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Does this look like Crainosynotosis?? Help!

8 replies

Lola1996 · 06/12/2022 21:29

Hi, I am just looking for some advice. My Health visitor feels the back of my babies head is a strange shape and may be Craino. I have noticed it a little since birth. However he had been to see a consultant for other issues with he was born and he noticed his head but didn’t seem concerned? I have now been referred back to peads to check it over. Baby is now 4months.

Has anyone any experience with this?
I am so worried but equally don’t know if I am overreacting!

Does this look like Crainosynotosis?? Help!
Does this look like Crainosynotosis?? Help!
Does this look like Crainosynotosis?? Help!
OP posts:
Lola1996 · 06/12/2022 21:32

His head seems to bulge out at the back but from the front he looks perfect.

OP posts:
janeeyreair · 06/12/2022 21:39

could it be a slight flattening of the head from sleeping on his back? Side photo looks perfect.

Lola1996 · 06/12/2022 21:44

Thats another thing, he never lies on the back of his head only on the sides xx

OP posts:
Speedyshoes · 09/01/2023 21:00

If you have a Facebook account, maybe join the Noggin Doctor's Plagiocephaly and Torticollis Discussion Board. I know the title sounds like it wouldn't be relevant, but it is run by a Craniofacial Paediatric plastic surgeon who specialises in craniosynostosis. You will have to provide different views, particularly a top down image, but he will be able to set your mind at rest, or recommend further investigation if applicable.

Speedyshoes · 09/01/2023 21:01

These are not the right views for assessing craniosynostosis. If I were you, I would ask to join the Noggin Doctor's Plagiocephaly and Torticollis Discussion Board on Facebook. The craniofacial paediatric plastic surgeon who runs it is a specialist in craniosynostosis.

Speedyshoes · 09/01/2023 21:03

Oops. Sorry. Browser fail, and I thought it hadn't posted. Didn't mean to do it twice!

Elmomama · 17/04/2025 19:40

Hi
Just wondering how your little ones head shape turned out, and if treatment or anything was needed.
My son has a similar shaped head. I think from always sleeping on his sides.
Thank you

Online384 · 24/04/2025 01:02

Elmomama · 17/04/2025 19:40

Hi
Just wondering how your little ones head shape turned out, and if treatment or anything was needed.
My son has a similar shaped head. I think from always sleeping on his sides.
Thank you

Join the Facebook group linked above - I’m not OP but had concerns about my baby and the amazing surgeon on there provided advice and reassurance that all was okay. FWIW I would be very surprised if OP’s baby had CS.

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