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Children's health

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HS vasculitus

3 replies

Grenola · 19/11/2020 22:58

Anyone with experience?

My 5 year old has. Quite severe in hospital. His urine is dark brown, off the scale protien and blood in urine and BP that can't be kept down. Even after 3 diff BP meds.

Its been 11 days since he got in. 4 days in hospital..... I'm scared now.

What should I be expecting for treatment? And how will we know if he kidneys are OK?.

OP posts:
Grenola · 19/11/2020 22:59

Hsp I meant sorry

OP posts:
Bingowin · 19/11/2020 23:13

Hi OP. My DP has Vasculitis but a different type to your son.
There is an auto immune section in the Health section so might be worth posting on their also?

Sorry I have no advice but sending good wishes to you and your son Daffodil

Grenola · 20/11/2020 01:25

That's x will check that out

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