Does anyone know anything about retinoblastoma?

[dandandan]

OK having a major panic here.

My friend made me go to her house earlier and showed me some photos she had of my DS and her DD, my DS has bright white eyes in the photo whereas her DDs are red. She saw something on the news yesterday on retinoblastoma and was checking photos of her DD for it and saw that my DS had it.

He doesn't have it in every photo but he does in some, on different days with diferent cameras. If a child has retinoblastoma would it show up on every photo?????????????

Have been thinking of you marieburd and glad to hear your DS is coping well.

marieburd, is this you? what a gorgeous lad you have there!! hope things are going ok, and chemo isnt being too hard on the little one.

will be thinking of you

yes it is me just wanted to raise more awareness about it . but they got his age wrong 18 weeks not months . ds is coping really well thanks , just got really runny poos at the mo . not sure if it the chemo or the new verson of cow and gate for hugry babies they got new carton to replace other and 2 ingredients are different , something to do with the new eu regulations , anyone have the same problem ?

marie
xx