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Out of my mind with worry [Please read the OP's updates before responding - Title edited by MNHQ]

1000 replies

YourRubyMaker · 22/02/2025 17:59

Someone please just give me some hope I’m so stressed I can’t function , my 10 year old since sept has had a limp in one leg then it became a weekness in his arm and hand on the same side , doctor was useless and made me do it as two separate issues and make another appointment!!! Didn’t take me seriously and Had X-ray on hips all fine (obviously 🙄 ) I went to see another doctor who said im referring it for urgent peadeatric appointment (great so helpful ) and he wanted to refer for mri but couldn’t , appointment comes thro and it’s in fucking June !!!! And that’s a urgent referral , in the mean time it’s got worse and now he can’t run and often stumbles and falls doesn’t use the arm hardly at all , have taken him back and they’ve now booked a mri brain scan for next weekend , which happens to be on his birthday of all days 😭 he’s mental health is shit as is mine and he’s obviously worried , how long does a brain mri scan take please ? And has anyone ever experienced issues like this and it not be something life threatening, I also have a toddler so am still having to be normal and do normal stuff where as I just want to lay in bed and cry

  • [Message from MNHQ - please see OP's updates before responding]
OP posts:
questioneverything1 · 27/02/2025 23:03

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Nellsbell · 27/02/2025 23:03

I’m so sorry op for all that your family are going through. You shouldn’t have had to fight for this but you did what was right. Now he is in the right place I hope all the care will be of benefit to him. Keeping everything crossed for you all.

PoopingAllTheWay · 27/02/2025 23:05

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Please read the updates. Her son has been diagnosed with a brain tumour

DancyNancy · 27/02/2025 23:07

I'm sorry you're going through this ❤️ Sending hope and prayers for the best possible outcome 🙏

desperatedaysareover · 27/02/2025 23:11

I am sorry. I am praying as hard as I can for strength for you and a happy outcome for your little boy.

One certainty you do have right now is your own tenacity and your massive love for each other. Imagine he didn’t have you. I hope you have people IRL who can gather round and help your family. You deserve every bit of help you can get right now and the hospital should be signposting how to access it.

What a job you’ve done. None of us know what’s coming and I can only guess how I’d feel hearing what you heard today, but fuck me, I hope you know you’re some woman.

X

AnonAnon64 · 27/02/2025 23:13

I’m so sorry I was an absolute dipstick and posted earlier before reading updates. I’m so sorry that your son and family are going through. My thoughts and prayers are with you. Wishing you the very best. Xx

LittleBear21 · 27/02/2025 23:13

I will keep you in my prayers OP. You did the right thing getting the scan brought forward. Stay strong. We're with you.

Mumofoneandone · 27/02/2025 23:15

Sending you so much love, what a horrendous time you are all going through. Well done for fighting for the earlier MRI and that he is now being admitted for further investigations.
Just take one step at a time x

ScouseQueen · 27/02/2025 23:15

YourRubyMaker · 27/02/2025 22:38

This is something you never think will happen and honestly it’s horrific , we’re currently on our way to a different hospital and hr and a half away , in a ambulance

If it's the Walton Centre you are going to, you will be in excellent hands. I know someone who was treated there for a very rare brain tumour. Over 15 years later they are doing really well, though with some after effects but having a good life. Wishing you and your lad the very best.

Badgerandfox227 · 27/02/2025 23:19

I’m so sorry to read your latest updates OP. Well done for everything you’ve done so far to advocate for him, you have given him the best possible chance at treatment and there is so much that can be done these days. Lots of love to you and your boy xx

Objectrelations · 27/02/2025 23:19

Oh shit thinking of all of you.

NeedsMustNet · 27/02/2025 23:21

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Getupat8amnow · 27/02/2025 23:25

Thinking of you and your son OP.

NC28 · 27/02/2025 23:25

Even with MNHQ updating the title, people aren’t reading all of the OPs updates.

So sorry to read your news, OP. Hopefully you get some answers soon and a plan in place to get your boy better.

Zebracat · 27/02/2025 23:26

I’m so sorry. It is good though that your darling boy has you in his corner. You fought so hard to get his symptoms taken seriously. Whatever happens, he has you. Xx

BarbaricYawp · 27/02/2025 23:30

Thinking of you and your family tonight. x

Frolie · 27/02/2025 23:33

You are an amazing mummy. I can’t believe your GP made you make two appointments. That’s awful, you’ve had to fight so hard.
I’m so so sorry to read your update. I’m thinking of you and your gorgeous son. Don’t forget what a brilliant mum you are. Lots of love to you both x

daisyb2 · 27/02/2025 23:35

I am so sorry op ♥️ praying for you and your family xx

ohfourfoxache · 27/02/2025 23:38

Sending you the most enormous hug Flowers

You have done so, so well to keep persisting and get him seen. I know it’s not going to feel like much, but please try to hold onto the fact that you kept going to get him help

WillaDeWord · 27/02/2025 23:41

Nothing to say that is useful except that I have read your posts and am thinking of you and your son and all and sending all my best wishes and hopes your way.

AnxietyJane · 27/02/2025 23:44

So sorry OP. Praying for you and your family. I hope your boy makes a speedy recovery, and how lucky he is to have a mum like you who is fighting his corner. Wishing your family all the best.

NeedsMustNet · 27/02/2025 23:45

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Notimeforaname · 27/02/2025 23:53

Please don’t lose hope OP.
Amongst the fear and the panic there IS hope

This poster has it right. Keep telling yourself and your partner this!

Almost every single one of us here have a success story for someone we know or love who has overcome something serious.

Tell yourself every day that you are a strong, solid family and you're going to get through this together.

Sending my thoughts, hugs and positivity to you xx

And as other's have said, please eat and drink, even though you won't want to.
Call everyone and anyone you can, to drop things up to you.

You dont have to see anyone if you dont want to, they can leave a bag for you to collect.

BobbyBiscuits · 27/02/2025 23:59

I've had a brain MRI and it can take about 45 minutes. They play music through headphones as it's a bit noisy. I'm so sorry for your son. I hope he gets better soon.
Wishing you and him the best x

DodoTired · 28/02/2025 00:03

My husband‘a friend had a brain tumour although not a child but in his early twenties. It was serious but it was removed and he is now in his 40ies, with two kids and is a consultant radiologist himself. wishing your lovely son all the best,

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