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Chronic pain

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Original poster

CHRONIC PAIN - share your moans and achievements

983 replies

doadeer · 10/03/2021 16:50

Hello,

This thread is to share the day to day... The moans, rants, fears, anger of day to day living with pain... And let's be positive where we can too... Little or big achievements.

I've had a tough day with my grumpy toddler who is obsessed with biting, he made my shoulder bleed today 😢

On the plus side, had a great pilates class and managed some tricky stuff despite feeling exhausted... I couldn't have done it unless my teacher was on Zoom telling me to hold it!

OP posts:
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12
GrouchyKiwi · 27/03/2021 15:40

Well done for all the achievements, big and small. I find even the tiny things are very encouraging during the worst times.

My costochondritis is being very difficult at the moment. Contemplating talking to the Dr about it - if I can get an appointment. Heat is helping, but I've woken up a few times with the pain, which is new. Maybe a steroid injection will help.

Akire · 27/03/2021 15:47

Good to say small stuff. When life feels like snail pace can miss achievements.

@SingToTheSky did they give you recover estimates after op?

SingToTheSky · 27/03/2021 15:48

I didn’t have an op akire :)

Akire · 27/03/2021 15:56

Sorry I nearly said I may have wrong person!!

NotanotherboxofFrogs · 27/03/2021 16:14

I was at the fracture clinic yesterday morning and I am now in a cast for the next 6 weeks, damn falling after overdoing it.

NotanotherboxofFrogs · 27/03/2021 16:16

Hit post too early...

I did get a nice take away hot chocolate before coming home and have been in bed all day as wrecked after being out of the house yesterday and don't want to fall again as I need my right hand more than ever

SingToTheSky · 27/03/2021 16:51

Oh it was doadeer with the nerve blocking procedure wasn’t it. Hope you’re ok do!

Aaargh frogs 😭 hope you heal up quickly.

I just made cornflake crispy cakes with the 3yo. I’m know wiped out and my heart is racing

Akire · 29/03/2021 11:23

It’s Monday who’s ready for the week? Nope not me! Grin

SingToTheSky · 29/03/2021 11:28

:o how are you feeling?

I’m knackered due to a crap night’s sleep, but I’m in quite a positive mood today, I just had my first therapy session in 3 months and it was so lovely to actually reflect on what progress I’ve made. We talked a lot about anxiety related to finding a job etc which was really useful.

QueenPaw · 29/03/2021 11:35

Joining in if nobody minds - mine isn't so much pain as chronic illness/fatigue but I had chronic pain previously
I have hashimotos, autoimmune neutropenia, hidradenitis supprativa, vitamin d deficient, chronic cholinergic and spontaneous urticaria, cauda equina and I'm bloody knackered

My meds have shit side effects so 48hrs a week I spend shivering/sweating, severe bone pain and fatigue

GrouchyKiwi · 29/03/2021 11:57

Heal up fast frogs. At least the cast will keep your wrist well supported.

Hi QueenPaw. Flowers

I am absolutely not ready for the week. Clock change is the worst, our dryer is broken and I have a metric shit tonne of washing to do, it's too windy to hang outside, and our washing machine is also on the fritz.

I'm thinking about getting a foot cradle for my bed to see if it means I no longer wake up with sore feet every day. Has anyone tried one? My Dad has one and it seems to be helping his ankle pain and cramps.

Akire · 29/03/2021 16:33

Hi @QueenPaw everyone is welcome who suffers chronic pain I would say chronic fatigue on the list to because it’s like having a permanent pain/hang over feeling.

Been very sunny here so popped out. Most people I’ve seen since last year at the park! Was in quite lot pain in my wheelchair so there was lost of pulling faces and funny positions. Normally when I’m out I try and mask it much as possible think I’m very much out of practise!

What foot cradle? Amazon showing something hold blanket off feet but not sure if that is what you mean?

GrouchyKiwi · 29/03/2021 16:41

What foot cradle? Amazon showing something hold blanket off feet but not sure if that is what you mean?

Yes, one of those thingies. I'm not sure whether the pain in my soles that I wake up with every day is caused by the weight of the bedding or from being more or less immobile for 8 hours.

Rae36 · 29/03/2021 22:21

I don't post much because my arthritic toes are small beer in comparison to what some of you are dealing with. I think you're all amazing.

