Hallelujah2020 · 15/11/2021 09:52
That’s good that it goes when sitting down
Mine can last 12-24hrs, look very pale and feel as above and spaced out
GP thinks it may be a silent migraine or related to fibro
I’ve learnt from experience to give in to it and not attempt work etc as does make it go quicker if I rest
RainbowZebraWarrior · 20/11/2021 12:48
Yes I get it, but also have PoTS.
I also feel like the car is moving when it isn't moving, and blurred vision. Currently wondering about asking for investigations into MS.
Difficult when you get so many random symptoms and a lot of crossover with similar medical issues / co morbidities
RainbowZebraWarrior · 21/11/2021 19:40
That is a very simplistic overview by the way. And I'm aware of people with similar symptoms who have either been dismissed or diagnosed with other things (e.g. Vertigo / Meniers disease) speak to your doctor and push for referral to either Cardio or Falls and Syncope for a proper diagnosis
ArabellaStrange · 22/11/2021 01:37
Yes I get this, once had a very scary fit type thing after standing up. I've also had two two month periods of vertigo in the last two years.
Just so everyone on this thread is aware, the proper way of getting an affirmative diagnosis of MS is a lumber puncture. I am trying to get the courage together to request one.
Stevie6 · 22/11/2021 11:42
I get this, feel like I'm moving when I'm not, or suddenly feel a jolt in my head and the room shakes. Have been for an mri to investigate and waiting on results. The constant lightheaded/fuzzy feeling is awful though, I was prescribed tablets but didn't seem to help much
Merryweather80 · 12/02/2022 21:42
I get so tired I shake/ tremble and my head switches off. I’m out in a deep sleep for hours but wake feeling and looking like death. I do get dizzy too from time to time. It’s linked with tirednesses for me. I also have ME though. Most days I’m in bed for 20 hours.
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