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Chronic pain

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Original poster

CHRONIC PAIN - share your moans and achievements

983 replies

doadeer · 10/03/2021 16:50

Hello,

This thread is to share the day to day... The moans, rants, fears, anger of day to day living with pain... And let's be positive where we can too... Little or big achievements.

I've had a tough day with my grumpy toddler who is obsessed with biting, he made my shoulder bleed today 😢

On the plus side, had a great pilates class and managed some tricky stuff despite feeling exhausted... I couldn't have done it unless my teacher was on Zoom telling me to hold it!

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Thread gallery
12
Akire · 02/04/2021 18:22

Beach sounds amazing. Glad you got out. Feels strange to be out and be with people I’ve found. Even though I’ve only been in 10min walk of my flat.

SingToTheSky · 02/04/2021 18:38

Hi folks. Def not a good week. Don’t think I’ve left the house since 22nd! Officially not shielding now but I just feel anxious anyway, not covid related at all I just feel like it’s too much. I’m so fucking tired and weak. It’s been a really stressful time due to stuff going on with DD1. Gaaaah

Akire · 02/04/2021 18:48

Hi Sky that sounds like to many things at once, I’m sorry. When you don’t have much to spare even on average days not a lot left in the tank. Hang in there Flowers

MyPatchworkQuilt · 03/04/2021 18:14

This is really typical, I got through loads of work but have overdone it, so yesterday was spent mostly in bed and today I have been battling a horrible headache. Typical over a 4 day weekend. Hunkering down.

Akire · 03/04/2021 18:17

I’ve slept Loads today not sure what is going on either. So just taking each hour as it comes and don’t have anything I need to do which is always a relief even if it means I’m lonely.

Original poster
doadeer · 03/04/2021 18:44

Hello I'm so sorry for absence, how is everyone doing?

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Akire · 03/04/2021 19:57

Hi @doadeer sounds like everyone is on their knees! How’s things with you today?

Original poster
doadeer · 03/04/2021 20:30

Oh I'm so sorry for everyone. Are you at least managing any chocolate!!??

I'm doing OK, had my nerves burnt in lumbar spine facet joints and it's starting to help. Still feel bruised but a huge improvement

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Akire · 04/04/2021 13:56

Happy Easter to anyone who celebrates. Feeling slightly less drained blob but taking it very slow. Solidarity with everyone

AdditionalCharacter · 04/04/2021 17:31

Happy Easter/chocolate egg day everyone.

I went back to work on Thursday after shielding for 3 months. Only I'd one shift, but my god, my body has been aching ever since.

The increase in amitriptyline has done nothing for my pain. So annoyed. I have an MRI on Tuesday so hoping that something will come of it.

Sooverthemill · 04/04/2021 19:37

We are having such a crap time. I feel like walking out. I won't. But the 'win' today is I washed DDs hair with her hanging over the bed. She now has petechia around her eyes from the pressure and is bruised on her sternum. Hey ho but she has clean hair for her birthday tomorrow.

Original poster
doadeer · 05/04/2021 17:47

That's so difficult Soover... Can you use any of the no water hair wash products?

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Original poster
doadeer · 05/04/2021 17:48

I had my axa bill for my latest procedure and I thought I had £400 excess but it looks like the consultant accepted less money so no access, I'm shocked.

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Akire · 05/04/2021 18:02

Less money is always good. I’ve had lazy day again. Feeling rather down but just how it is.

RatherLostPenguins · 05/04/2021 21:53

Finally found you. All the threads I was on were dead and didn't realise everyone had moved onto new threads.

Nothing new here though, basically Groundhog Day with pain and fatigue at the moment for me. It's still over a month until my fitness classes reopen if all goes to plan and I just don't have the motivation at home with how I'm feeling. Sad

Akire · 05/04/2021 22:00

Hi @RatherLostPenguins welcome. Yes we had few threads at start but we trying fill one at a time now.

On average/bad day it’s hard imagine being able to do very much never mind go and exercise after so long. Hope you are able to when time comes.

RatherLostPenguins · 05/04/2021 22:20

@Akire

Hi *@RatherLostPenguins* welcome. Yes we had few threads at start but we trying fill one at a time now.

On average/bad day it’s hard imagine being able to do very much never mind go and exercise after so long. Hope you are able to when time comes.

