9 yr old with Complex Regional Pain Syndrome

[katsh]

My dd1 has recently been diagnosed with this following a trauma to her foot. I just wondered if anyone else has a child with this - I'd be grateful to hear other's experiences.

I know it's uncommon in children ... but anyone??? Having trouble with the physio so would be glad to hear how other physios approach it.

Just bumping this for you. Has she all the symptoms or are they at a loss because its takin time to heal. big hugs to you and dd1 x

Thanks Raphael for the bump. She's got all the symptoms. Provisional diagnosis was made in December, and we saw a paediatic expert 2 weeks ago who confirmed it. She sprained her ankle in September, and that's what started it. Have you had it , or known people who've had it? She's working very hard to use her foot, and has gone from 2 crutches to 1, but the pain is increasing, and it's all quite challenging !

bump a week on . Any takers?