Polycyclic Kidney Disease (PKD)

[marie2020]

My 1 year old has just been diagnosed with PKD, passed from his father who also has it.

We wanted to have more than 1 kid but now we worry that they may get it as well as it is inherited disease.

Would you have more kids if you are at my place?

My 1 year old may live many years with this disease but it will develop as he grows. There is no cure for it.

They say PKD can be passed 50% chance BUT from my partners side it has been passed 100% with each generation, all his relatives from one side have PKD with no exclusions. Therefore I worry that if we have more kids they will have PKD too 😞

Ask to be referred to a genetic counselling. They can go through all details of the condition, the chance of passing it on etc. There is a genetic condition in our family and we went before we had children and found it really helpful.