Anyone have a child with HSP?

[Tarabelle]

My 11-year old daughter was diagnosed with this out of the blue last weekend when she suddenly developed a scary non blanching rash on her legs and arms. She had a really bad headache and sore throat too. Tests showed she had blood and protein in her urine, but thankfully the blood tests showed her kidney function is fine so far. She has one sore knee, not swollen, and has been incredibly tired all week. All the medics reassure me this should be a 4-6 week affair with possible recurrences, and that long term kidney issues are really unlikely - though they will monitor her for 6 months. It’s hard to get proper information.... there are HSP Facebook groups but they are really alarming to read, seemingly full of those who have experienced the worst-cases scenarios! Anyone here with any experience to share?

I was diagnosed with HSP when I was 9 years old (now 39) and we were living in Canada. I had the rash all over my legs, I spent a few days in hospital and I could weight bear for 2 months. Thankfully I didn’t have any kidney issues but I do suffer with sore knee joints still, the rash covered my knees and shins which consultant say is linked to having this as a child. I also have raynauds in my hands and feet which may or may not be linked.

It seems relatively uncommon still, I know several doctors who have never met a child with it in their career. I hope all your children recover well, it’s a very strange illness.