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Osteogenesis Imperfecta/brittle bone disease

3 replies

Thiswayorthatway · 14/02/2020 16:52

Hi, I was just wondering if anyone has DC with Osteogenesis Imperfecta/brittle bone disease? Just received a diagnosis for my DC and looking for any guidance from other parents. TIA.

OP posts:
Thiswayorthatway · 17/02/2020 17:33

Bump

OP posts:
Embracelife · 17/02/2020 17:35

You may be better off joining brittlebone.org

Embracelife · 17/02/2020 17:36

brittlebone.org/support/general-support/

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