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Infantile spasms (West Syndrome)

0 replies

starbabyT · 03/11/2019 10:55

Hello All,

I a new to this site so please bare with me.
I have a 18month old boy who I am concerned may have IS we have got to A&E and done a few test however we are waiting for an EEG.

Please could you describe your childs experience prior to being diagnosed.

How many times a day would a seizure occur?
What did the seizure look like?
Did your child make any facial expression or strain like they was doing a poo?

Please any help and guidance will be appreciated and yes we are getting seen through medical professionals.

Thanks Smile

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