CHRONIC PAIN - share your moans and achievements

[doadeer]

Hello,

This thread is to share the day to day... The moans, rants, fears, anger of day to day living with pain... And let's be positive where we can too... Little or big achievements.

I've had a tough day with my grumpy toddler who is obsessed with biting, he made my shoulder bleed today 😢

On the plus side, had a great pilates class and managed some tricky stuff despite feeling exhausted... I couldn't have done it unless my teacher was on Zoom telling me to hold it!

@doadeer

Oops I didn't attach the picture!!

That's really helpful thank you!

Great Medusa.

When you feel your back start to arch pause and have a breath... It's really important to have a nice solid technique so you protect your back. It gets easier... A little bit 🤣

I've had headache for 3 days straight since starting my diabetes medication. I'm already taking regular codeine for my feet and legs but the pain kicks in every time it's an hour from being able to take more.

Really hoping it calms once my body is used to the lower blood sugars.

In good news though I managed the stairs without help again last night and felt a lot more stable and far less shaky. Although I have horrendous brain fog and can't concentrate on anything. Have spent the day doing mindful colouring in silence as kids are finally back to school.

Hi Cricketmum fingers crossed new meds settle down. Headaches are the pits. Colouring sounds good. Great when you can rest and just cope with body and not worry about pushing through when feel dreadful.

Pain kicking in now for no specific reason. Always feels worse at night when you know it’s going to be hours bad hours till can fall asleep. The early hours are always a lonely place

I have nothing but moans for the last couple of days. Full of cold and I’m getting more and more worried it’s getting into my chest now. Can barely stand up and am in so much pain. It feels really pathetic to be this knocked out by a little cold.

And Wednesday morning I start zoom training for a volunteer thing, I’ve been excited about it for weeks! I’ll still attend of course as it’s not like I have to go anywhere but it’s 3 hours, I’ll have to email in the morning to say I might not be able to join in with the speaking stuff much. I wonder if they’d let me have my camera off for most of it?

What I hate is the not knowing.

I can be have really good days then days or a couple of days where I just feel awful, then wake up the next day and feel fine. Its the not knowing how long it will last and the waiting for it to pass.

Also the toll- after a really productive period I then need days to recover so it terms of the amount I get done its a constant struggle.

I am actually checking in here to motivate myself. Also the loneliness of it I think.

I think sharing the achievements is such a great idea.

Ok, so I helped someone with something yesterday! I find it hard to post plans as then I feel bad if they don't happen, but my plan for today is if I get going then I will be proud, and if I make progress on two things and do a spot of tidying I will have made good progress.

Hi Rosemary welcome aboard. That’s good point about not knowing. Sometimes I can half awful night and feel relatively ok next day. The you can have a good sleep and feel like you have been over by a truck. It’s hard not to get cross with a stupid body or at yourself for being so unpredictable.

@Akire It is hard not to get a bit cross. Mine is a recent development from medication (its too outing as my condition is incredibly rare) and it feels a bit like having a rug pulled, as what I was used to has now changed and nothing feels like it did before.

I also struggle as I have to come to realise I am a deep feeler. I am still working out how to live with it. Having these places of being understood is so important.

@RosemaryShortcake

What I hate is the not knowing.

I can be have really good days then days or a couple of days where I just feel awful, then wake up the next day and feel fine. Its the not knowing how long it will last and the waiting for it to pass.

Also the toll- after a really productive period I then need days to recover so it terms of the amount I get done its a constant struggle.

I am actually checking in here to motivate myself. Also the loneliness of it I think.

I think sharing the achievements is such a great idea.

Ok, so I helped someone with something yesterday! I find it hard to post plans as then I feel bad if they don't happen, but my plan for today is if I get going then I will be proud, and if I make progress on two things and do a spot of tidying I will have made good progress.

My achievement so far - I got going and I completed one thing.

I am feeling nervous as my period is due and this means a few days of feeling really uncomfortable.

On these days I find a hot water bottle and working in bed helps. Somehow in my mind I have been conditioned to think that it's just period pains, I should be able to manage, and it's somehow my failing. Silly.

I think it had far more emotional impact than we realise or even are “allowed” to believe. If someone was kicking us in the head everyday it would be fine to be angry at that person. When it’s your own body doing kicking we are supposed to be like oh well just one of those things!

Feel rubbish still and so not done anything apart from open door for a parcel and read phone in bed.

That’s good point about period pain in general. We are told from a young age either it doesn’t hurt at all and if we do we make a fuss. Or it’s just one of those things and you don’t know if your pain is normal or not.

I really agree, the emotional impact then becomes a thing that needs unpicking or some sort of expression or validation or pounding out in frustration! Hope the phone is a good distraction.

I've got to do something really complicated now, I've been putting it off as I don't know how to do it, it takes quite a lot of mental energy.

I want to do it but I don't want it to take ages, I think I need a think about how to do it before diving in. I struggle with that (planning how to do a task) when it's unknown or under time pressure. I've managed to get rid of external distractions so that's a start and simplify my space and I have an overall idea of where I need to get to.

Oh ladies I am flagging. I've had lots of taxis today from 7am and the pain through my back is so vile. I am shattered - making a big pot of coffee, got to get to 6.30pm then I can collapse. I got a deliveroo wrap for lunch, I'm so tired don't know if I can do dinner it's taking all my energy to stay up right but I feel so lazy

You are not lazy! Set an alarm every half hour till 630 and countdown for being off duty. Coffee sit down and something on TV while you watch your son.

