I posted a couple of months ago following dd’s routine cardio appointment regarding her small vsd and got some helpful responses thank you.
She has now been placed on a waiting list for open heart surgery.
I have been googling a LOT and most info, certainly experiential, is about infants. I can’t find much about young children undergoing ohs.
Does anyone have any experience they can share?
She has a small vsd to close, a leaky aortic valve and an enlarged ventricle.
The waiting list is approx 6 months and she will be at Leeds General Infirmary.
I am ok with the surgery, low risk and necessary. But I am so worried about the impact on her. She is very behind at school already and this is likely to mean
at least 6 weeks off, and she is quite an anxious little girl.
Any experience or advice would be so appreciated, thank you.