My good friends baby is under investigation and it looks likely that she is severely visually impaired/blind.
My friend is outwardly managing well but obviously hugely shocked and uncertain for the future.
They are awaiting genetic testing and have just started seeing play/occupational therapy,
I wonder if anyone has gone through anything similar and could share how life looks for you now, how your child manages, and how your friends did/could have supported you best?
Thank you 