It does help me in the long run but I'm definitely not looking forward to it at first, I've lost all the core strength I'd been building up which really helped my day to day posture and pain levels but I seem to have lost all of that and gained a lot of extra weight too so it's going to take a while to get back to where I was. I don't drive so I would walk there and back too but I can't even walk to the end of my street without horrendous back pain at the moment. :(
Sooverthemill · 06/04/2021 08:52

@doadeer we've tried and they require brushing her hair which causes pain. She has amazing long thick curly hair. She is clinging onto it because when she was first ill she had lovely hair but eventually we cut it short for easiness and then she sadly lost it all when she happened to also have cancer and lost it all with chemo and she was so happy when it grew back that she asked to keep it long. Having had chemo and lost all my hair too I really sympathise with her wanting to keep her hair. It's always a balance. Yesterday was her birthday and she crashed by about 5 after a lunch time 'picnic' with DH and me ( usually she eats alone be of the retching) which was probably a bit too much energy. She's going to be like a dead person for a few days until PEM fucks off

Original poster
doadeer · 06/04/2021 09:32

Hi @RatherLostPenguins welcome

What exercise do you do? I can try to motivate you!!!

@Sooverthemill I can completely understand that. My toddler has the most incredible curls but he went through a phase of (well still does) hate having his hair washed, I tried the no water washing and just teased it through with my hands. I've never brushed his hair ever but I do need to detangle daily with my fingers and a spray.

I'm so glad she at least managed a bit on her birthday. You do a wonderful job 💐

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Akire · 06/04/2021 17:28

I’m feeling every slightly less over whelmed today. But not done anything so hard to tell really.

Roll call of who is still reading this thread say aye!

RatherLostPenguins · 06/04/2021 17:56

Hi @doadeer glad to have found everyone again. :)

It's mostly Pilates I do, I go to special classes based for people with fibro though so I feel safer in the class compared to just trying to do it myself which is part of my reluctance to do it at home. I've done a bit of yoga too and I got RingFit Adventure for the Switch last year but my knees don't like the main game part of it right now so I haven't done too much on it. When I can build some of my core back up again I want to get back to pole fitness classes which I did a couple of years ago. I like with that sort of thing that it's not constant and I can control what I'm doing and stop for a break when I need to. I have a heart condition too so there's not much else I feel I can safely do. It's been the only thing I've really missed through the lockdowns, and I never thought I would ever say that I would miss exercising.

I know I'm one of the lucky ones though that it does help me with my pain levels so I'll start to feel better again when classes reopen, all my instructors are really great that they understand that I know my limits and won't do anything if I don't feel up to it which I think is a huge thing too. I used to be the worst at overdoing something then putting myself into a flare and not being able to leave the house for a while.

Original poster
doadeer · 06/04/2021 18:19

That's great that you have some fantastic instructors. Do your studios open on 17th May?

I do 1:1 pilates with a fantastic instructor twice a week and do her on demand classes on other days. I have problems with my back and hypermobility so pilates is great for stabilising. Legs bums and tums is what I need haha! Motivation can be hard but you never ever regret a workout!

My family have a yoga studio so I used to do a lot of that but it's not what I need at the moment.

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Original poster
doadeer · 06/04/2021 18:19

How's it going @Akire?

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Akire · 06/04/2021 18:53

Wow classes sounds amazing. Must makes such a difference with motivation.

I’m just feeling blah! Always happens with high days and holidays. So don’t know why I’m always so surprised! More frustrated with body and society and how things never going get better.

Physically pain hasn’t been to horrific day averagely normally but hurts just been with life. If makes sense to anyone. Just constant and no lay-bys on the horizon Sad

SinkGirl · 06/04/2021 19:00

I’m so desperately in need of a moan. Just cried while filling in another bloody econsult. I have two issues going on which have me in crawling-out-of-my-skin agony. I’m on morphine and have been for ten years but after recent concerted efforts from doctors to reduce it even further, what I’m on isn’t touching my pain at all.

My upper back is fucked and has been for four years. Doctors won’t do anything. I’ve been referred for a couple of courses of physio and about three times a year they give me 3 days worth of Valium while pulling a face like I’m a junkie. I’ve told them - if there’s something else, give me that. I don’t want Valium, I want to be able to move. It’s been bad for months and really bad for three weeks and it taken me that long to pluck up the courage to ask for something because of how they react to me.

Secondly, I have endometriosis and adenomyosis and recently my pain has gone through the roof. It’s all new symptoms (hideous mid cycle pain that feels like a tonne weight in my pelvis and stabbing pain in my ovary). DH is worried because my mum died of ovarian cancer - I am sure it’s not bloody cancer, but he’s on at me to see a doctor even though I know it’s pointless.

So now I have to wait for the patronising call where they instantly assume I’m angling for more drugs when actually I just want to be able to move and not be in agony.

Argh.