Hi my little boy is 22 months (2in august). He’s had a hard 12-18 months, in and out of hospital/doctors with recurrent croup/chest infections. On a hospital admission in April the doctor noticed his birthmarks upon examination. He has lots of cafe au lait type marks from his armpits all the way down his side and on his tummy, I just presumed he had birthmarks as they’d been there since birth. We are still waiting for the appointment with the hospital but the past couple of months I’ve noticed his balance being off a bit, I know toddlers are clumsy but it’s like drunk walking and falling, and he looks at me like he can’t stop himself I’m just wondering if anyone here has a child with NF and has some characteristics related to it as there’s so much more!
thank you 🙃