My moans and achievements are the same thing today.

I persuaded teen son out for a walk. Win. We walked for over an hour. Big win.

Towards the end of the walk I was so sore I was limping along so slowly I told ds to just go on without me. I saw him reach our end of the street and I was at the far end, and that street felt like it was a million miles long. Moan. My feet are burning now, my ankles are sore because I was walking so funny to avoid bending my toes. Double moan.
I really want to go to bed but I don't want to stand on my feet.

Fun fun fun.

Akire · 30/03/2021 00:24

Sometimes getting to bed is the hardest thing to do after along day. Please post as often as you like. Nice just share knowing others are having same struggles.

BoomTastic1 · 30/03/2021 11:23

Can we talk about chronic pain and loneliness?

I find loneliness to be an almost physical thing. It carries a feeling of malaise and lots of other things. I often never realise that's what it is but today I have. It's a battle, but it's not iyswim. I feel like once I've realised this is what is going on, acknowledged the weight of that for me, today, I'm slightly released from it, for now.

As you were Smile.

Rae36 · 30/03/2021 12:47

Can we talk about chronic pain and loneliness?

Yes, and even more so because so much of socialising right now is based on going out for a walk because we can't sit indoors and it's too cold to sit outdoors for long. So I feel like I'm missing out more than ever.
And trying to explain chronic pain and why you can't walk for an hour is really hard.
Sorry you're feeling lonely today @BoomTastic1

Akire · 30/03/2021 14:14

It is a thing definitely. Even if you have family around you who are supportive. No one can really know what it is like 24/7.

I think with lockdown all this met a friend for exercise . Which in effect meant I couldn’t met anyone outside. A park Bench is not the most comfortable is it.

AdditionalCharacter · 30/03/2021 14:40

Spoke to a very understanding GP this morning, who has agreed to increase my amitriptyline to help with ongoing pain. I could cry. I'm hoping it'll help and I can sleep for longer than four hours. I might be less grumpy and unbearable.

How is everyone doing? It's brilliant sunshine here, almost makes me want to leave the house and go for a walk.

Going to have a quick catch up read of the thread.

AdditionalCharacter · 30/03/2021 14:48

Re loneliness when people don't understand, I'm fed up with my husband saying "if I could take the pain from you, I would" because he would be such a pain in the arse with it. He means well, but it's so frustrating and I sometimes hide or lie about how much pain I'm in to avoid his well meaning gestures.

Akire · 30/03/2021 15:09

@AdditionalCharacter

Re loneliness when people don't understand, I'm fed up with my husband saying "if I could take the pain from you, I would" because he would be such a pain in the arse with it. He means well, but it's so frustrating and I sometimes hide or lie about how much pain I'm in to avoid his well meaning gestures.
That is so true for lots of men! Not all of course.when you reverse it like that it’s always women adjust behaviour. Not only your pain but how everyone else in the house reacts as well. I live on my own but seen it in friends family over sickness.

Been really warm here went to park well more grass next to busy road. But not for long as it’s packed. Having an average day so after what’s it has been like I feel amazing Grin

AdditionalCharacter · 30/03/2021 15:38

So true. My husband knocked his leg last week, claims to be in so much pain with it but won't take anything for it because he doesn't want to take tablets. I was only suggesting ibuprofen.

Akire · 01/04/2021 10:52

Morning everyone. Just thought I’d say Hi had a few things to be dealing with her so not had much chance to chat.

Akire · 02/04/2021 16:54

Doesn’t look like everyone is having a good time this week. Thought with anyone struggling. I’m finding Easter should feel like New beginnings and onwards to summer and this year hard to believe more than ever.

So resting up and trying to do what I need to get through day. Wine

GrouchyKiwi · 02/04/2021 17:29

Hi Akire. Resting up is always good.

We met a friend (and her children) at the beach today. We've not seen them in nearly a year, so it was a wonderful catch up. Wandered around for a couple of hours. Didn't feel it at the time, but once back in the car my legs were very unhappy and DH had to help me out when we got home. I find it very frustrating how my brain shuts down when the pain gets too much.

Sitting with a hot water bottle now; lovely and relaxed!

Hope everyone has a lovely Easter weekend.