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14 month old spasms

3 replies

Paapaa · 01/07/2024 22:35

Hi I'm just after some advice about my 14 month old son.
When he was about 8 months old we thought he had a seizure(epilepsy is in the family), luckily got it on video and consultant sent us for EGG, MRI and genetics which all came back as normal. He has development delays and we're waiting for physio. About 2 weeks ago he did 4 spasms that lasted for seconds with 1/2 minute break inbetween, his eyes also rolled back. We went to the doctors which said just keep an eye on them and record it if it happens again. 2am saturday morning he woke up and did it again but totally forgot to record it. Saturday after his nap he did it 3 times and my phone was upstairs on charge so couldn't record it. Sunday 3am he woke and did it again about 5/6 times and managed to record 2 spasms, he was really upset so was trying to settle him why recording. I sent the videos over to the consultant but haven't had a reply. I was just about to bath him tonight and he did it again but only 3 times and his eyes didn't roll. Has anyone experienced anything like this before? Thanks

OP posts:
paradyning · 02/07/2024 21:25

Hello
Do you thinking may be infantile spasms?
If you suspect this then you need to get them treated asap. Continue to try to get them on video

Paapaa · 02/07/2024 22:11

That was my 1st worry as does look very similar, I shown someone the video whos child has IS and they said it isn't IS as it doesn't happen everyday

OP posts:
paradyning · 02/07/2024 22:59

My dc started with it every few days before progressing. With his history I wouldn't take the risk and would get it checked out. Do you have a large hospital with children's A&E nearby?
You can also seek post the videos on fb UKIST account in the meantime

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