Out of my mind with worry [Please read the OP's updates before responding - Title edited by MNHQ]

[YourRubyMaker]

Someone please just give me some hope I’m so stressed I can’t function , my 10 year old since sept has had a limp in one leg then it became a weekness in his arm and hand on the same side , doctor was useless and made me do it as two separate issues and make another appointment!!! Didn’t take me seriously and Had X-ray on hips all fine (obviously 🙄 ) I went to see another doctor who said im referring it for urgent peadeatric appointment (great so helpful ) and he wanted to refer for mri but couldn’t , appointment comes thro and it’s in fucking June !!!! And that’s a urgent referral , in the mean time it’s got worse and now he can’t run and often stumbles and falls doesn’t use the arm hardly at all , have taken him back and they’ve now booked a mri brain scan for next weekend , which happens to be on his birthday of all days 😭 he’s mental health is shit as is mine and he’s obviously worried , how long does a brain mri scan take please ? And has anyone ever experienced issues like this and it not be something life threatening, I also have a toddler so am still having to be normal and do normal stuff where as I just want to lay in bed and cry

• [Message from MNHQ - please see OP's updates before responding]

Keeping everything crossed the doctors can help your son x

Sending you so much love OP. I am so sorry to read your update. You have been an amazing advocate for your beautiful boy. Please be kind to yourself, remain hopeful and take this day by day.

To echo the PP, please let family and friends support you in whatever way you need. Let a good friend coordinate this for you (I have done so for a friend in the past) so that you don't need to speak to more people than you can cope with.

I will be thinking of you all and sending you love & hope x

I had a brain MRI this morning after a previous one found a benign tumour. That was partially resected 12 weeks ago so I had a follow up today. The scan was only 15 mins but then, because I have a partial tumour remaining, I was brought out to have contrast injected into a cannula and the scan was repeated.
I find the mri weirdly relaxing (and im claustrophobic!!) with its pulsating noises but suspect that is a bit strange.
As for results I'm afraid I can't help other than to say when my tumour was found I was taken from the scan to the doctor and within 3 weeks I'd had a craniotomy.

But I sincerely hope your child is fine and try not to worry about the scan! I'm glad that you're getting somewhere with a potential diagnosis at last x

You should RTFT.
The OP has had the results.

I'm sorry I've just read the rest of the thread. Please try to look after yourself as well as your son. The vast vast majority of brain tumours are benign and treatable and I sincerely hope that's the case for your son. I wish you both all the very, very best ❤️❤️

Sending you and your son so much love, and a hand-hold for you.

Sending you and your boy so much love and the biggest handhold. We’re all here whenever you need us.

Just saw your update . M sending lots of love to you and your son and lots of strength .

So sorry to read your updates OP. Everyone is behind you and your son and wish you all the best throughout this time❤️

sending love and strength to you and your son .i feel you pain i had a very sick child ( he’s fine now ) but had plenty of times when I wanted to scream and felt I was going to go mad with fear sorrow and every other emotion but some how you will get the strength to put one foot in front of the other . During those long lonely nights in hosp please come on to mums net some body will always be awake to talk to you and help you get through to the next hour .

Hi OP, I'm so sorry that your lovely little boy and all of you are going through this. But don't lose hope - most brain tumours are benign and can be removed!

Sending you strength and love 💖

You’re a fantastic mum, OP. I’m so sorry you’re all going through this 🌷

You've shown us what an amazing mum you are already by persevering and getting him seen. I hope that the hospital you are at now is able to swiftly make a plan and get on top of the tumour. Make sure you take care of yourself too, accept help from others and just take it day by day or hour by hour when you need to. Sending prayers and strength to get through this difficult time x

💐

I'm so sorry you've had this news. You're a brilliant mum and advocate for your lovely boy.

Wishing you all courage and strength, and hoping all will be well.

Sending you every ounce of strength I can to you and your gorgeous boy.

Sending strength ❤️❤️❤️. I know we’re strangers but we’re mums and we’re with you. Especially hard with his birthday.

https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/children-and-families-service/support-families/

https://www.tomstrust.org.uk/

https://www.oscarspbtc.org/

@YourRubyMaker I am sorry that you and your child are going through this.

My heart is with you both, along with many prayers. As you and the medical team take care of your DS, don't neglect yourself. Your DS needs his Mommy to stay healthy.

Wishing the very best outcome for your son. Sending many {{HUGS}} and handholds.

Sending much love x

I'll keep your family in my thoughts and prayers. Sending live and healing light.

I'm sure you're overwhelmed, but either a new thread or this one, renamed, asking for handholds and prayers for your son will reach more people. Some of us will share with others, etc. Since we're all over the world, there may be someone praying or sending well wishes at any given moment.

🙏💙

I’m so sorry to hear about your gorgeous boy🥰 take day by day, you and your wee fighter have got this 🥰 sending much love and hugs xxx

@YourRubyMaker I've just taken the puppy out for a wee and I was thinking of you. I hope they're settling you in to the new hospital and they can give you all the care you both need.

I wish your update was different. As others have said, we are here for you. I really hope you get more answers soon
we’re thinking of you xx

So sorry to read your updates OP, I am praying for your lovely son and for all your family and sending positive and healing thoughts his way. You must be reeling from the shock, but you have done so well in advocating for him as you have.
Another encouraging story here in that a friend's son ( mid twenties) was diagnosed with a brain tumour a couple of years ago. Following treatment, he is doing really well and living a full and normal life.

I’m so sorry you and your wee man are going through this nightmare. When you have time, I think it would be good to find out who you saw at your GP clinic. Make sure they are a doctor and not a PA. Get the dates and times, as well as the names and qualifications and diarise this as I think you will probably report this to PALS. (Rightly so.) It would be good to get this info before they get wind of this diagnosis. Poor wee man had his treatment delayed after really obvious neurological symptoms were minimised and ignored.