Out of my mind with worry [Please read the OP's updates before responding - Title edited by MNHQ]

[YourRubyMaker]

Someone please just give me some hope I’m so stressed I can’t function , my 10 year old since sept has had a limp in one leg then it became a weekness in his arm and hand on the same side , doctor was useless and made me do it as two separate issues and make another appointment!!! Didn’t take me seriously and Had X-ray on hips all fine (obviously 🙄 ) I went to see another doctor who said im referring it for urgent peadeatric appointment (great so helpful ) and he wanted to refer for mri but couldn’t , appointment comes thro and it’s in fucking June !!!! And that’s a urgent referral , in the mean time it’s got worse and now he can’t run and often stumbles and falls doesn’t use the arm hardly at all , have taken him back and they’ve now booked a mri brain scan for next weekend , which happens to be on his birthday of all days 😭 he’s mental health is shit as is mine and he’s obviously worried , how long does a brain mri scan take please ? And has anyone ever experienced issues like this and it not be something life threatening, I also have a toddler so am still having to be normal and do normal stuff where as I just want to lay in bed and cry

• [Message from MNHQ - please see OP's updates before responding]

I doubt he’ll be allowed anything over or in his ears if he’s having a brain scan!
They don’t usually allow it

Sending lots of love and strength to you @YourRubyMaker Soon you will be in the right place and hopefully feel reassured by the amazing teams to work so hard every day and know just what to do. Thinking of you both Xxx

Sending love, hugs and positive thoughts to you and your whole family right now xxxx

So so sorry to see your update. Absolutely devastating ❤️🌺

So sorry to read this OP, and willing your boy the best possible outcome and all the strength you and your family need to get through this.

I'm glad he's being kept an eye on in hospital and hope they find a specialist bed quickly.

Keeping everything crossed for as positive an outcome as possible. Try not to get too caught up on the size of it (easier said than done), as that doesn't determine what type it is or what it means long term. Be guided by the doctors and don't Google because the information is often actually misleading/wrong.

Best of luck for whatever tomorrow brings. One hour at a time. One day at a time. You can do this.

@YourRubyMaker I'm sorry you've waited so long to have this identified, but I'm glad they've caught up with it and are taking it seriously. One step at a time.

Hi op I've just came across your thread tonight and absolutely heartbroken with the update at the mri. Sending strength, love, prayers and positive vibes x

so sorry OP. Just posting this amazing charity, you can phone them and get support

https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/children-and-families-service/

Dear @YourRubyMaker
Im so so sorry you and your family are going through this. Thinking of you and sending you hugs and love.

please stay positive.
Don’t Google.
Lean on friends and family - everyone will want to help … ask for practical support; childcare for your two year old; lifts; cleaning; washing help; meals; and just keep on asking. Make sure that you and your partner are focused on your son and your toddler.
Look after yourself - this will be a long journey but stay positive and well for your son’s sake.
Lean on Mumsnet in your darkest moments and everyone who sees your posts will be there for you and listening.

sending so much love xx

I'm so sorry to hear that. It must be so frightening. Once things are clearer and you have a treatment plan, if you are open to it I would encourage you to check out the metabolic approach to cancer as a potential support to any conventional treatment. Many people are successfully using such approaches alongside their treatment. The book called how to starve cancer by Jane McLelland and a Facebook group called Always hope support are good places to start.

Well done op for pushing & trusting your instincts.

Sending you both a big hug and positive vibes. Xx

Oh bless you, I'm so sorry to hear about this very worrying news. You will, of course, be in bits right now. Have they offered any timelines on treatment, etc.?
I would stress that you need to make sure you look after yourself with food, and sleep, where you can; you're no use to your lovely boy, if you're physically unwell too. I hope you have good real life support, but please don't stop posting here for company in those wee small hours.
Take care.

Oh OP no words xxxx

Wishing you and your son strength and recovery

Sending love OP

Oh I'm truly sorry to read your update and my heart goes out to you and your DS
Sending you love and strength

Sending you and your family love. I’m so sorry this is happening ❤️

Try not to panic. Right now in reality you don't know if it's easily treatable. Impossible I know but don't go to the dark places. Deal with right now and next hour and no more than that if you can. Just try if you can to take it hour by hour. Hugs

So sorry this is happening to your family. Sending love and strength 💝

So sorry to see the update. Sending love.

Have everything crossed for your son Op.

Oh OP, I’m so sorry. So difficult for you and your DH having to manage this separately. Stay strong.

@YourRubyMaker well done on pushing to get him seen, I don’t have any advice to give but just sending you luck, and will be thinking of you and hoping for the best, can only imagine the worry but fingers crossed

I am so, so sorry. I pray that it is a benign tumour that can be removed safely, op. Your son is a very brave boy. My heart goes out to you.

I’m so sorry you’ve had this news OP. My experience of the part of the NHS you’re about to tip into is that it’s like a completely different entity. They can, and will, move heaven and earth now.