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Children's health

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Original poster

dd 10 has huge amounts of blood in her urine

98 replies

kentmumtj · 31/03/2009 09:52

has any one else had experience of this.
She is also having problems controlling her bladder and having many accidents.

Tests have confirmed no infection.

Am worried.

She has had this for moonhs now and recently slight traces of protein.

OP posts:

Are your children’s vaccines up to date?

Set a reminder

Salleroo · 31/03/2009 09:58

I'd get back to the doctors quick smart and have them do more tests. Have they tested her kidney function? If there is no infection then there may be something up with her kidneys.

The poor little mite.

RidiculousCrush · 31/03/2009 09:59

take her back to the doctor!

Geepers · 31/03/2009 09:59

Has she had a kidney scan? Demand an urgent referral to a pediatric nephrologist.

herbietea · 31/03/2009 10:00

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Umlellala · 31/03/2009 10:01

does your local a&e have a children's dept? large amounts of blood sounds worrying to me, i'd want to take her now.

i bypassed my gp when he ignored blood in my stools, ended up in a&e and was diagnosed with ulcerative colitis.

poor thing.

Original poster

kentmumtj · 31/03/2009 10:06

i did take her a & e about 7 weeks ago they also confirmed large amounts of blood in her urine however they told me they couldnt find much else rong with her

they did suggest she may be due to start her periods but if that didnt happen then i should take her back to my GP (which i have already done) hence the no infection

I am taking back to the gP again this morning

they have spoken about reffering her to peadiatrics and for a scan but as yet i ahve heard nothing

perhaps im worrying about nothing

OP posts:

Umlellala · 31/03/2009 10:10

oh gosh, how worrying for you.

surely, surely, blood in urine and accidents aged 10 can't be right? def try and get her referred to paediatrics - got to have a look at her kidneys, no?

fingers crossed she is about to start her period, and that's what it's about.

best wishes - follow your mum instincts and keep harrassing. good for you for looking after your daughter - how does she feel about it?

morningpaper · 31/03/2009 10:12

WTF?

I would be banging down the door and not letting her leave the children's unit until they had a fecking answer.

Sometimes with the NHS you really need to be your own advocate and this is the sort of situation where you need to INSIST on better treatment.

I would not leave it weeks in between appointment - certainly not months. A few days at THE VERY MOST.

Seriously, you need to create a fuss here

herbietea · 31/03/2009 10:13

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Original poster

kentmumtj · 31/03/2009 10:14

she is incredibly embarrassed about the very frequent "accidents". School are being very good about it and she has now stopped hiding her dirty underwear around her bedroom however she is still throwing her knickers away.

I am trying to be as gentle as possible by explaining that it doesnt matter to me or that she can just put them straight into the washing machine and no one will see but she gets so upset and tearful if i speak to her about any of it.

I feel so sad for her i just want it sorted as it has been going on for far to long IMO

OP posts:

Gorionine · 31/03/2009 10:15

I am with MP! Insist, insist, insist! It is clearly NOT normal to have a large amount of blood in urine!

SobranieCocktail · 31/03/2009 10:15

Agree with MP. Hope you get answers very soon!

aGalChangedHerName · 31/03/2009 10:15

Sit until they do somethinh. My ds1 had chronic pain for years (said it was all in his head)

Wasn't until i started being stroppy and demanding scans etc that they discovered he had a blocked ureter and that his "unimportant tummy pain" was in fact renal pain and he had reduced kidney function

Had an op and is now fine but FGS don't take no for an answer!!

herbietea · 31/03/2009 10:16

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Original poster

kentmumtj · 31/03/2009 10:17

I have been badgering the GPs so much plus my GPs have been on holidays and the locums are unable to refer her (so they tell me).

i did plan on being forceful today but want to be careful what i say in front of her as i do not want to alarm her as im worried this may make her more anxious

OP posts:

girlandboy · 31/03/2009 10:18

Back to A & E with you.

ASAP

And insist that you get an answer this time. Stand your ground, because your dd shouldn't have to cope with this.

Also, I'm a bit as to the link between starting her periods and bladder trouble? What's that about?

morningpaper · 31/03/2009 10:19

You can be businesslike and insist that she is seen without being melodramatic and upsetting her - she should be glad to know that her mum is standing up for her and backing her. If you can't do this without blubbing or getting emotional then ask your husband to do it (if you have one). Or just speak to the GP without her there - TBH it sounds as though there is not much point having her with you anyway, if you are just asking for a referral. A locum can refer, or another GP in the surgery can refer. It just takes a phone call. Tell them to stop fobbing you off.

PottyCock · 31/03/2009 10:20

Poor little soul. I would also get her to A&E and demand to be seen. There is something they are missing - the blood is coming from somewhere and it's their job to identify where. I suffered from dreadful urine infections as a child - could it be something like that do you think?

Umlellala · 31/03/2009 10:21

No, I do agree with others. Take her straight to the hospital today and say to your dd that none of it is her fault, but you want to find out what is going on so she can get better. If it wasn't for the blood in urine, I would suggest maybe something psychological is going on - but blood in urine (and lots of it) just can't be right.

Can't believe the hospital let her go without finding a solution. Got to check her kidneys (dh had kidney failure as a child, his mum ignored his chronic pain and it was only discoverd as an adult that he had just one working ).

Original poster

kentmumtj · 31/03/2009 10:21

think the peadiatrican at the hospital could not find antyhing else wrong with her and thought the blood was an indication that she was about to start her period.

And she hasnt they reassured me loads that it was nothing to worry about

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MargaretMountford · 31/03/2009 10:22

you must go straight away - this sounds very worrying

herbietea · 31/03/2009 10:23

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morningpaper · 31/03/2009 10:24

Why does starting her periods have anything to do with it? Did they explain why that would cause a link?

Is the blood visible i.e. is the urine discoloured or does it only show up in tests? Has anyone said that it falls within the normal ranges at all, or it there definitely something wrong?

If the paed. team can't help then ask for referral to the urology team. If they won't help then find a paediatric urology team.

Original poster

kentmumtj · 31/03/2009 10:25

im glad im not the only one who is thinking that it is not normal or nothing to worry about.

I will insist today that they do some sort of telephone referral so i can take her to hospital for further scans tests etc.

I just want it sorted now

pottycock they have already tested her and ruled out infections

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herbietea · 31/03/2009 10:26

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