Out of my mind with worry [Please read the OP's updates before responding - Title edited by MNHQ]

[YourRubyMaker]

Someone please just give me some hope I’m so stressed I can’t function , my 10 year old since sept has had a limp in one leg then it became a weekness in his arm and hand on the same side , doctor was useless and made me do it as two separate issues and make another appointment!!! Didn’t take me seriously and Had X-ray on hips all fine (obviously 🙄 ) I went to see another doctor who said im referring it for urgent peadeatric appointment (great so helpful ) and he wanted to refer for mri but couldn’t , appointment comes thro and it’s in fucking June !!!! And that’s a urgent referral , in the mean time it’s got worse and now he can’t run and often stumbles and falls doesn’t use the arm hardly at all , have taken him back and they’ve now booked a mri brain scan for next weekend , which happens to be on his birthday of all days 😭 he’s mental health is shit as is mine and he’s obviously worried , how long does a brain mri scan take please ? And has anyone ever experienced issues like this and it not be something life threatening, I also have a toddler so am still having to be normal and do normal stuff where as I just want to lay in bed and cry

• [Message from MNHQ - please see OP's updates before responding]

I am so sorry, OP.
Sending positive thoughts for you and your family.

You, your ds and family are in my thoughts and prayers. I wish you all the strength and love.

So sorry you are going through this OP.

I’m hoping this will give you some reassurance but I know someone who was recently diagnosed with a brain tumour and of course it has been a very worrying time for them. However fortunately it was benign and they were booked into surgery very quickly to have it removed. Their neurologist insisted on sending them to a specific surgeon to remove the tumour who is really good and the operation went well. She was home just 5 days after surgery.

This must be such a worrying time for you, but please don’t lose hope. Children can be very resilient.

Sending you my best wishes and I really do hope everything works out ok xx

Thinking of you all.

I am so very sorry to read your updates op. I can't even imagine how you feel right now. Sending strength to you all for these difficult weeks ahead

Oh @YourRubyMaker i am so very sorry. Thinking of you and your boy ❤️

Thinking of you and your lovely son tonight and sending you love ❤️.

This is something you never think will happen and honestly it’s horrific , we’re currently on our way to a different hospital and hr and a half away , in a ambulance

Thank you your messages especially the hopeful stories

Please remember to look after yourself
Eat and drink

Please don’t lose hope OP.

Amongst the fear and the panic there IS hope. I also know someone who was diagnosed with a brain tumour at 14, it was benign and removed successfully. You wouldn’t know it had even happened if you met them now.

Stay away from Google, listen to the professionals and ask as many questions as you need to. I will be praying for you and your boy x

Ah op, I wish I had better words but I just wanted to wish you all well and that I'll be thinking of you. It's every parents worst nightmare and I'm sure you're reeling while still being so very strong (even if it doesn't feel like it, you are). As it all sinks in just take all the support you are offered and go through the motions of eating etc and doing the little bits you can to keep yourself running even when it feels completely counter intuitive. Sending you lots of strength and love to you and your little boy.

Hugs and a handhold for you x

@Greenwallpinkwall Flip you really need to work on your bedside manner!

Massive hugs OP, to you and your boy. You're an amazing mum to have advocated so well for him and have no doubt you'll continue to do so.

Being a mum with a child in hospital is horrendous but as people have already said, please take care of yourself too. You will need every bit of strength for this journey.

Hoping for the best possible outcome for your son 🙏

My mum had a brain tumour the size of a large orange. It was benign and 9 years since her operation. We had 6 stressful weeks but now she is thriving. Please have hope xx

Read the OPs updates, she’s had the results x

Oh, I am so sorry to hear this. Take care of yourself, not just your wee boy.

Thinking of you, OP. This must be a really difficult and lonely time, since your partner is at home with your toddler. But there is always someone around on Mumsnet, and there is so much concern for you here. Take care of yourself. Hoping for the very best for you and your boy xxxxx

My friends 11 year old daughter developed the rarest possible type of brain tumour possible - literally has had multi-national neurosurgical teams on her case because it is so rare. It was very scary for her and the parents, and it was two years of hell. But she is actually now fine - and that was from a position of them believing it would be inoperable. Children are much more adaptable that us adults, and they also manage to bounce through things. Stay strong - these days there's every chance that he will pull through this.

Quoting this post in case you missed it. Really well thought of in the Charity sector.

So sorry OP. Sending you so much love and strength. Hoping for the very best outcome for you son xx

@YourRubyMaker I'm so sorry you've had bad news. Your DC will be in my prayers and thoughts for a speedy recovery and easily curable prognosis.

I can't imagine how hard this must be, especially when no one was taking you seriously 💐

Also, I know it's hard, but try not to google, or dwell on the negatives. ❤️

The poor love. I’ve had a few brain MRIs. My head was put inside a box like frame to hold it steady. The MRI machine is quite loud - I’d compare the noise to something like noise from a building site. My Dad was a builder and at the end of a day he used to put stones and water in the cement mixer and put it on to clean the mixer. The noise reminded me of that. Clatters and bangs. I can’t remember if I use headphones or not. If I do there’s still noise.

I wonder if they can give give your son a sedative to make it less daunting. Maybe that’s not possible as it’s the brain being MRIed. I think the Operation Ouch suggestion is good. I’m not usually claustrophobic but I did feel quite anxious when inside the tube. They do give you a panic button to press if it’s too much. I resisted the urge to use it. Closed my eyes and thought about my kids. It usually took about 30 to 40 minutes.

I really wish you and your son the very best.