Posteria Urethra Valves (symdrome). Advice please.

[PavlovtheWitchesCat]

I am writing this on behalf of a friend of mine who has a 5 year old DS with this condition (bladder scarring & incontinence, increased urine production at night time). Her and her DH recently were told that he might not 'grow out' of the night incontinence, although he is dry during the day no problem.

She has found out some information about it over the years but it is limited and she would like some advice/experiences of other parent's who have children with this condition.

Any words of wisdom that you might have, positive experiences that you can share, or support threads you can point her to, websites that she might not have come across that can answer some of her questions/anxieties will be gratefully received.

Thanks in advance
Pavlov

Oh dear, some spelling mistakes there.

Posterior Urethral Valve.

There, corrected .

bumping for my friend...

Hi - My son has this condition he is almost 3. There is a yahoo group I found when my son was diagnosed, it is mainly American, though there are some British posters too.

health.groups.yahoo.com/group/PUVs/

Hope the link works, have never done one before They take a very positive appoach on there which helped me, as most internet information is full of doom and gloom.

Percent, thank you for that...I will take a look and pass it over to her too

bump