TTC/ pregnancy on Prednisolone or similar part 3

[freelancegirl]

For those who are TTC/pregnant undergoing immunotherapy treatment. Current list as it stands, do feel free to come and join us, it's moving quickly round here!:

Tuesday 22nd November

TTC
Waiting to test
Snoopygirl - V High NKC TTC, will be Ist try with Pred, Intralipids on bfp Testing from 21/11
Havingkittens - Upgraded from High to V High NKC TTC #1 after 2 month break/testing 29 Nov -2 Dec depending on my resolve.
Waiting to ovulate
coleyoz - V High NKC. TTC #2 - ov 3 Dec (Pred and Intralipids at BFP)
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle1
batteryhen - High activation NKC, factor v leiden. TTC#1
Suemays - V High NKC TTC/ov 30th Oct. TTC#2.
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov/ 4th cycle of pred
pureequeen - High NKC TTC #2 again from November (BFP cycle one but mc)
eurochick - TTC#1 awaiting first appointment (in Nov)/ov expected 28-30 Nov.
BFPSeeker

BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 24+3 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 -19+1 Due 16/04/12 anomaly scan 23/11
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 16+1 next scan 14/12
Comedy - V High NKC - BFP cycle#2 - 13+3 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 12+6 anomaly scan Jan

1st Trimester
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid - 11+4 next scan 28/11
Scooterchaser - V High NKC - BFP cycle1 - 8+1 Due 01/07/12. Scan 25/11
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. LMP18/10 - 4+6 - Scan 3/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 4+5 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 4+5 Scan 6/12.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LMP20/10 4+4. Scan 3/12.

Ari - There was some doubt as to whether I would be able to get a nuchal scan as the GP cocked up my referral to the hospital. When I mentioned this to Mr S, he said that I could go to the Fetal Medicine Centre on Harley St and have one done with the guy who invented the nuchal scan (whose name I've forgotten but it's a Greek sounding name - someone else on here will know I expect, as he's pretty famous). I think Louise said it was around £170. Anyway, that could be an option if you need it.

Because my referral was messed up, the hospital could only offer me a combined blood test which is done later on, as we were too late for the nuchal. I decided not to have any testing done in the end.

Free - I know you're not out of the woods yet, but how wonderful to see your first heartbeat.

Stogan - Great news on the test results too.

Oh no Scooter! What on earth happened? I realise you must be sure but, are you really sure?! I understand if you don't want to talk about it but we are all here for hand holding and all thinking about you xxx

I get so angry every time one of us has to go through this shit again. Why?

Words fail Scooter, just don't know what to say.
HUGE love

Oh Scooter
That really is incredibly heartbreaking to hear. I'm so very, very sorry
It's so touching how you still try to look on the bright side about how this swings the statistics in our favour. Thank you.
Take care of yourself, and we're here for ranting and venting about rmc as much as for sharing the journey through treatment.

I'm so sorry scooter - I had been so pleased for you as you were my pregnancy "twin" for my last mc and I was thrilled that your pregnancy was progressing even though mine didn't work out (I think you get what I mean, am not v coherent at this time of night). I know that hideous "world going into slow motion" feeling you get when it sinks in that the pregnancy is over. Please stay around, you know we're here for you.

scooter I am so sorry, why do we keep getting put through this????? You have got this far and found a plan that can work so don't give up now. In reality, it will only be a couple of months before you can TTC again. Dr S did say to me that the treatment is more experimental for women with v high killer cells so it might not work first time for me and that he may need to adjust the drugs, this might be the case for you too?

Just woke up to scooters news, what happened? How can things seem so right an then go so wrong? I'm so so sorry scooter. Can only imagine how u must feel I'm in shock, this is heartbreaking. Massive hugs to scooter and to everyone as I'm sure ur all as devastated for scooter as I am, such an amazingly strong attitude though scooter. All the love and luck in the world to you honey xxxxx

Thinking of you at this dark time scooter. When u r ready , if u come back, you will be stronger. You conceive easily -( no consolation to anyone in our position), but we r the experimental guys and we will help in anyway - sharing info and just support. Hopefully u r getting lots of love and hugs in RL too. X

scooter I just saw your news... :( :( I am so so sorry, I can't believe it after your positive scan. I know as everyone else has said its a dark time for you but you know we are here if you want to talk, and when you are ready to start again. We've all been there.

