair sounds fab!

I know it sounds pretty rich after all I've just said, but you really can only take things one thing at a time and try not to worry about things until they become an actuality. Now, let's just see if I will be able to follow my own advice. I suspect not.

I PM'd you my website free, although I think in the photo that's on there I was just at the beginning of growing out my white streak and had had to help it along with bleach so it's a lot whiter and more pronounced now.

Is it a Mallen streak Kittens? (Showing my age).
Results from my 12 week tests should have been back by now (they said 2 weeks, it's 2 weeks today..) So that's just my latest worry. Unfortunately these boards show that a second trimester loss is not uncommon. Well, it probably is, but then so are we with your unfriendly reproductive systems.