@RosemaryShortcake Hope you are well on the way to planning your complex things. Hopefully once you start writing things down, you will feel better.

@doadeer I am glad you got the taxis today. Sod making dinner, if finance allow order some food in. Or skip it all together and go to bed!

Just remember you are not lazy at all. Getting though a day when you are in pain is hard work, very hard work. Well done you for doing so much despite your back

Haha I need to feed my son 🤣 he has a very restrictive diet but he will eat wagamama katsu rice so I may just get that. I'm trying to eat healthily so at least I can get something not too calorific from there. I've lost 3 stone of baby weight and finally got down to a healthy BMI last couple weeks.

How's everyone else doing?

Ps... My son just knocked an entire coffee over and it's running out from under the sofa. Ha not my day

I had a good day today.

Hovered living room and dining room with my manual chair.

I unloaded and reloaded the dishwasher, that I should have done yesterday.

Then cleared, cleaned and reorganised 4 1/2 kitchen cupboards. Plus wiped down all surfaces and cleared the big open cupboard above the fridge which collects so much junk.

From my perching stool with my pick up gadget stick and a small bowl of hot soapy water and sponge to clean shelves as I go. Standing as I had too.

At that point my legs and back were just broke again and my hands are shaking, so I admitted defeat.

I have my hob covered in baking items I need to sort out, flour, sugar etc. Times a billion!

Plus my sink is full of plastic containers for flour etc which need washing before I refill them.

Guess it is sandwiches tonight!

I hope to get the remaining 1.5 cupboards sorted. Clean the kitchen sink, sort the baking pile on the hob and clean the fridge, all done tomorrow. I hope, lol

Wish me luck. Currently having a lie down before tea.

I've had another fairly productive day. I'm steadily working my way down the long list of organisations that need to be informed that I've retired, and I did another 3 hours volunteering at the Covid test centre at school.
I'm feeling worn out now though. I'm not going tomorrow as I need a break but I am doing a whole day on Thursday which I am rather anxious about. I didn't intend to, but they're desperately short of volunteers for the last couple of days so I said I'd do all day Thurs and Fri mornin It's mostly sitting down so not to bad but I still find it draining. At least its then the weekend and I can stay in bed if I need to.

@Worrysaboutalot

I had a good day today.

Hovered living room and dining room with my manual chair.

I unloaded and reloaded the dishwasher, that I should have done yesterday.

Then cleared, cleaned and reorganised 4 1/2 kitchen cupboards. Plus wiped down all surfaces and cleared the big open cupboard above the fridge which collects so much junk.

From my perching stool with my pick up gadget stick and a small bowl of hot soapy water and sponge to clean shelves as I go. Standing as I had too.

At that point my legs and back were just broke again and my hands are shaking, so I admitted defeat.

I have my hob covered in baking items I need to sort out, flour, sugar etc. Times a billion!

Plus my sink is full of plastic containers for flour etc which need washing before I refill them.

Guess it is sandwiches tonight!

I hope to get the remaining 1.5 cupboards sorted. Clean the kitchen sink, sort the baking pile on the hob and clean the fridge, all done tomorrow. I hope, lol

Wish me luck. Currently having a lie down before tea.

Oh respect! Want to come and do mine?! It’s great when you can get lots of needed jobs done isn’t it

@MrsAvocet

I've had another fairly productive day. I'm steadily working my way down the long list of organisations that need to be informed that I've retired, and I did another 3 hours volunteering at the Covid test centre at school. I'm feeling worn out now though. I'm not going tomorrow as I need a break but I am doing a whole day on Thursday which I am rather anxious about. I didn't intend to, but they're desperately short of volunteers for the last couple of days so I said I'd do all day Thurs and Fri mornin It's mostly sitting down so not to bad but I still find it draining. At least its then the weekend and I can stay in bed if I need to.

Huge well done for doing that and for having a rest day.

I often find I worry about the day in the future but it turns out to be ok once I have had the rest if that makes sense. Giving yourself permission to rest tomorrow and not feel guilty! And good that you have a weekend after.

@Worrysaboutalot

I had a good day today.

Hovered living room and dining room with my manual chair.

I unloaded and reloaded the dishwasher, that I should have done yesterday.

Then cleared, cleaned and reorganised 4 1/2 kitchen cupboards. Plus wiped down all surfaces and cleared the big open cupboard above the fridge which collects so much junk.

From my perching stool with my pick up gadget stick and a small bowl of hot soapy water and sponge to clean shelves as I go. Standing as I had too.

At that point my legs and back were just broke again and my hands are shaking, so I admitted defeat.

I have my hob covered in baking items I need to sort out, flour, sugar etc. Times a billion!

Plus my sink is full of plastic containers for flour etc which need washing before I refill them.

Guess it is sandwiches tonight!

I hope to get the remaining 1.5 cupboards sorted. Clean the kitchen sink, sort the baking pile on the hob and clean the fridge, all done tomorrow. I hope, lol

Wish me luck. Currently having a lie down before tea.

I am genuinely in awe of what you've managed to do. I don't think I could do it in a day. A huge well done, you should be really proud. When it's done it's such a nice feeling. And if tomorrow isn't as good a day, don't beat yourself up. Cheering you on.

@doadeer

Oh ladies I am flagging. I've had lots of taxis today from 7am and the pain through my back is so vile. I am shattered - making a big pot of coffee, got to get to 6.30pm then I can collapse. I got a deliveroo wrap for lunch, I'm so tired don't know if I can do dinner it's taking all my energy to stay up right but I feel so lazy

Yes to not feeling guilty about a takeaway .