I think I am right that you live not far from me as Redhill is your local EPU... If you want to meet up sometime do PM me, though I appreciate you need your space right now. Lots of love x

I am absolutely lost for words Scooter, I am so very sorry this has happened to you again. There are no words of comfort, just know we are always here. Look after each other. Huge hugs x x x

It's with great sadness that I update the list today...(free have put your new dates in according to yesterday's scan)

Wednesday 30th November
TTC
Waiting to test
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle1 test 4 dec
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov 4th cycle of pred
batteryhen - High activation NKC, factor v leiden. TTC#1 Test 10 Dec

Waiting to ovulate
coleyoz - V High NKC. TTC #2 - ov 3 Dec (Pred and Intralipids at BFP)
Suemays - V High NKC TTC#2.
eurochick - TTC#1 Awaiting NKC results/ov 28-30 Nov.
Snoopygirl - V High NKC TTC, #2, ov 10th Dec ish
Havingkittens - Upgraded from High to V High NKC TTC #1
pureequeen - High NKC TTC #2 again from January (BFP cycle one but mc)
Hopefulfor2nd - High NKC TTC in New Year
BFPSeeker -

BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 25+4 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 20+2 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 17+2 next scan 14/12
Comedy - V High NKC - BFP cycle#2 - 14+4 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 14+0 anomaly scan Jan
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid -12+6 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP cycle#1 6+3 Scan 3/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 6+0 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 5+6 Scan 6/12.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LMP20/10 5+5 Scan 3/12

Thinking of Scooterchaser

Scooter I am so sorry darling. I have only just logged on today and shocked after your positive scan yesterday. In tears here, no doubt like all of us. Maybe when you are feeling in a better place, go and take choccy up on her offer. Theres nothing like a RL cuddle and a good blub with someone who understands.
Wishing your all the luck for the future and I can completly understand wanting to take time away from MN, hopefully we'll here from you soon though. xxx

Oh scooter, that's just shitty. I'm so sorry love. xxx

Scooter - I've been thinking about you a lot since I heard your news. I don't know if you're still there, but if you are, I really hope you're holding up at such an upsetting time. We all feel so sad that this has happened to you. Look after yourself. xx

Seconding coconut ... just so very sad this morning, and thinking of you scooter a lot. I know it's devastating, but I hope you and DH are looking after each other and taking as much care of you as possible.

Thanks for doing the list Digi.

Am with you all in thinking a lot about scooter and what she must be going through. It is also so much harder having got to over 9 weeks as you would hope by that time that you could start to feel a bit more hopeful. Am thinking of all that time TTC and in the 2ww, all that time in early pregnancy when youre terrified, hopeful, can't tell anyone and just want time to pass. Also, from a selfish point if view too, it makes us all aware of how vulnerable we all are in this position. It's all just such a flipping nightmare!

It's lovely to see the list of second trimesters up there doing well and we all have to stay as positive as possible I guess abd just take comfort in the fact we are here and able to relate to each other and offer support.

I am still going for my scan with mr s on Saturday and will just take it one day at a time if nothing scary like bleeding and pain happens and one scan at a time too. I keep willing the baby to be strong and grow, fully aware that the first one of the year stopped growing at 7.3. Am even wondering whether it's worth having intralipids at 7 weeks rather than 8, just to give it that extra blast. See what mr s says, presuming it's all still there on saturday.

How is everyone else doing today? Xx

Scooter, I'm so so sorry. It's so cruel. I hope you're getting lots of hugs from OH. We're all thinking of you x

I've been thinking the same as you free about how quickly it can all be ripped away from us. It's a wobbly enough time as it is and it's so hard to not spend the whole time panicking and stay neutral (still can't quite say I'm optimistic about this pg, it almost feels like tempting fate to even think I'll get to 8/9/12 weeks... ). I've got no plans to see GP until at least 8 wks for instance.

I guess I'm just being thankful that there's been no more spotting and just waiting for Sat. I only saw a sac at 6wks earlier this year so don't have anything to live up to in that sense- if it's in the right place and not def bad news I'll be ok with that. anything more, or a hb, and I'll be dancing around for the day. Wouldn't change or guarantee anything as we know only too well but it's a step to tick off and keeps the hope up.

Thank feck we've got each other I don't know what state I'd be in now without you guys. I hope scooters out there lurking and knows we're all thinking of her. I've been teary so much today reading the posts. Awful just awful news. So cruel this process is. :(

Yes, I've been thinking exactly the same as you both, free and choccy ... how fragile this whole process is. 9 weeks is my danger point too, having had two scans both at 9+4, one where the baby had died 3 weeks earlier (and I started spotting sometime in week 7 but didn't know what it was) and one where the baby had died just 5 days earlier. The 7 week scan I'm kind of neutral about - there will either be something there and growing, or there won't. But it won't mean anything much, since I got past this point last time and it still went wrong.

It's just the frightening thought that you can have a scan and see baby with heartbeat, then a mere few hours later it all just stops, falls apart. We all are in that horrible position where we know anything can go wrong any time, but to have such reassurance cruelly dashed in just the space of a few hours - as choccy says, how cruel this whole thing is.

As you say free, and exactly as I was discussing with my acupuncturist just last night, I'm taking this one week at a time, one scan at a time, and looking no further than what is happening in the coming week. I can't at this stage imagine getting past 9 weeks, and I'm really not trying to look that far ahead. IF it happens, I will consider myself blessed beyond measure - but I'm only too painfully aware of how easily it can all crumble. Again.

ari what you (and everyone else) says is so true. My husband and i have been having relationship counselling (as my dad's recent death and all these mc have taken a pretty horrendous toll on our marriage) and the counseller could not believe how "unemotional" and "unexcited" we were about our last positive pregancy test. She thought we needed to contact the miscarraige association for specialist conselling - I had a look on their webiste and they refer you to Relate - which was who the counseller was with!

At least everyone here can understand the cautious day by day (minute by minute) approach...

appalling spelling. this makes me realise how much I rely on autocorrect at work...

Pure, I'm really surprised your counsellor was surprised you weren't excited. It's actually very difficult to get excited about something that quite frankly has a pretty high chance of ending in heartbreak. Not getting excited is self preservation. I believe it would almost be dangerous to get too excited as the fall from being on a high is so much worse. Anyway, plenty of time for excitement later in the pregnancy.

I suppose we all protect outlrselves in different ways but I wouldn't have thought lack of excitement would be an unusual response in the circumstances.

I decided to move my scan to thurs 8th. I should be 7 wks by then and if all is ok then will go ahead with intralipids 5 days later. If it's a dodgy scan and I need to give it another week for a re-scan that should still be ok for the intralipids if I do need to go ahead with them.

We must be a funny lot to encounter mustn't we. Mind you, I think my GP is used to be me now. I think she winced when I told her I was pregnant again! She did say congratulations but I guess she realises that's not always the appropriate thing for us. Poor you, regarding the sad death of your dad Puree. My DH's Dad died around 5 years ago and I do remember what an awful toll it took on the relationship too (as well as the huge grief and impact on life in general of course)

Ari, Choccy, Cheerful it is indeed so worrying to hear of things going wrong at 9 weeks for you before. I guess it means that good scans at this point don't mean anything.

Is anyone else even more distracted by this whole thing than normal today? I am thinking about it almost every minute. Very difficult to concentrate on anything else. I have had a weird soreness in the left hand side (ovary ish) that I keep telling myself is the corpeus luteum but half of me is insisting it is 'something attacking the baby'. I also fell off (albeit a very short one) stool in Costa earlier, which is not a good thing to be doing either.

Waves to duggs, Stogan, Sue, Digi, Brownie, Snoopy, Kittens, Coconut, comedy, Hopeful, Iggi, Coley, Cherry, Battery and anyone else who is about xx

Cross posts Cheerful. Am also thinking, that if there is something there and ok at the next scan, to ask for intralipids at 7-something weeks. I just feel I need to get in there quickly! As silly as that might sound.